Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,028 posts

All posts for October 2017

Pred sucks

Hope I get accustomed to these side effects of pred soon, 20mg, often times I think of quitting pred as fast as possible and going with ibuprofen... if I knew...

Hope I get accustomed to these side effects of pred soon, 20mg, often times I th...

daworm

•7 years ago

14 Replies

Well well confused again AND what's a PM & R ?

After you last rheumy appt i was fearful to return to this other for a second time. This one said " I don't believe it's PMR, if it was you'd be better by now...

After you last rheumy appt i was fearful to return to this other for a second ti...

klairv0yant

•7 years ago

16 Replies

Update

Saw GP this morning , had bloods taken and he immediately upped my pred to 20 daily for 1 week to then reduce to 15 , he will ring me with blood results and...

Saw GP this morning , had bloods taken and he immediately upped my pred to 20 da...

Rosbud

•7 years ago

6 Replies

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I have made it to Club Zero

Exactly 30 months ago today, I was diagnosed with GCA and started taking steroids. Yesterday I took what I hope was my last steroid. I have learned a great...

Exactly 30 months ago today, I was diagnosed with GCA and started taking steroid...

allykat

•7 years ago

27 Replies

Do not have GCA

My new rheumy now owes me a beer lol. I told him this morning I did not have it and bet him beer for me if I was right and wine or whatever for him if I was...

My new rheumy now owes me a beer lol. I told him this morning I did not have it ...

Rowboat

•7 years ago

2 Replies

my weekend experience

You were very helpful last week when I wrote about the effects of reducing from 25mg to 20mg. I decided to go back to 25mg which led to a big reduction in...

You were very helpful last week when I wrote about the effects of reducing from ...

Marijo1951

•7 years ago

28 Replies

Friend has Shingles!

My very good friend has just found out she has Shingles, and is getting all the relevant anti viral treatment. My query is do I avoid contact with her until...

My very good friend has just found out she has Shingles, and is getting all the ...

Gillgetmeoffthemeds

•7 years ago

12 Replies

Advice from the awesome "aunties"

Doctor has asked me to reduce from 15 to 12.5 Pred, get blood tests done in 3 weeks and see her again in 4 weeks. Having read quite a lot here about tapering...

Doctor has asked me to reduce from 15 to 12.5 Pred, get blood tests done in 3 we...

Hollyseden

•7 years ago

10 Replies

Getting over IT!

I'm getting much more information from my fellow contributors than I am from my doctors! I got down to 2.5mg very quickly compared to many of you and I believe...

I'm getting much more information from my fellow contributors than I am from my ...

Johnnox

•7 years ago

7 Replies

Cardiff Meeting

The next meeting of the Cardiff group is on Wednesday, 25th October at 11am in the Central Library. We have a specialist rheumatology nurse coming to speak to...

The next meeting of the Cardiff group is on Wednesday, 25th October at 11am in t...

slewis

•7 years ago

4 Replies

An Update

Again ... (3rd post of the day) I spoke too soon when I posted "New Doctor Tomorrow" earlier today. A couple hours later and my shoulder and neck were stiff...

Again ... (3rd post of the day) I spoke too soon when I posted "New Doctor Tomor...

Jo_Lyn

•7 years ago

10 Replies

Always in pain!

Hi, I'm new here so please bear with me. I've been diagnosed with polymyalgia at the beginning of July 2017. My GP sent me to local rheum at hospital as she...

Hi, I'm new here so please bear with me. I've been diagnosed with polymyalgia at...

Footfairy-1

•7 years ago

29 Replies

More shingles.

Couldn't understand why I was so lacklustre and in so much pain around my back and under my armpits. Well today there they were! Blistery spots all around...

Couldn't understand why I was so lacklustre and in so much pain around my back a...

polymy

•7 years ago

18 Replies

Dental sedation update

Thanks for all your replies. Took 20mg this am, then back to 10 tomorrow. Just two more appts with sedation then it will all be over.

Thanks for all your replies. Took 20mg this am, then back to 10 tomorrow. Just t...

Mar-jay

•7 years ago

2 Replies

Cruise update

Hi everyone, You may remember that I posted a few weeks ago whilst having trouble reducing from 20mg Pred. I followed instructions and reduced to 15mg but...

Hi everyone, You may remember that I posted a few weeks ago whilst having troub...

PatB1948

•7 years ago

7 Replies

Does being on steroids entitle us to a NHS flu jab or not?

The NHS website states the following as an entitlement to a free flu jab : "a weakened immune system as the result of conditions such as HIV and AIDS, or...

The NHS website states the following as an entitlement to a free flu jab : "a we...

AliDeJ

•7 years ago

15 Replies

Does anyone else experience this?

