Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,269 members • 37,944 posts

All posts for February 2019

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I know a lot of people are not very tech oriented..and may not realize that there is a SEARCH box with a little magnifying glass up on the right by your avatar...

I know a lot of people are not very tech oriented..and may not realize that ther...

yogabonnie

•5 years ago

4 Replies

I am a fraud

A few weeks before Christmas 2019, 2 days on the run I had walked the stiff 5 miles from the local town to home though the second day I I felt far wearier...

A few weeks before Christmas 2019, 2 days on the run I had walked the stiff 5 mi...

Legsy0714

•5 years ago

69 Replies

to Daisy

Dear Daisy, I wish I bring flowers to you but hope these will cheer you up. I miss you and your wonderful posts and hope for health and happiness ahead. Come...

Dear Daisy, I wish I bring flowers to you but hope these will cheer you up. I mi...

coda123

•5 years ago

5 Replies

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Prednisone and sun

Good morning Has any one else had a problem with the sun while on Preds We had a few sunny days here just 16c 18c , but was warming in a secluded part of my...

Good morning Has any one else had a problem with the sun while on Preds We had ...

mad-country-lover

•5 years ago

23 Replies

Same old.....,

Went to see another rheumy today at University of Pennsylvania Hospital for a second opinion. He was still not sure I have PMR, but failed to come up with...

Went to see another rheumy today at University of Pennsylvania Hospital for a se...

Manchild

•5 years ago

16 Replies

1st Rheumatologist appointment and instructions etc.

After two and a half years with PMR, my new GP referred me to a rheumy, to get a second opinion she said. I had the appointment last Thursday and was told by...

After two and a half years with PMR, my new GP referred me to a rheumy, to get a...

Joan-E-D

•5 years ago

12 Replies

Why is this necessary?

Diagnosed GCA, on Pred , however Consultant has recommended an Endoscopy and Colonoscopy. I do not have any symptoms and feel bad enough, so I declined?

Diagnosed GCA, on Pred , however Consultant has recommended an Endoscopy and Col...

Seagu11

•5 years ago

16 Replies

Coated and uncoated

Hi, I know someone quite recently posted about having difficulty getting hold of 1mg gastro resistant pred, well today I too have hit a brick wall with this....

Hi, I know someone quite recently posted about having difficulty getting hold of...

Lonsdalelass

•5 years ago

68 Replies

Between a Rock and a hard place.

I was diagnosed with PMR in March 2016, having felt unwell for some months. My GP’s diagnosis was confirmed by my Rheumatologist. I was started on 20 mgs of...

I was diagnosed with PMR in March 2016, having felt unwell for some months. My G...

SheffieldJane

•5 years ago

125 Replies

Fundraising for PMRGCAuk

On May 18th I will be doing the 5k Colour Obstacle Rush in Windsor with 5 of my friends and family for PMRGCAuk. Their support to me with my PMR journey has...

On May 18th I will be doing the 5k Colour Obstacle Rush in Windsor with 5 of my ...

Janicecm

•5 years ago

6 Replies

What does your side kick ( pain) feel like ?

Hi all ! I haven’t been on for a while but I’m very frustrated now with my left temporal pain . It’s been a year now that I’ve had the pain in left temporal...

Hi all ! I haven’t been on for a while but I’m very frustrated now with my left ...

Maggiemuffins

•5 years ago

5 Replies

A bit nauseous in the morning

I am on my first week new dose of 7.5. .5 reductions have been so much easier. I know I know I should have listened. I now notice that I occasionally have mild...

I am on my first week new dose of 7.5. .5 reductions have been so much easier. I...

bunnymom

•5 years ago

37 Replies

PMR or RA?

Two years ago I was diagnosed with PMR then RA and no one seems to really know which it is. I am off prednisone and on Methatrexate but the fatigue is...

Two years ago I was diagnosed with PMR then RA and no one seems to really know w...

Grammajoy

•5 years ago

2 Replies

Wim Hof Method

I was talking to a friend about my latest health problems ,out of the blue he says Wim Hof , excuse me was my reply, he said try it , they claim to have great...

I was talking to a friend about my latest health problems ,out of the blue he sa...

Gaz227

•5 years ago

21 Replies

Maybe I really have Wegeners Vasculitis!!!

After two years of being treated for GCA/PMR and suffering from pain I believe that I actually might have a mild case if Wegeners. Having more labs today....

After two years of being treated for GCA/PMR and suffering from pain I believe t...

Aleish

•5 years ago

2 Replies

Anybody got twitching of the eyes??? My right eye has been twitching, intermittently, for a couple of hours, for some weeks now. alida

On 1 mg prednisone now almost two hrs pmr. And yes, still tired!!

