I have GCA. Twenty months ago I had a relapse. I saw my Consultant in January this year when I was given another appointment for next January 2019. Imagine my amazement when I received a letter last Friday putting this back to August 2019. I feel this is not on. Any suggestions?
Appointment with Consultant Rheumatologist - PMRGCAuk
Hi Prunus, sorry to hear about your relapse. Is your doctor monitoring you for GCA?
After being released from hospital in Jan 2017 diagnosed with GCA I have only ever had one proper appointment with Rheumatology. I did ring the helpline a while back when a relapse occurred but was told by the nurse that they didn't want to see me.
I am managing very well with just my doctor, we work as a team. When I asked him if I should be seeing the consultant after about a year he said that they were busy. So I let it drop.
If it's urgent then perhaps your doctor can make an urgent referral for you.
I also had GCA, now in remission, and only saw Rheumy on one occasion, and that was about 6 months after diagnosis (by Ophthalmologist in A&E). I was referred back to GP after he’d “looked at” the plan GP and I agreed!
Must admit the Ophthamologist was more helpful than the Rheumy ever was. If you have a good relationship with your GP and you feel he is capable of managing your GCA, then stick with that!
I know Rheumatology Dept is overload, but GCA is supposed to treated as a serious illness - although you wonder at times!
Six years ago after 9 days in hospital when noone knew what was the matter with me including having gall stones suggested, and having a CRP of 452, they finally decided on
GCA and gave me predisolone. The Consultant came to see me and she was fine. This time, with my relapse it has been anything but fine. Chris Young has kept me going.