Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,319 members • 38,060 posts

All posts for August 2017

My first post to join fellow travellers along this tricky GCA journey. The encouragement, support and mutual respect is truly uplifting.

Two and a half years into my GCA experience I've come to the conclusion that my kindly Consultant and GP who share my care, know less about steroid reduction...

Two and a half years into my GCA experience I've come to the conclusion that my ...

dartmoorlass

•7 years ago

8 Replies

Bowen Therapy

Had my first treatment of Bowen Therapy last week and not sure what to make of it. Didn't notice any difference in pain or stiffness. Therapist admitted she...

Had my first treatment of Bowen Therapy last week and not sure what to make of i...

peanuckle

•7 years ago

21 Replies

Parker in PPE Gardening

Putting me 10yr old Monkey Puzzle Tree in the ground cos I am sulking over cruel DR's not fixing me and gaining a pound without the joy of cake. Wanted this...

Putting me 10yr old Monkey Puzzle Tree in the ground cos I am sulking over cruel...

Estellemac

•7 years ago

10 Replies

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Is this the same old same old?

Have had GCA and poly reumalgia for6 years with ups and downs increases and decreases of Pred! WEnt to visit my son in London on Sunday have been having a...

Have had GCA and poly reumalgia for6 years with ups and downs increases and decr...

Vpankhurst

•7 years ago

4 Replies

What is the itch.

Although I have brown hair and green eyes, I can definitely claim to be bossy although I describe it as always being right!!. I was born on a Friday and hate...

Although I have brown hair and green eyes, I can definitely claim to be bossy al...

Cobnut

•7 years ago

16 Replies

Gentle Reminder

About a month ago this was posted: https://healthunlocked.com/pmrgcauk/posts/135914752/research-part-ii Please take a look and take part if you live in the......

About a month ago this was posted: https://healthunlocked.com/pmrgcauk/posts/135...

jinasc

•7 years ago

3 Replies

Time To Reduce Again

Hello everyone: Today is my last day at 15mg. Like I said in my last post, I started reducing on August 10 after one year at 20mg, and will be going down 5mg...

Hello everyone: Today is my last day at 15mg. Like I said in my last post, I st...

Ligtocicar

•7 years ago

18 Replies

PMR -Dry Mouth-Sjogrens Syndrome

Hi All, Just when you think you are doing okay life throws you a curve ball! I was diagnosed with PMR about Feb. 2017, started on Pred 15mgs on 1 April, over...

Hi All, Just when you think you are doing okay life throws you a curve ball! I w...

hiandri

•7 years ago

26 Replies

Medication advice

Hello I am new to this site and was diagnosed with pmr in June 2017 at aged 61. Having started on 15 mg pregnisolone I am now down to 9 mg but having some...

Hello I am new to this site and was diagnosed with pmr in June 2017 at aged 61. ...

Mitziecat

•7 years ago

25 Replies

Snoring is this the final insult!

Well I write this post having been sent to the west wing! Aka the spare room! Not because of a row but because I have developed horrendous snoring! Oh how...

Well I write this post having been sent to the west wing! Aka the spare room! No...

JulieR2

•7 years ago

16 Replies

PMR now totally confused!!

Hi Haven't posted here for some time but would appreciate some advice. Was diagnosed with PMR in 2012. Have had flare ups at 6mgs on several occasions and have...

Hi Haven't posted here for some time but would appreciate some advice. Was diagn...

wendyanne49

•7 years ago

13 Replies

Advice needed please! Tia.

Hi, I'm new to this group so looking for any advice anyone may have! I've had RA for 30+ years and various other problems and in May this year was diagnosed...

Hi, I'm new to this group so looking for any advice anyone may have! I've had R...

MaggieK01

•7 years ago

7 Replies

Chronic Fatigue

Hi every one, hope you are as well as can be expected. I have been on 5mgs of preds now for two weeks and seem to be coping okay....except for the dreaded...

Hi every one, hope you are as well as can be expected. I have been on 5mgs of p...

camerashy

•7 years ago

34 Replies

Tapering Prednisone

I've been on this site now for about 1 week, and I've found a lot of interesting information. I assume that most people on this forum are UK residents. Are...

I've been on this site now for about 1 week, and I've found a lot of interesting...

RheaV

•7 years ago

15 Replies

HYPOTHYROIDISM and PMR

As I have too much time on my hands to think and add to my list of what else could be wrong with me I called the doctor to ask about my blood test results. I...

As I have too much time on my hands to think and add to my list of what else cou...

Estellemac

•7 years ago

21 Replies

Sciatica pt 3

Dr prescribed Diazepam and Codeine for the pain. Unfortunately I had a bad reaction to the Codeine, bad pain in upper stomach, sweating and nausea. We phoned...

Dr prescribed Diazepam and Codeine for the pain. Unfortunately I had a bad react...

