Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for February 2019

Let's talk about our eyes.

I know many of you are aware that I've been trying to get a handle on this GCA . Re cap: diagnosed a year ago. Incompetent care thus far:Tapered off prednisone...

I know many of you are aware that I've been trying to get a handle on this GCA ....

Blurry62

•6 years ago

39 Replies

Does anyone have itchy skin

Since my last flare (9 days ago) I've had itchy skin on my arms and chest. The flare was quickly under control and I'm gradually getting back down to where I...

Since my last flare (9 days ago) I've had itchy skin on my arms and chest. The ...

Footfairy-1

•6 years ago

33 Replies

After 11 months I've seen a Rheumatologist!

Just to put you in the picture, I was dx at the beginning of July 2017, suspected GCA & PMR and had an immediate referral to Rheumy. Luckily no GCA. I was put...

Just to put you in the picture, I was dx at the beginning of July 2017, suspecte...

Footfairy-1

•6 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Suffering in Silence

I haven’t been on for a while due to wallowing in a deep dark pit of woe is me. I did go to Southwell for an informal meet up with the ladies and enjoyed...

I haven’t been on for a while due to wallowing in a deep dark pit of woe is me. ...

Estellemac

•6 years ago

65 Replies

GCA Update

Was at the GP yesterday and the GP tried to get a response from the rheumatoid consultant without any luck on the phone etc GP is switched on to the problem...

Was at the GP yesterday and the GP tried to get a response from the rheumatoid ...

survivalist

•6 years ago

9 Replies

How to explain that the DF is back...

From November until late January I experienced a pleasant relapse into feeling almost well. I was still tired, but less so and had lost that permanent flu...

From November until late January I experienced a pleasant relapse into feeling a...

Marijo1951

•6 years ago

47 Replies

A Chilly Park Walk Worth Every Moment.

Early nurse appointment today. Interesting how these can still stress me up! The predictive mind eh! (white/blue coat syndrome) OK. She is & had a trainee...

Early nurse appointment today. Interesting how these can still stress me up! T...

Hidden

•6 years ago

27 Replies

Recurrent symptoms of UTIs or UTIs that don't produce positive urine cultures

I thought some of you might be interested in this article from the Guardian this morning:...

I thought some of you might be interested in this article from the Guardian this...

PMRpro

Ambassador•6 years ago

25 Replies

PMR /GCA ? On going headache , droopy eyes

I posted a couple of weeks back about a temporal headache I was having on my base dose of 5mg pred , After a lot of is it or isn’t it GCA as I currently only...

I posted a couple of weeks back about a temporal headache I was having on my bas...

Gaz227

•6 years ago

16 Replies

PMR can you blockout the pain

I have a general question. Does anybody or know if it is possible to completely block all pain and symptoms of PMR. This is only my observation one thing I...

I have a general question. Does anybody or know if it is possible to completely...

jensen0518

•6 years ago

23 Replies

Exercise...it’s supposed to help 😳

Winter from hell keeps me active this winter..I’ll be feeling it tomorrow, and winter storm warning for the next couple of days...so when do I up my dose,...

Winter from hell keeps me active this winter..I’ll be feeling it tomorrow, and w...

daworm

•6 years ago

10 Replies

I’m going too fast again!

Been feeling better, morning stiffness everyday and some shoulder stiffness but some may be related to pre existing OA...so to see if I’m on a good taper I...

Been feeling better, morning stiffness everyday and some shoulder stiffness but ...

daworm

•6 years ago

1 Reply

GCA tapering and differing rheumie views. I think I now have the one who understands.

Diagnosed July last year and put on 65mg pred. Did fine. Waited 9 weeks to see Rheumy doctor who immediately ordered drop to 30 mg. You can imagine what...

Diagnosed July last year and put on 65mg pred. Did fine. Waited 9 weeks to see R...

Dontwannabesick

•6 years ago

10 Replies

PMR diagnosis help

Hi... I have GCA and have very little knowledge of PMR. However my sister in law is having all the symptoms I read here and I suspect she has it. Her GP...

Hi... I have GCA and have very little knowledge of PMR. However my sister in l...

Caro12line

•6 years ago

7 Replies

Being proactive!

Hi! To all of my pmr friends, who encouraged me to get into my rheumy sooner than May 10th, I say thank you, thank you , thank you!! I called the doctor this...

Hi! To all of my pmr friends, who encouraged me to get into my rheumy sooner tha...

pollymarierose

•6 years ago

16 Replies

Follow up

A big thank you to all, I have made it to the US and followed all the advices, increasing my dose and packing enough and correctly the meds, good...

A big thank you to all, I have made it to the US and followed all the advices, i...

Zozoi

•6 years ago

6 Replies

scones

Hello I am Creamtea and am new to this forum. I was diagnosed with PMR last April and commenced on Prednisolone, the dose of which I have been reducing over...

Hello I am Creamtea and am new to this forum. I was diagnosed with PMR last A...

