Hi everyone,
Had my monthly appointment with my rheumatologist yesterday. She said I absolutely need a flu shot and said I may or may not feel a bit flu-y. I hope not because all week I felt like I was on the edge of a flair. The weather being so crappy all week didn’t help. I dropped 1/2 mg last week and I really felt it this time. For those of you who don’t know I take Rayos at night and when I’m on a half dose I also take prednisone in the morning because Rayos does not come in half doses. I’m currently at 5 mg. Good news though, I had my Actemra shot yesterday and feel great this morning. Dr advised me not to taper this week due to how I felt this past week and having the flu shot yesterday. My current taper schedule is half a milligram per week. So if I am feeling well in 2 weeks I will start my taper again. If all goes to plan my doctor expects that I should be off steroids by Christmas and off Actemra by April 2018. The puffiness in my fingers has gone down, my range of motion in my arms has improved and I lost some weight. She ordered a DEXA scan and did a full blood panel which I should have the results in a couple weeks. My dr visits now will be extended to ever 2 months instead of 1 month. I finally feel I’m on the road to recovery!
This all sounds very positive Marie. How long have you had the disease?
I felt a bit rough after my flu shot, after urging everyone to get theirs! OK now though.
Was diagnosed and started on steroids Dec 2016, But I believe I had it a year prior undiagnosed.
Yes I dread to think how long I had it prior to diagnosis. I thought it was depression.