Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for February 2019

My new drug cocktail

Having had ongoing issues with painful swollen knees I have added leflunomide to my prednisolone and hydroxychloroquine. My rheumy still believes I have PMR...

Having had ongoing issues with painful swollen knees I have added leflunomide to...

Lochy

•5 years ago

59 Replies

Help with tapering (again, sadly).

Hello, I am trying to taper from 23 mgs to 21. By day 4 I am in excruciating pain. I thought 10% as instructed here would be fine. Could win kindly send the...

Hello, I am trying to taper from 23 mgs to 21. By day 4 I am in excruciating pai...

kellykel

•5 years ago

25 Replies

Finally,someone is listening

Hi everyone,finally got a cancellation today for my second opinion at a different hospital,with a new Rheumy.So pleased,lovely woman,actually wanted to...

Hi everyone,finally got a cancellation today for my second opinion at a differen...

Nellie1965

•5 years ago

11 Replies

Want to take advantage of all our features? Just log in!

The Lighter Side of PMR GCA: This Week's (therapeutic?) Online Shopping Adventures. You Couldn't Make it Up. Or could you?.. ;-)

Greetings to All here, wherever you are in the World and whatever your leanings in the On / Off Topic, er, 'discussion' - or any other Stress-inducing...

Greetings to All here, wherever you are in the World and whatever your leanings ...

markbenjamin57

•5 years ago

54 Replies

This article is not about PMR, but we can relate...

https://www.nytimes.com/2019/02/18/smarter-living/five-things-i-wish-i-knew-chronic-illness-crohns-disease-ibd.html

https://www.nytimes.com/2019/02/18/smarter-living/five-things-i-wish-i-knew-chro...

GOOD_GRIEF

•5 years ago

21 Replies

Pros and Cons on experiences with Methothrexate.

Just wanted to know who has been put on Methothrexate in place of Prednisone and their pros and cons. Thanks

Just wanted to know who has been put on Methothrexate in place of Prednisone and...

Spooky76

•5 years ago

17 Replies

Too many cooks, or GP's, spoil the broth?

I was diagnosed with PMR eight months ago after a severe bout of aches, pains, and increasing immobility over a couple of days, following an unrelated...

I was diagnosed with PMR eight months ago after a severe bout of aches, pains, a...

apttony

•5 years ago

11 Replies

Getting off Prednisone

I had PMR almost 2 years ago and was given Prednisone was amazing a life saver at the time. Given 20 mgs originally and went to 15 then 10 then finally 5 mgs....

I had PMR almost 2 years ago and was given Prednisone was amazing a life saver a...

England05

•5 years ago

27 Replies

Bit Of A Gasper! But What A View!

Approach to Toposcope. Lickey Hills. Great view beyond ! Always that fresh air!

Approach to Toposcope. Lickey Hills. Great view beyond ! Always that fresh air! ...

Hidden

•5 years ago

19 Replies

Funds for PMRGCAuk

I've just spotted a post from Dorset Lady about raising funds for this site when shopping on line. I buy a lot from Amazon for both work and home so was happy...

I've just spotted a post from Dorset Lady about raising funds for this site when...

teesher

•5 years ago

4 Replies

Dexa scan

Hello all. I just wanted to thank everyone for their advice on what to expect at a dexa scan.. It was like being in a very well-rehearsed play. I knew exactly...

Hello all. I just wanted to thank everyone for their advice on what to expect a...

Oxford8

•5 years ago

9 Replies

Pain returning...need advice

Help!...I am tapering slowly from 10 to 9 mg predinsone and traveling...had awful flare up a few days ago..back pain, sore joints, now am back to 10 mg but...

Help!...I am tapering slowly from 10 to 9 mg predinsone and traveling...had awfu...

izzyart

•5 years ago

17 Replies

Ribs

So, a new development in my confition. In the past few weeks I have developed some pain that comes and goes in the ribs, that starts in the side and go around...

So, a new development in my confition. In the past few weeks I have developed so...

Manchild

•5 years ago

11 Replies

Friendship

This message is for all on this site. Kate included. I have just read a message from unknown because I can't say. My heart goes out to her. But yet I do...

This message is for all on this site. Kate included. I have just read a message ...

morrison

•5 years ago

19 Replies

Ongoing problems with tapering

Hi Everyone, I have not posted on here for several months. The last time was when my husband had a heart attack while we were on holiday, I am pleased to say...

Hi Everyone, I have not posted on here for several months. The last time was whe...

PatB1948

•5 years ago

12 Replies

Steroids

I had my ecg today, wont get results until next week, but doctor thinks it could be oesophageal spasms, apparently the symptoms are the same, severe chest...

I had my ecg today, wont get results until next week, but doctor thinks it could...

Fifelassieo

•5 years ago

5 Replies

When it rains it pours.

Ok so I had bad luck and tripped over a pot hole before Christmas, necessitating ball joint replacement in left shoulder. Op postponed due to projectile vomit...

