Saw new consultant on thursday, turns out this was a routine appt not the urgent one A and E were supposed to make after treating me for sepsis, this is the second urgent appt this hospital has "lost". I explained I needed to reduce pred because of the cararacts. So she asked me some vague symptom questions and homed in shoulders. Apparently my scalp is tender in the wrong place for GCA and my shoulders hurt in the wrong way for PMR SO I dont have either. She sent me for x-ray of shoulder and neck in spite of me saying gp had done same at easter. This morning i get appt for ultrasound of shoulders in a months time. On help for reducing pred steroid sparers only possible if markers are raised, do i have to make myself ill by reducing pred massively to convince her?
I told her I had consulted your very nice expert consultant and he said he thought it couldn't be anything other than GCA PMR, so she demanded to see a letter from him which i didn't have of course since most private consultants don't work for free and it hadn't occured to me that i would have to argue my case as if in court!
So it back to nice private rheumatologist but we can't afford expensive drugs.
Anyone know how to get GP to refer one to a different NHS Consultant?