Having had ongoing issues with painful swollen knees I have added leflunomide to my prednisolone and hydroxychloroquine. My rheumy still believes I have PMR (diagnosed March 2016) but believes something else is at play with my knees as she said she hasn’t seen it present in large joints in the way mine is! Knees were very debilitating and were having the greatest impact on daily life since original pre diagnosis pain. I realised I had to try something else hence the new cocktail. Steroid injections and fluid drained from both knees two weeks ago and leflunomide started one week ago. So far so good.
Having just had dinner with a friend with Addison’s disease we compared notes. Why are we pressured to reduce our steroids and strongly encouraged to take steroid sparers when others are on steroids for life? She takes 22mg of cortisol (or cortisone, are they the same??) daily and will do for life.
I have been mulling over my new drugs and have just started to think why don’t I just take a higher dose of prednisolone until my knees settle? In the beginning it was my shoulders which were crippling but not swollen and now they are completely normal. I’m just hoping my knees will be similar. Fingers and everything crossed!!
Any thoughts from others who are also on a cocktail of drugs? I’m currently tapering to 10mg.