Hello fellow sufferers
I'm feeling pretty frustrated this afternoon, having had to cancel all my plans for today after feeling more pain than usual and worrying if this is my first experience of a flare. I've been looking back at old posts for advice and information which is always helpful but still feeling very alone and worried, so a few supportive message would be very welcome.
I was diagnosed with PMR in January and have always been aware of pain in my face, jaw and temples without evidence of GCA. It's worse today and accompanied by breathlessness and extreme hot flushes and a general feeling of malaise.
I still have a urine infection despite a week of co-amoxiclav (for e-coli resistance) which I finished two weeks ago and it hasn't helped at all that my GP wanted me to come down to 6mg from 7.5 in a matter of days, for no real reason. I thought I was succeeding by taking the whole dose of enteric coated at bedtime and have felt quite energetic the last few days, despite being hugely stressed by a flea infestation in my dogs possibly resulting from having my carpets professionally cleaned (it seems to be a big problem this year here in Wales).
So I guess this is an inevitable flare, and I should up the dose, but how much and for how long please, and should I be more alarmed by the facial pain?
I'd be grateful for any advice and thoughts on the matter, Thank you in anticipation,