Kaaswinkel

•5 years ago

12 Replies

GCA flare, tongue claudication

I have had a flare of GCE over the last few weeks. GP put me back to 50mg for a week, then reduced it to 37.5. Last blood test, CRP was under 5 again (from...

I have had a flare of GCE over the last few weeks. GP put me back to 50mg for a...

crafty_grannie

•5 years ago

10 Replies

Jaw Ache and GCA

Question time please for GCA people. Since starting GCA I was on 40mg for a week then it was incresed to 60mg. This is my third day on 60mg and I have jaw...

Question time please for GCA people. Since starting GCA I was on 40mg for a we...

survivalist

•5 years ago

16 Replies

Blurry eye

I have upped my prednisolone from 6mg to 9 mg for the last 6 days. This morning I noticed the vision in my left eye was quite blurry. This started about 2...

I have upped my prednisolone from 6mg to 9 mg for the last 6 days. This morning ...

Koalajane

•5 years ago

23 Replies

tingling face

i have tingling face and head i am fed up going to doctors and doing nothing has anyone got any thing like that .thank you

i have tingling face and head i am fed up going to doctors and doing nothing has...

ballyboy

•5 years ago

6 Replies

Diverticulitis and steroids

So now another hurdle....first PMR diagnosed last Jan 2018. Now toggling between 9.5 and 10 mg. Then Lyme disease contracted and treated Aug 3018. Now...

So now another hurdle....first PMR diagnosed last Jan 2018. Now toggling betwe...

Hidden

•5 years ago

26 Replies

“Baby, Baby… Stick Your Head in Gravy!”

If you're interested... I've written a new "rant." To find it, just Google, rantings of a madwoman blog, and choose the appropriate link. Please, please,...

If you're interested... I've written a new "rant." To find it, just Google, ran...

Hidden

•5 years ago

18 Replies

Head fog - Does it affect judgments?

Apart from the continual dreaded fatigue, which can lift for a short spell but not very often, does anyone find that the also dreaded head fog causes you to...

Apart from the continual dreaded fatigue, which can lift for a short spell but n...

kathleen18

•5 years ago

99 Replies

Flare

Can I please ask what constitutes a flare? I have been on 15mg of pred for about 6 weeks but I am now experiencing excruciating pain in my left hip and thigh,...

Can I please ask what constitutes a flare? I have been on 15mg of pred for about...

Trish21

•5 years ago

15 Replies

PMR can be a right old struggle

Saw this poem and although I’m not someone to roll over to PMR there are days when I’ve truly felt like this. It’s now been six years and I still have it....

Saw this poem and although I’m not someone to roll over to PMR there are days wh...

Janet57

•5 years ago

21 Replies

I wanted to tell you I have the most magnificent bruising on my right boob after...

IdasMum

•5 years ago

12 Replies

Feeling awful

I was diagnosed with GCA on October 10 2018. I started at 60mg, gradually reduced to 35 by December 25, then after a two week vacation back up to 40mg as my...

I was diagnosed with GCA on October 10 2018. I started at 60mg, gradually redu...

alvertta

•5 years ago

21 Replies

Very Confused

Hi Everyone I haven't been on here for a while as I had the good fortune of going into remission on all fronts around Christmas time for about 5 weeks but of...

Hi Everyone I haven't been on here for a while as I had the good fortune of goin...

Laurapc

•5 years ago

45 Replies

Hot Flushes increasing

I reduced my prednisolone from 10mg to 9mg at the beginning of February and just about coping with the soreness but have noticed an increase in facial hot...

I reduced my prednisolone from 10mg to 9mg at the beginning of February and just...

Godrevy1960

•5 years ago

25 Replies

GingeMan

I started with PMR seven months ago just before I was due to have a knee replacement. I was on 15mg pred and my consultant refused to operate due to an...

I started with PMR seven months ago just before I was due to have a knee replace...

parsifalwiz

•5 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2019

Search...

I am a fraud

to Daisy

Prednisone and sun

Same old.....,

1st Rheumatologist appointment and instructions etc.

Why is this necessary?

Coated and uncoated

Between a Rock and a hard place.

Fundraising for PMRGCAuk

What does your side kick ( pain) feel like ?

A bit nauseous in the morning

PMR or RA?

Wim Hof Method

Maybe I really have Wegeners Vasculitis!!!

Anybody got twitching of the eyes??? My right eye has been twitching, intermittently, for a couple of hours, for some weeks now. alida

GCA flare, tongue claudication

Jaw Ache and GCA

Blurry eye

tingling face

Diverticulitis and steroids

“Baby, Baby… Stick Your Head in Gravy!”

Head fog - Does it affect judgments?

Flare

PMR can be a right old struggle

Not PMR related

Feeling awful

Very Confused

Hot Flushes increasing

GingeMan

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