Friendship

[morrison]

This message is for all on this site. Kate included. I have just read a message from unknown because I can't say. My heart goes out to her. But yet I do understand this PMR AND GCA WEBSITE should just cover this chronic disease. But sometimes friendship helps immensely with tears and laughter. It's not like going to your Consultant or Doctor. after coming away you thought to yourself Hey I forgot to ask that question. This is our sanctuary. And I know others have gone to another sanctuary (me included but was already there) but I really don't know what I would do without all of you on here. You have been my lifeline through the last 4 years. Yes to some it still goes on. I am now on 6mgs. And struggling to get lower. I have many friends on here and admire you all within your struggle. Because we have an unusual illness which I think needs to be recognised completely. Much love and to you Daisychain too😊😊x

[Yellowbluebell]

We havnt seen that person online for a few days and I am angry that shes been put in this position when she really needs our support but also our funny moment to cheer her up. Not funny all the time but just occasionally.

[morrison in reply to Yellowbluebell]

Who are talking about? Just have to ask?

[morrison in reply to Yellowbluebell]

Sent you a pm.

[patriciawhite in reply to Yellowbluebell]

Did I miss something ?

[Yellowbluebell in reply to patriciawhite]

Just someone Morrison is worried about. I randomly guessed and got it wrong but never got a.real.reason why the person is worried. Will.pm you

[SheffieldJane]

I am sorry that you are struggling to get below 6 mgs. I am at the same sort of stage and really quite symptomatic. I am seeing an Endocrinologist on Monday to get his input about my steroid dose. I have kind of lost confidence in tapering following my much respected Rheumatologist’s input and the possibility of Psoriatic Arthritis contributing to my symptoms. The forum and my friends on it have been a godsend. The psychological effects of this can be profound. The empathy we receive from other sufferers is amazing. There is always PM’s if you feel the need to go on a bit about how the disease impacts. I am not surprised that people are appealing to you there. Xx

[Blearyeyed in reply to SheffieldJane]

Can I PM you about your thyroid experience , Bee x

[SheffieldJane in reply to Blearyeyed]

Yes of course. Don’t expect science though, I leave that to PMRPro. X

[Boozsa]

If it was me, I am ok. My doc called and my RX should be at the pharmacy by 8 am. I am sorry for the freak-out. It's been a rough week and in combo with 50 mg of Prednisone, and too much stress, I had a melt down. If it wasn't me, then I hope anyone else struggling feels better soon. I am having trouble sleeping but other than that I'm feeling better. Maybe I needed to let it all out somewhere

[morrison in reply to Boozsa]

No it wasn't you my dear Boozsa. Love the name. If you can't let it out here where can you? Glad you're feeling a bit better. Xx

[Boozsa]

Ok. I’m really embarrassed and think people are mad at me. Sorry for everything. I don’t think I belong on this site anymore. I’m not diagnosed and who knows what will happen. Thank you to everyone, it really is a great resource. I hope you all continue on well in your journey. Maybe I can follow up, down the road when things are better and different.

Thanks about the name, my boyfriend called me that one day and it made me laugh

[morrison in reply to Boozsa]

What a shame you are leaving so soon. Do you or hAve the symptoms of PMR or GCA? Or perhaps you haven't yet been diagnosed?

[1964-karina in reply to Boozsa]

Don’t leave, just stay and watch the posts for a while and get your head round it 🍷

[Grants148]

Thanks Morrison,much love to you too,you have also contributed and helped us here,l hope that you are feeling OK . I am also missing our Daisychain,l hope that she is alright,she has been through some tough times lately and yet she still found time to cheer us up ,Bless her xx.

[Boozsa]

I have had symptoms of both PMR/ GCA for a long time now. I am being treated for the second time on a high dose but doctors continue to argue over a diagnosis for me. It was comforting to hear other people’s similar experiences and to be able to talk about everything that was happening with me. No one else has ever understood like here. Best wishes

[morrison in reply to Boozsa]

That's why you need to stay with us. Just read. You don't need to reply unless you feel the need. Much love to you my dear. Xx

[SheffieldJane in reply to Boozsa]

Any port in a storm! Stay, you are welcome, even if it’s just until you are told something definitive. We still share similar ups and downs.

[Hollyseden in reply to Boozsa]

Precisely why you should stay here Boozsa. Nobody else understands unless they have been there. Doctors and Rheumies think they know but pffft 🙄 There is so much good advice and support here so stick around while you get sorted out.

[Grants148]

Please don’t go Booza,l am sorry you have been feeling so unwell,l hope that the doctors give you some answers soon,please let us know how you get on ,much love,Grants xx.