I have just tapered down to 3.5 mg of pred but I still have a lot of pain when I try to tuck my legs under me when getting out of the bath. Some days, getting...

I have just tapered down to 3.5 mg of pred but I still have a lot of pain when I...

43tripandskip

•7 years ago

9 Replies

Major surgery & increasing Pred

I haven't posted for a while as I have been successfully reducing . I was down to 2 mg daily when I was stunned by a diagnosis of a tumour on the colon. I am...

I haven't posted for a while as I have been successfully reducing . I was down t...

magmapearl3

•7 years ago

5 Replies

Odd turnaround of energy symptoms.

I am tapering to 6 mgs from 7 (DSNS). Of late I have had swooning exhaustion during the day and difficulty maintaining body heat. Now all of a sudden I cannot...

I am tapering to 6 mgs from 7 (DSNS). Of late I have had swooning exhaustion dur...

SheffieldJane

•7 years ago

16 Replies

Shingles

Us on pred are we ok with the Vaccine. 🤔

Rocketronzy

•7 years ago

13 Replies

Save children

Is this safe for taking influenza vaccine with steroid for 2 year 9 month baby???Please I need answer urgently. Any doctor here????please. .....

Is this safe for taking influenza vaccine with steroid for 2 year 9 month baby??...

Aaraf1515

•7 years ago

3 Replies

Fiftyfive years young and 8 weeks into pmr

Fiftyfive years young and eight weeks into the world of pmr. Dealing with it and not planning to let it take my joy of life away. Life is short and pmr isn't...

Fiftyfive years young and eight weeks into the world of pmr. Dealing with it and...

Inger62

•7 years ago

13 Replies

Stop me doing silly things please

Hallo dearest members of the pmrgca community today I have a question about something that seems a luxury problem. Had my pmr diagnose one Year ago and now on...

Hallo dearest members of the pmrgca community today I have a question about some...

Zofitmogelijk

•7 years ago

17 Replies

rest and exercise w PMR

A few people have mentioned how it's important when we have PMR to rest the body. Prior to PMR i was pretty active, and PMR limited activity so very much. Now...

A few people have mentioned how it's important when we have PMR to rest the body...

Linlin64

•7 years ago

10 Replies

Pred reduction

Hi all , I was told by my GP to reduce my pred from 15-12.5 , 10 days in and I've woken up felling right back to square one , aching , shaking and so tired ,...

Hi all , I was told by my GP to reduce my pred from 15-12.5 , 10 days in and I'v...

Rosbud

•7 years ago

5 Replies

Split dose

Hello, I'm back again with the same problem. I had been splitting my dose - 8.5 in AM and 5 at 6PM. After reading that full dose in morning is preferred I...

Hello, I'm back again with the same problem. I had been splitting my dose - 8.5...

barbthy

•7 years ago

4 Replies

Shingles Vaccine

When I went for my flu jab on Saturday my GP, who is knowledgeable about PMR, said that I was eligible for the Shingles jab. When I asked about having this...

When I went for my flu jab on Saturday my GP, who is knowledgeable about PMR, sa...

Vanner460

•7 years ago

5 Replies

Pred double up for 1day?

Advice needed, I am having dental sedation tomorrow they have told me to double the dose of pred. I've just gone back up to 10mg from 9. It's only for one day...

Advice needed, I am having dental sedation tomorrow they have told me to double ...

Mar-jay

•7 years ago

8 Replies

GCA aorta and arm claidication

Hello! Has anyone with GCA had a problem with the aorta and/or arm claidication, and if so what follow up Did it require? Thanks

Hello! Has anyone with GCA had a problem with the aorta and/or arm claidication,...

Magavi

•7 years ago

10 Replies

HRT AND PMR

Morning. I was wondering if any ladies out there had experienced any issues when they started taking HRT with poly rheumatica? Since the menopause and taking...

Morning. I was wondering if any ladies out there had experienced any issues when...

Hidden

•7 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2017

Pred sucks

Well well confused again AND what's a PM & R ?

Update

I have made it to Club Zero

Do not have GCA

my weekend experience

Friend has Shingles!

Advice from the awesome "aunties"

Getting over IT!

Cardiff Meeting

An Update

Always in pain!

More shingles.

Dental sedation update

Cruise update

Does being on steroids entitle us to a NHS flu jab or not?

Does anyone else experience this?

Major surgery & increasing Pred

Odd turnaround of energy symptoms.

Shingles

Save children

Fiftyfive years young and 8 weeks into pmr

Stop me doing silly things please

rest and exercise w PMR

Pred reduction

Split dose

Shingles Vaccine

Pred double up for 1day?

GCA aorta and arm claidication

HRT AND PMR

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