Marcy47

•7 years ago

11 Replies

Not sure which tack to take now?

Hi all, I came onto this site a month or so ago, and found all your comments and knowledge very helpfull. My initial bloodwork and CRP was 122, and doctor...

Hi all, I came onto this site a month or so ago, and found all your comments and...

anicholson

•7 years ago

6 Replies

Connection between onset of PMR and travel to Central America

Hello new friends. I was diagnosed with PMR in July 2017 after a 4 week acute period. I have been traveling to Honduras to do water purification projects 1-4...

Hello new friends. I was diagnosed with PMR in July 2017 after a 4 week acute pe...

KaseyP

•7 years ago

38 Replies

Steroid Taper Web Application

Endorsed by PMRGCAuk, the steroid taper web application is a repository for medically-validated and patient-designed steroid taper plans that can be accessed...

Endorsed by PMRGCAuk, the steroid taper web application is a repository for medi...

Sandra_123

•7 years ago

3 Replies

Varicose Veins

Hi I wonder if anybody has undergone a radio wave operation of the Saphena magnal vein during PMR? I have to operate both legs at the end of next month and I...

Hi I wonder if anybody has undergone a radio wave operation of the Saphena magn...

Orchid47

•7 years ago

10 Replies

Sciatica

Update on Sciatica. Managed to get emergency appt with Dr (not mine) this morning, after 2 sleepless nights and crying with the pain on Sunday. Nice young man...

Update on Sciatica. Managed to get emergency appt with Dr (not mine) this mornin...

Marcy47

•7 years ago

11 Replies

dilema continues

well for those who have followed my story, having what was diagnosed by gp as pmr, then rheumy not deciding was pmr til few months following that, i reduced to...

well for those who have followed my story, having what was diagnosed by gp as pm...

arvine

•7 years ago

1 Reply

HUMIDITY

Does anyone else have more physical leg groin shoulder pain when the humidity is very high? I have noticed when it is very humid I am in a major mess once it...

Does anyone else have more physical leg groin shoulder pain when the humidity is...

jevuki

•7 years ago

12 Replies

Foggy head

Now I am reducing I get terrible pains in my thighs and buttocks also a very foggy head

Now I am reducing I get terrible pains in my thighs and buttocks also a very fo...

Rose1bud

•7 years ago

7 Replies

Advice with flare up?

I put on a new post 6 days ago having found this great site. It has been so great to chat with others who understand and can give support. My initial post...

I put on a new post 6 days ago having found this great site. It has been so gre...

Gillgetmeoffthemeds

•7 years ago

36 Replies

Vitamin d

I take 4 vitamin d a day as prescribed by doctor but now I am very constipated, don't want to take over counter remedies, any suggestions tia

I take 4 vitamin d a day as prescribed by doctor but now I am very constipated, ...

Lilltenanny

•7 years ago

6 Replies

Protein in urine

Does anyone know if prednisolone can cause protein in the urine. I see on the leaflet that it can give changes in protein and calcium in the body

Does anyone know if prednisolone can cause protein in the urine. I see on the le...

Koalajane

•7 years ago

1 Reply

No sleep

I have great problems trying to get some sleep feeling exhausted next day so my dr. Has prescribed sleeping tabs

I have great problems trying to get some sleep feeling exhausted next day so my...

Rose1bud

•7 years ago

14 Replies

Joining a new club

Hello. My name is Kasey and after being diagnosed with PMR in July 2017 I'm learning all kinds of things about this disease thanks to PMRGCAuk and reading Kate...

Hello. My name is Kasey and after being diagnosed with PMR in July 2017 I'm lear...

KaseyP

•7 years ago

10 Replies

Informational Video for GCA

Interesting video describing GCA I found this on a site which had presentations from the vasculitis symposium 2017. https://youtu.be/UtIFoMuyh_4

Interesting video describing GCA I found this on a site which had presentation...

Tj2017

•7 years ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2017

My first post to join fellow travellers along this tricky GCA journey. The encouragement, support and mutual respect is truly uplifting.

Bowen Therapy

Parker in PPE Gardening

Is this the same old same old?

What is the itch.

Gentle Reminder

Time To Reduce Again

PMR -Dry Mouth-Sjogrens Syndrome

Medication advice

Snoring is this the final insult!

PMR now totally confused!!

Advice needed please! Tia.

Chronic Fatigue

Tapering Prednisone

HYPOTHYROIDISM and PMR

Sciatica pt 3

Not sure which tack to take now?

Connection between onset of PMR and travel to Central America

Steroid Taper Web Application

Varicose Veins

Sciatica

dilema continues

HUMIDITY

Foggy head

Advice with flare up?

Vitamin d

Protein in urine

No sleep

Joining a new club

Informational Video for GCA

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