...to remind me how effective Prednisone is in controlling PMR misery. After 33 months of the drug fighting inflammation I've bee stuck at 7 MGs for the last year. So I broke routine and cruised my 65 year old retired self on the Peace River in Florida and forgot to take my cheap miracle pills. I realized this not till the wee hours of next morning, waking stiff muscled and dreadly malaised. So I took 5 MG right away and 3 more later in the morning and I'm getting back to my functional self.
How much longer will I be dependent on Pred staving off symptoms till the disease fades? I'll know better than my Rhematologist.
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salparadise127
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I always feel the occasional forgetful moment is a good reminder of why we take it!!
Ah, you’ve joined the club ‘The I’ll Never Forget Again Club’ next time you get a T-Shirt! 😉 We’ve All done it & it kind of reminds us just how much good the Pred is doing!
A sharp reminder of how effective it is despite being encouraged to come off it completely eventually. I have been on it now for just over 7 years and am now fluctuating between 2.5 and 2mg but do have occasional flare ups and then I just double my dose until it settles down,it always seems to happen in wet ,damp conditions. Unable to have Naproxin or any other NSAIDS. I have just joined the Forum.
Thank goodness the extra pain didn't last to long and start a flare.
I check that I have my meds so often now before I go out I sound like an overprotective parent checking for passport , tickets , stove off a hundred times before a holiday!
Totally unrelated , but is that a picture of Bettie Page , or you! 😋😁😂😂 xxx
I had a similar day yesterday. Suddenly, around 1pm, head felt heavy and thighs as well. I left my errands and came back home. Found the 2mgs of prd I'd neglected. Took it right away. Felt better slowly over the course of the day. I've been on 2mgs steady now for a week at the end of a slow taper. Hard to tell if my symptoms were due to missing the dose that morning or to something else such as allergies, poor sleep due to overthinking decisions, or just age.
I find one of the hardest things about pmr is trying to distinguish between pmr and anything els going on at any particular moment. Drives me crazy. I have had more tests and xray done because I just can't tell what is happening and what is causing it.
I split my dose and usually wake up pain free. One evening I tried taking it all in the am just to see how I was doing. My husband was alarmed I was so stiff and felt so bad till lunch. I have this fantasy that maybe I'm well. BTW I think my spell check should know by now not to change stiff to stuff. I type it often enough.!
It's a bit like I can't understand why Amazon insists on sending me suggestions for full-price Kindle books - don't think I have EVER bought a full price one so you would think their algorithms would have worked that out!!!!
Yes. That's exactly it. Every time I think I'm out of the PMR woods, I'm reminded that I can't take anything for granted with this illness. And once again, as I settle into the lower dosage for a more extended time, I get two other subtle symptoms, that are for me worse than stiffness or pain: dysphoric and muddleheaded. The former I can talk myself out of, reminding myself how lucky I am and that this mood is not me, just my physiology at the moment. The latter is so scary to me. At 77, and wanting to continue working, anything that suggests that I'm losing my ability to remember feels like a real threat. Then I remind myself that at 5mgs I was sure I was heading to dementia. It got better..
I think it must take some time for the brain fog to disappear. Just when I think I'm better I do some dumb thing. It doesn't scare me anymore. I just keep my life very simple. ❤️
That makes so much sense. But the last several months I've had to complicate mine. Fragile mood, lower multitasking capacity and need to create a home office since my lease on my external office is coming to a final end, have set me up for a level of complexity I couldn't avoid.
Yes we do still have to cope with life as it is. I was looking at changing tv providers as there is a new discount out but it's overwhelming. I multitask very poorly. I have been using CBD oil occasionally for anxiety during reductions. Seems to help. Steroids certainly cause an emotional mix up.
Twice in the last two weeks I’ve slept through my 2am dose, taking it a couple hours late, and I certainly feel the difference when I get up.
One night at 2am I got up, ate half a banana, took a drink of water, but forgot to take my pred dose! Suffered until noon when I went upstairs for something and saw my whole dose waiting right there on the bed stand (sigh). I knew, however, before discovering it, that something was “off”. After awhile we get good at being able to read our bodies.
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Possible missed dose
Missed prednisolone dose?
Missed dose this morning
took the wrong dose!
Trying to taper dose