Ok so I had bad luck and tripped over a pot hole before Christmas, necessitating...

Marilyn1959

•5 years ago

69 Replies

Carotid arteries and GCA

Tomorrow I have to go for a scan on my carotid arteries. Can they be affected by GCA?

Tomorrow I have to go for a scan on my carotid arteries. Can they be affected by...

prunus

•5 years ago

9 Replies

rash lower part of foot. but now up to ankle bone rht foot..…………..

A blotchy scaly red rash has been developing around both feet, in the case of the right it has turned angry up to and including the ankle bone. Although a...

A blotchy scaly red rash has been developing around both feet, in the case of th...

Hidden

•5 years ago

5 Replies

Special toilet!

We went into the city today to pick up our Cartes de Sejour. Whilst Mark drove up to the roof of the car park, I stayed down to use the toilet. Imagine my...

We went into the city today to pick up our Cartes de Sejour. Whilst Mark drove u...

IdasMum

•5 years ago

52 Replies

People In Okinawa Live Longer Than Almost Anyone On Earth. Here’s What They Eat.

I know many here promote low carb diet so it will be somewhat controversial . Since I live in Japan and follow typical Japanese diet I wanted to share with you...

I know many here promote low carb diet so it will be somewhat controversial . Si...

nickm001

•5 years ago

20 Replies

Tea and chat, Woodbridge, Suffolk

Our next tea and chat is on Thursday 7th March at 2 o'clock Dobbies Garden Centre Grundisburgh Road Woodbridge IP13 6 HX Hope you can make it.

Our next tea and chat is on Thursday 7th March at 2 o'clock Dobbies Garden Cent...

Soosie56

•5 years ago

2 Replies

Steroids

I am on 20mg for pmr, this is the second month since diagnosed, l have had two episodes where l have had severe chest pain. Could this be due to prednisilone

I am on 20mg for pmr, this is the second month since diagnosed, l have had two e...

Fifelassieo

•5 years ago

9 Replies

What vitamins should you take?

What vitamins good for PMR? I am taking Multi vitamin Fish oils Calcium Magnesium Zinc B12 Collagen Glucosamine

What vitamins good for PMR? I am taking Multi vitamin Fish oils Calcium Magne...

jensen0518

•5 years ago

3 Replies

PMR blood work what are important numbers to look at

Diagnosed in December blood work the number that really stood out was the C reactive protein my number was 128.6 and normal should be less than 8 What numbers...

Diagnosed in December blood work the number that really stood out was the C reac...

jensen0518

•5 years ago

3 Replies

Polymialgia rhumatica

Good day to you all, I have recently been diagnosed with polymialgia rhumatica, it was excruciatingly painful and I couldn’t get out of bed, a visit to the...

Good day to you all, I have recently been diagnosed with polymialgia rhumatica, ...

Hidden

•5 years ago

40 Replies

A question about flarest

On the whole, do you only experience flares when you’re tapering, but not when you’re on the dose that has been controlling the symptoms? Diagnosed Sept 2018...

On the whole, do you only experience flares when you’re tapering, but not when y...

braininjurythepits

•5 years ago

15 Replies

Vitamin supplements

I’ve been thinking I probably need to take some extra vitamins — what do most of you take to help balance things out with Pred ? I’m currently on 10mg...

I’ve been thinking I probably need to take some extra vitamins — what do most of...

braininjurythepits

•5 years ago

5 Replies

What success looks like!

Hi everyone, A couple of people have suggested that we show you the extent of the activity on the PMRGCAuk forum. So here is a table showing you just that....

Hi everyone, A couple of people have suggested that we show you the extent of th...

Polywotsit

PMRGCAuk team member•5 years ago

21 Replies

First flare

I was doing great. Down from 20mg to just below 5 mg and feeling like 'me' again. It took 14 months. Then I caught a cold. It knocked me out, turned into a...

I was doing great. Down from 20mg to just below 5 mg and feeling like 'me' again...

Danda99

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2019

My new drug cocktail

Help with tapering (again, sadly).

Finally,someone is listening

The Lighter Side of PMR GCA: This Week's (therapeutic?) Online Shopping Adventures. You Couldn't Make it Up. Or could you?.. ;-)

This article is not about PMR, but we can relate...

Pros and Cons on experiences with Methothrexate.

Too many cooks, or GP's, spoil the broth?

Getting off Prednisone

Bit Of A Gasper! But What A View!

Funds for PMRGCAuk

Dexa scan

Pain returning...need advice

Ribs

Friendship

Ongoing problems with tapering

Steroids

When it rains it pours.

Carotid arteries and GCA

rash lower part of foot. but now up to ankle bone rht foot..…………..

Special toilet!

People In Okinawa Live Longer Than Almost Anyone On Earth. Here’s What They Eat.

Tea and chat, Woodbridge, Suffolk

Steroids

What vitamins should you take?

PMR blood work what are important numbers to look at

Polymialgia rhumatica

A question about flarest

Vitamin supplements

What success looks like!

First flare

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