Creamtea

•6 years ago

12 Replies

Statins and general update!

Had a fasting blood test for high cholesterol (second - first test gave 7+ result) last week. Due to hand foot and mouth and terrible state of nails they added...

Had a fasting blood test for high cholesterol (second - first test gave 7+ resul...

Pongo13

•6 years ago

11 Replies

Shortage of Gastro resistant prednisolone 1mg

Hi All, I changed to gastro resistant pred last summer after reading your comments and advice on this wonderfully informative forum. The difference for me has...

Hi All, I changed to gastro resistant pred last summer after reading your commen...

joyce69

•6 years ago

54 Replies

Here I go again. !!

Have been off pred for3 months but have suspected things are not right for the past month. Eventually so not right that I could hardly get out of bed last...

Have been off pred for3 months but have suspected things are not right for the p...

polymy

•6 years ago

33 Replies

No Florence Nightingale

If you're at all interested... this post does becomes more relevant as you read on... Yesterday was my knee replacement surgery; it was originally scheduled...

If you're at all interested... this post does becomes more relevant as you read ...

Hidden

•6 years ago

91 Replies

Do we have any studies on who Long it takes for p m r to burn its self out??

Going in my 3 year !!!!

Mjhollywood1

•6 years ago

23 Replies

feeling so cold...thermo up...0n 7mg pred....is it addison's or 'just' old age??????????????

I don't know. The past few days, I am so cold in my bungalow. Thermostat on 30 today, sitting with a shawl over my thermal pjs, and still cold. Had a cup of...

I don't know. The past few days, I am so cold in my bungalow. Thermostat on 30 t...

karools16

•6 years ago

32 Replies

Tocilizumab and demyelination

I finally had the muscle biopsy yesterday. It was a much bigger deal than I expected, the Neurologist himself performed the procedure with at least 5 other...

I finally had the muscle biopsy yesterday. It was a much bigger deal than I expe...

Gaijin

•6 years ago

41 Replies

Alternatives to prednisolone?

Hi folks, So pleased to have found this forum! I was diagnosed a couple of weeks ago and have already discovered prednisolone side effects are more than this...

Hi folks, So pleased to have found this forum! I was diagnosed a couple of weeks...

PMRPanda

•6 years ago

23 Replies

The Medical and Emotional Sides of PMR / GCA: What is the Cause of my Recent Symptoms? Answers on a Postcard Please... ;-)

Greetings again to All of You PMR GCA Lot. In my best efforts to comply with the recent, New and Improved Guidelines from the Forum Administrators around the...

Greetings again to All of You PMR GCA Lot. In my best efforts to comply with the...

markbenjamin57

•6 years ago

60 Replies

The Stress Factor vs Hereditory

OH was diagnosed PMR+GCA June 2098; prior to that he'd had various joint limitations and pains which he attributed to post-traumatic OA from various motorbike...

OH was diagnosed PMR+GCA June 2098; prior to that he'd had various joint limitat...

Nuff1

•6 years ago

9 Replies

Trouble connecting

I am having trouble getting into this site. Anyone else??

alvertta

•6 years ago

9 Replies

Colonoscopy advice please

I am due for a Colonoscopy on Wednesday. On last Saturday I had an MRI scan on my spine and pelvis which caused me dreadful stress,I am a wimp,since then I...

I am due for a Colonoscopy on Wednesday. On last Saturday I had an MRI scan on m...

lizzie47

•6 years ago

48 Replies

Gratitude

When I was first diagnosed in the summer of 2018, I felt very much alone, though my wife and my physician in Northern Virginia were very caring and supportive....

When I was first diagnosed in the summer of 2018, I felt very much alone, though...

PeaceableDragon

•6 years ago

16 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for February 2019

Let's talk about our eyes.

Does anyone have itchy skin

After 11 months I've seen a Rheumatologist!

Suffering in Silence

GCA Update

How to explain that the DF is back...

A Chilly Park Walk Worth Every Moment.

Recurrent symptoms of UTIs or UTIs that don't produce positive urine cultures

PMR /GCA ? On going headache , droopy eyes

PMR can you blockout the pain

Exercise...it’s supposed to help 😳

I’m going too fast again!

GCA tapering and differing rheumie views. I think I now have the one who understands.

PMR diagnosis help

Being proactive!

Follow up

scones

Statins and general update!

Shortage of Gastro resistant prednisolone 1mg

Here I go again. !!

No Florence Nightingale

Do we have any studies on who Long it takes for p m r to burn its self out??

feeling so cold...thermo up...0n 7mg pred....is it addison's or 'just' old age??????????????

Tocilizumab and demyelination

Alternatives to prednisolone?

The Medical and Emotional Sides of PMR / GCA: What is the Cause of my Recent Symptoms? Answers on a Postcard Please... ;-)

The Stress Factor vs Hereditory

Trouble connecting

Colonoscopy advice please

Gratitude

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive