As I have too much time on my hands to think and add to my list of what else could be wrong with me I called the doctor to ask about my blood test results. I asked if she thought I have stopped loosing weight due to a sluggish Thyroid? She said It's only borderline .6 so no that probably wasn't it. I explained my husband controls my diet as I am house bound, he also shops and has lost a lot of weight himself recently to help me for my hip replacement surgery. I was doing well till now? Nothing changed diet wise so I will repeat it to check it hasn't gone up. So far so good. The then DR Dabia asked me about steroid dosage she said my Rheumatologist was concerned about the amount of steroids I was taking and asked did I not read his letter. I said no he didn't send me a letter he cancelled my request for a consultation and said you can manage it. Dr Masai told me about the letter and asked me did I know how much this process costs! I told him no but didn't mind really as I was entitled to an NHS consultants referrall with PMR after 40 years of NI contributions? What's interesting is Pred is on a monthly repeat for 10mg a day that they issue. I told her how if I reduce any further (on 7 mg now) I get symptoms back that affects my mobility that is massively impaired already due to my impending Total Hip Replacement surgery. She said you should be reducing 1mg a month though. I answered I wasn't sure how that would affect me post option as I have to move about and any less than 7mg makes me hurt. She then said what did I call for specifically? Answers? Solutions? Consultation on best way forward from a medically qualified person? Help to deal with my health? Then I said to tell you the truth I don't know because I am no further forward in this discussion. Then I asked do I need a fasting blood test for TFT and can you check Inflammatory markers for my PMR at the same time. That will help with the steroid dosage. She said no we will just do the Thyroid test so it's not a fasting one. So I said ok and hung up.
You probably don't have any answers for me out there but I feel better for venting my frustration. Did I ask too much? Did I confuse her? Is she too busy to listen? Had she got stuff going on much more important than my whinging? Anyway it's not like I will go away any time soon. I will start a new discussion next week and change the subject matter and topic around. Perhaps do it more like a counselling session with open questions following up with a few leading suggestions and ideas..
Thanks to anyone who is bored enough to read this. If it wasn't for this site I would get seriously depressed angry and upset.
I now have my headphones on in the garden going to the special place in my head where I am 8st 30yrs younger pain free and incredibly healthy.