Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

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All posts for September 2018

PMR, low pressure closed angle glaucoma and prednisolone

Hi regarding questions re level of Pred taken for PMR and the effect on eye pressures. I have low pressure (12) closed angle glaucoma and was seen at Worcs by...

Hi regarding questions re level of Pred taken for PMR and the effect on eye pres...

Wraysbury

•6 years ago

15 Replies

Statins and PMR/GCA

Has anyone heard or read about a connection between statins may be being a trigger for PMR or GCA? I have read something about this, but not sure of the...

Has anyone heard or read about a connection between statins may be being a trigg...

Stella3

•6 years ago

27 Replies

Wear and Tear

I saw my rheumy yesterday and he said my pains might be due to wear and tear and not polymyalga . I have had it for 3 years now and down to 4m )g of pred and...

I saw my rheumy yesterday and he said my pains might be due to wear and tear and...

rosie41

•6 years ago

21 Replies

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Lower back muscle pain

Why does my rib hurt? I have just had a second episode which has now affected my abdomen organs. It seems to move about and has affected my muscles higher...

Why does my rib hurt? I have just had a second episode which has now affected m...

Berylholley

•6 years ago

55 Replies

Reporting back after hospital clinic and taper regime

Having limited response to nearly four weeks of 20mg Prednisone, I was referred to the hospital's medical assessment and planning unit this week Tuesday by my...

Having limited response to nearly four weeks of 20mg Prednisone, I was referred ...

KinnearD

•6 years ago

11 Replies

GOK

I wondered whether Gok Wan had anything to do with this, obviously not! I'm quite well up on text short forms as I have two teenage granddaughters and a niece...

I wondered whether Gok Wan had anything to do with this, obviously not! I'm qui...

PMRSUE

•6 years ago

25 Replies

Now I know why I am feeling so Ill.

I have just completed a month at 10 mgs of Pred.....or so I thought.......I realised this morning that for the past 10 days I have been taking 2 mgs per day...

I have just completed a month at 10 mgs of Pred.....or so I thought.......I real...

PMRSUE

•6 years ago

54 Replies

Tapering after relapse

Hello everyone - so I called the rheumatologist again today because the 10 mg he put me on for my flare up was not working. He said to start 15 mg of...

Hello everyone - so I called the rheumatologist again today because the 10 mg ...

Sunset123

•6 years ago

25 Replies

“Burning” skin?

I’ve suddenly got a patch of skin on the left side of my forehead start feeling like it’s burning. Has anyone had this sensation? Can GCA/PMR cause this?...

I’ve suddenly got a patch of skin on the left side of my forehead start feel...

Mstiles

•6 years ago

10 Replies

My son is recovering really well.

Short version for those who do not know. Deep cleaning at dentist caused major blood infection and internal abscess on lower leg. He also had damaged aortic...

Short version for those who do not know. Deep cleaning at dentist caused major ...

Hidden

•6 years ago

29 Replies

Saw the Doctor today

Just got back. He said everything sounds good and to just keep doing what you all tell me to do. He didn't even take another SED rate because I was feeling...

Just got back. He said everything sounds good and to just keep doing what you al...

yogabonnie

•6 years ago

19 Replies

tired tongue and jaw

The headaches are about gone but now I'm more aware of my jaw and tongue being tired when chewing or not. Anyone else experiences this?

The headaches are about gone but now I'm more aware of my jaw and tongue being t...

gtate1914

•6 years ago

14 Replies

Pneumonia jab

I had my flu jab yesterday and the practice nurse asked if I'd like to have the pneumonia jab as well. She said that, since my immune system is compromised,...

I had my flu jab yesterday and the practice nurse asked if I'd like to have the ...

Marijo1951

•6 years ago

35 Replies

World of Confusion

I am confused!I have had PMR and GCA for 10 years (9 years of GCA). I mainly suffer from headaches, feeling unwell and dizziness. So I get confused when I get...

I am confused!I have had PMR and GCA for 10 years (9 years of GCA). I mainly suf...

Stkeyna

•6 years ago

10 Replies

Appointment with Consultant Rheumatologist

I have GCA. Twenty months ago I had a relapse. I saw my Consultant in January this year when I was given another appointment for next January 2019. Imagine my...

I have GCA. Twenty months ago I had a relapse. I saw my Consultant in January th...

prunus

•6 years ago

16 Replies

Anti-Malaria tablets- OK?

I am thinking of going to Kenya on safari for my big birthday next summer. does anyone know if the anti-malaria tablets are contra-indicated with Pred.? Also...

I am thinking of going to Kenya on safari for my big birthday next summer. does ...

suzy1959

•6 years ago

11 Replies

PMR and macular oedema

Hi, I am type 2 diabetic as well as having PMR. I have retinopathy which has been stable since getting my type 2 into remission. Went to eye clinic on Monday...

