Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for September 2018

GCA and symptoms

Hi since I was diagnosed with PMR , my main fear is the dreaded GCA and as a migraine sufferer would I recognise the symptoms? What would I do if I suspected...

Hi since I was diagnosed with PMR , my main fear is the dreaded GCA and as a mig...

kate1978

•6 years ago

14 Replies

Donations

Hi Sheffield Jane just to let you know I gave my £10 donation with PayPal this evening

Hi Sheffield Jane just to let you know I gave my £10 donation with PayPal this e...

kate1978

•6 years ago

15 Replies

For those of us in the United States - how well does your state provide services?

Rheumatology Report Card for each state:...

Insight329

•6 years ago

18 Replies

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Sweating and sore throat / croaky voice.

To the wise ones and those with more experience: 1) I've had a sore throat and laryngitis on and off during the last 21 months of treatment. My voice suddenly...

To the wise ones and those with more experience: 1) I've had a sore throat and ...

Slosh

•6 years ago

13 Replies

“Man plans, and God laughs”

Those that can't do... RANT! Warning: The attached blog post contains some strong language and the subject matter may be considered (by some) to be socially...

Those that can't do... RANT! Warning: The attached blog post contains some str...

Hidden

•6 years ago

90 Replies

So many symptoms....

It’s hard to know what symptoms are PMR, side effects of medication, or something completely different. Anyone else suffer with any of the following: B12...

It’s hard to know what symptoms are PMR, side effects of medication, or somethin...

Paula-kent

•6 years ago

19 Replies

Squidgy sound in right ear!!

For the last week or so I have noticed a sort of squidgy, squeaky sound in my right ear when I chew. Do you think this is something I should be concerned...

For the last week or so I have noticed a sort of squidgy, squeaky sound in my r...

Omanain

•6 years ago

13 Replies

Wish Me Luck! Update #5

(Following on from my previous posts: Wish Me Luck! and Wish Me Luck! Updates #1 to #4) I’ve been following the Autoimmune Protocol (AIP) lifestyle, including...

(Following on from my previous posts: Wish Me Luck! and Wish Me Luck! Updates #1...

xdbx

•6 years ago

34 Replies

Results are in!!

Well I had my fingers crossed for my results and to be fair all I wanted was a reason for feeling so crap but now in tears because the tests came back positive...

Well I had my fingers crossed for my results and to be fair all I wanted was a r...

Yellowbluebell

•6 years ago

19 Replies

Stuck on two and a half mg.

Four years in from diagnosis and in the last year I have gone down, using the slow reduction method, to 21/2 mg from 5mg, half a mg at a time. On Sunday the...

Four years in from diagnosis and in the last year I have gone down, using the sl...

Deemar

•6 years ago

13 Replies

Recommend Rheumatologist Surrey/London

I am thinking of getting a second opinion and wondered if anyone can suggest a good NHS Rheumatologist in Surrey or London ? Thanks for all your help

I am thinking of getting a second opinion and wondered if anyone can suggest a g...

DebbieP100

•6 years ago

13 Replies

Symptoms with tapering

As I understand.... all symptoms should be absent before tapering. But also, as I understand, some people are never totally symptom free, although those...

As I understand.... all symptoms should be absent before tapering. But also, as...

gtate1914

•6 years ago

9 Replies

At Twenty Five and Still Alive!

Twenty five! I never thought I'd make it! It has taken me 315 days (which is equivalent to 10 months, or 45 weeks, or 7,560 hours) to get from 80mg of...

Twenty five! I never thought I'd make it! It has taken me 315 days (which is e...

Hidden

•6 years ago

76 Replies

Ginger

Hi all I have had PMR for just over 2 years. I have discovered that taking ginger helps my symptoms. It worked wonderfully at the beginning, but then I think...

Hi all I have had PMR for just over 2 years. I have discovered that taking ginge...

Perdicle

•6 years ago

19 Replies

Sore gums? A side effect of Pred?

Good morning folks, 6 weeks down the road on PRed (began 60 mg now down to 40 mg) and getting used to the roller coaster ride of it all with GCA. I am now...

Good morning folks, 6 weeks down the road on PRed (began 60 mg now down to 40 mg...

Fieldofdreams

•6 years ago

7 Replies

Still going

on 10mg methotrexate.Goes up next week. Got mmr scan and infra scan too. Possible heart check. Ache badly still and am extremely tired

on 10mg methotrexate.Goes up next week. Got mmr scan and infra scan too. Possibl...

animalactivist

•6 years ago

4 Replies

experience with hydrogen water?

Does anyone have any experience with hydrogen water? An acquaintance mentioned that it works on inflammation and this is what I found on the internet....

Does anyone have any experience with hydrogen water? An acquaintance mentioned t...

kulina

•6 years ago

28 Replies

High Horse!

Doctor wants ears syringed as my hearing is getting worse, this is to rule out any problems with having GCA. If it's just wax, he won't need to make a...

Doctor wants ears syringed as my hearing is getting worse, this is to rule out a...

Primarose

•6 years ago

32 Replies

Solent meet reminder Monday 24th September

Hope to see some of you at the Solent Meet at the Harvester at Port Solent at 11am on Monday 24th Septmber. Photo is my lovely granddaughters ready for the...

Hope to see some of you at the Solent Meet at the Harvester at Port Solent at 11...

Valnvaughan

•6 years ago

4 Replies

Parker at work

Parker is earning money to pay for M’Lady’s holidays.

Estellemac

•6 years ago

7 Replies

Etoricoxib Medication

Was just wondering if anyone else is being treated with Etoricoxib 90 mg in the evening for PMR? My rheumatologist got me off steroids after 3 months and put...

Was just wondering if anyone else is being treated with Etoricoxib 90 mg in the ...

DebbieP100

•6 years ago

9 Replies

Pred versus diet

Whenever I mention to anyone that I have PMR and am taking Prednisolone, they ask, can't you control it with diet, but I wouldn't know where to start. Is this...

Whenever I mention to anyone that I have PMR and am taking Prednisolone, they as...

Jeannie29

•6 years ago

103 Replies

Skipped dose of prednisone, but not sure as can't remember

Help please, I couldn't remember all day whether or not I took my 13mg of prednisone this morning. I felt fine so figured I must have taken it. Now is almost...

Help please, I couldn't remember all day whether or not I took my 13mg of predni...

Sunshinemaggie9

•6 years ago

7 Replies

PMR question

Can you get severe headaches, neck and shoulder pain with PMR and not have GCA? Or are those symptoms specific to GCA only?

Can you get severe headaches, neck and shoulder pain with PMR and not have GCA? ...

People1

•6 years ago

22 Replies

Awaiting results

I found your fantastic site after my gp decided to test for prm even though I am only 55!! Apparently it’s rare this young but not rare enough to ignore. The...

I found your fantastic site after my gp decided to test for prm even though I am...

Yellowbluebell

•6 years ago

16 Replies

Bowen therapy

Has anyone tried Bowen therapy for sciatica and did it help?

CT-5012

•6 years ago

12 Replies

Tapering too fast with GCA ?

Hi, I was diagnosed with GCA 23rd July this year, however I think I'd had it for quite some time as I had symptoms which I was attributing to other causes. I...

Hi, I was diagnosed with GCA 23rd July this year, however I think I'd had it for...

Dontwannabesick

•6 years ago

19 Replies

optimum dose

I'm still trying to find my optimum dose. This is day 10 at 50mg. The symptoms of brief, light headaches, sensitive spot on head, seem to be lessening. My...

I'm still trying to find my optimum dose. This is day 10 at 50mg. The symptoms ...

gtate1914

•6 years ago

9 Replies

Pain and fatigue at 2.5mg

I was diagnosed with PMR in December 2015 and commenced on 20mg of Prednisone. It has been a long slog to reduce to 3 mg to feel reasonably comfortable. I have...

I was diagnosed with PMR in December 2015 and commenced on 20mg of Prednisone. I...

NZShez

•6 years ago

13 Replies

Temporal Arteries

How can you tell if it's GCA? or Vasculitis?

Berylholley

•6 years ago

31 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for September 2018

GCA and symptoms

Donations

For those of us in the United States - how well does your state provide services?

Sweating and sore throat / croaky voice.

“Man plans, and God laughs”

So many symptoms....

Squidgy sound in right ear!!

Wish Me Luck! Update #5

Results are in!!

Stuck on two and a half mg.

Recommend Rheumatologist Surrey/London

Symptoms with tapering

At Twenty Five and Still Alive!

Ginger

Sore gums? A side effect of Pred?

Still going

experience with hydrogen water?

High Horse!

Solent meet reminder Monday 24th September

Parker at work

Etoricoxib Medication

Pred versus diet

Skipped dose of prednisone, but not sure as can't remember

PMR question

Awaiting results

Bowen therapy

Tapering too fast with GCA ?

optimum dose

Pain and fatigue at 2.5mg

Temporal Arteries

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