Hi, I am type 2 diabetic as well as having PMR. I have retinopathy which has bee...

Koalajane

•6 years ago

3 Replies

Tapering fun

And I’m only trying to get to 8mg!! Lots of fun!

daworm

•6 years ago

2 Replies

How high should I go?

Started at 20 and told to up 5 of prednisone until pain is gone. 1st day of 30 and almost there. Is this normal? I would hate to have to go to 35. I hope...

Started at 20 and told to up 5 of prednisone until pain is gone. 1st day of 30 a...

1958hurts

•6 years ago

13 Replies

get ready for the weekend

party on all you wild PMR people

coda123

•6 years ago

3 Replies

Prednisolone and Flu Injection

Is it OK to have a flu jab while taking Pred?

Marotic

•6 years ago

10 Replies

First rheumatologist appointment today. I’d value opinions of experience please

Diagnosed PMR by GP 7.8.19 Symptoms - extreme fatigue, appetite loss, apathy, jaw claudication, upper arm muscle pain / fatigue sometimes, severe calf muscle...

Diagnosed PMR by GP 7.8.19 Symptoms - extreme fatigue, appetite loss, apathy, ja...

Bamber99

•6 years ago

18 Replies

Shingles vaccination

Hi, I know this has been the subject of previous posts, but, as it did not concern me at the time, I paid no attention to the replies! Anyway, yesterday I was...

Hi, I know this has been the subject of previous posts, but, as it did not conce...

Charlie1boy

•6 years ago

29 Replies

Flu shot, 2018

Hi All Just had my annual flu vaccination! 👏🏽💜 No negative effects, not even sore shoulder. Pharmacist did say that my 7 mg pred dose may reduce vaccine...

Hi All Just had my annual flu vaccination! 👏🏽💜 No negative effects, not even...

Purplecrow

•6 years ago

6 Replies

Could this be PMR or Steroid side effect ?

I have been on Pred for 4 years and am reducing from 7 to 6.75 mg again. I had a very strenuous and stressful day on Saturday, going to a funeral and driving...

I have been on Pred for 4 years and am reducing from 7 to 6.75 mg again. I had...

NursePeggy

•6 years ago

26 Replies

Getting my dosage back on track after having shingles

A month ago I was at 5 albeit a bit shaky. Feeling very stiff and unwell so increased by 5 for 3 days. Had a blood test with increased inflammation. Rhuemy...

A month ago I was at 5 albeit a bit shaky. Feeling very stiff and unwell so inc...

bunnymom

•6 years ago

13 Replies

What top 3 things are on your bucket list?

Mine are: 1. To visit England one more time. 2. To spend a month at a 5* Hotel on the coast somewhere. 3. To be able to enjoy food once more!! All of these...

Mine are: 1. To visit England one more time. 2. To spend a month at a 5* Hotel...

Constance13

•6 years ago

20 Replies

PMR and sweats

Hi I have been taking prednisolone for nearly a year now and have come down to 4mg. But for about six months I have been getting really bad sweats where I am...

Hi I have been taking prednisolone for nearly a year now and have come down to ...

warfarin1

•6 years ago

5 Replies

Do I give up taking lutein?

I have been taking lutein capsules for about 10 years on the advice from my optician (my mother had macular degeneration). I read on here a couple of days...

I have been taking lutein capsules for about 10 years on the advice from my opti...

Suet3942

•6 years ago

3 Replies

Sleepy

All I seem to do is sleep and sleep, I feel like sleeping beauty, will I open my eyes soon and find Prince Charming there Did she have PMR too! No too...

All I seem to do is sleep and sleep, I feel like sleeping beauty, will I open my...

MaryA_

•6 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2018

PMR, low pressure closed angle glaucoma and prednisolone

Statins and PMR/GCA

Wear and Tear

Lower back muscle pain

Reporting back after hospital clinic and taper regime

GOK

Now I know why I am feeling so Ill.

Tapering after relapse

“Burning” skin?

My son is recovering really well.

Saw the Doctor today

tired tongue and jaw

Pneumonia jab

World of Confusion

Appointment with Consultant Rheumatologist

Anti-Malaria tablets- OK?

PMR and macular oedema

Tapering fun

How high should I go?

get ready for the weekend

Prednisolone and Flu Injection

First rheumatologist appointment today. I’d value opinions of experience please

Shingles vaccination

Flu shot, 2018

Could this be PMR or Steroid side effect ?

Getting my dosage back on track after having shingles

What top 3 things are on your bucket list?

PMR and sweats

Do I give up taking lutein?

Sleepy

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