Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,758 members • 39,032 posts

All posts for August 2017

Joining the club that nobody wants to join

Recently diagnosed with PMR after lots of visits to doctors. Had X rays, blood tests, sent to A+E, more blood tests and diagnosed with costicondritis. Drugs...

Recently diagnosed with PMR after lots of visits to doctors. Had X rays, blood t...

Hollyseden

•7 years ago

8 Replies

Finding out my pain are in muscles not joints??

Now im tappering down my pains are in the muscles and lasting 😬 Calves and thighs at the moment. Tingling toes. And all doc is bothered about. Getting me...

Now im tappering down my pains are in the muscles and lasting 😬 Calves and thig...

Rocketronzy

•7 years ago

31 Replies

AA and jaw pain

Looking back at previous posts I think the jaw pain I wrote about began when I started taking alendronate. I see my GP end of the month and will mention it to...

Looking back at previous posts I think the jaw pain I wrote about began when I s...

barbthy

•7 years ago

3 Replies

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Swollen abdomen and fluid build up

Could this be polymyalgia related? My abdomen swells or fills up with liquid. I was constipated but not now. Four litres drained off in hospital. Why? Is it...

Could this be polymyalgia related? My abdomen swells or fills up with liquid. I ...

Sheribrim

•7 years ago

24 Replies

Prednisone and sleep

I've just been diagnosed with PMR, and I find I'm somewhat overwhelmed with all the info here! I don't like the idea of prednisone, but it sure worked like...

I've just been diagnosed with PMR, and I find I'm somewhat overwhelmed with all ...

RheaV

•7 years ago

7 Replies

Sciatica

Felt good on Sat. so after doing the shopping I decided to do a bit of weeding in the borders. Big mistake! I now have terrible pain in left leg, groin, hip...

Felt good on Sat. so after doing the shopping I decided to do a bit of weeding i...

Marcy47

•7 years ago

24 Replies

Posting

To DorsetLady. Good morning. How can I post privately to one person on this forum?

To DorsetLady. Good morning. How can I post privately to one person on this foru...

joat

•7 years ago

3 Replies

Is this recovery?

Hello Dear Friends, I have noticed some changes and wonder if what I am seeing is part of getting better/lowering steroid dose. My face has lost it's...

Hello Dear Friends, I have noticed some changes and wonder if what I am seeing i...

bunnymom

•7 years ago

10 Replies

How to Turn Into a Dragon

Two years into Polymyalgia and with the prospect of another year to go, it was time to take stock of a body that wouldn't fit into my old summer dresses. I...

Two years into Polymyalgia and with the prospect of another year to go, it was ...

43tripandskip

•7 years ago

42 Replies

Balance problems

Hi does anyone have a problem with balance? I now have to walk with two sticks or a trolley. It is worse since I had to increase my steoids to 35mg because of...

Hi does anyone have a problem with balance? I now have to walk with two sticks o...

Sorop

•7 years ago

19 Replies

Update

I posted last week about feeling truly awful after the combination of a fall and reducing prednisolone. I've since taken my pred dose back up to 9.5mg (from...

I posted last week about feeling truly awful after the combination of a fall an...

maria40

•7 years ago

6 Replies

Ibandronic Acid

My doctor is very keen for me to take monthly Ibandronic Acid tablets of 150mg. My dentist, however is less keen as she said there can be some problems caused...

My doctor is very keen for me to take monthly Ibandronic Acid tablets of 150mg. ...

Tonysue

•7 years ago

21 Replies

Actemra enroute soonish?

I spoke to a rheumatologist the other day who has been in touch with Genentech, the drug company that makes Actemra. She said they are pushing for Actemra to...

I spoke to a rheumatologist the other day who has been in touch with Genentech, ...

Hindags

•7 years ago

8 Replies

Eyes again!!!

So...today I saw a neuro ophthalmologist!! And I sort of got some good news! It turns out my MRI scan was normal for someone my age!! :-) I don't have MS (I...

So...today I saw a neuro ophthalmologist!! And I sort of got some good news! It ...

altywhite

•7 years ago

21 Replies

My GCA journey

An update to my GCA journey. I was diagnosed in June 2015, and began the tapering schedule. Things were going very smoothly and feeling a bit smug, planned a...

An update to my GCA journey. I was diagnosed in June 2015, and began the taperi...

GinnyMa

•7 years ago

14 Replies

Blood Test, Prediabetes and CRP at 52!!

Hello again. 69 year old bloke previously fit and very active, began with PMR 2½ years ago when I suddenly could hardly get out of bed, etc. I had a nasty...

Hello again. 69 year old bloke previously fit and very active, began with PMR 2½...

Roltuba

•7 years ago

10 Replies

PMR and Sport

Hi today I've been diagnosed with PMR. I'm 53 and up until now have been a competitive Triathlete. I'm looking for some good news stories about PMR and still...

Hi today I've been diagnosed with PMR. I'm 53 and up until now have been a comp...

GarryB63

•7 years ago

36 Replies

Pre holiday post

Well, if all goes to plan, tomorrow I'm off to Rome for a cruise on Monday. Still on 18mg Pred for GCA having been on this dose for four weeks so as not to...

Well, if all goes to plan, tomorrow I'm off to Rome for a cruise on Monday. Stil...

SnazzyD

•7 years ago

7 Replies

Took steroids, no improvement, so told no PMR

Hi, I wrote a couple of weeks ago as a newbie. I had some great advice and support from this site and I would like to thank everyone who responded to me. I...

Hi, I wrote a couple of weeks ago as a newbie. I had some great advice and supp...

mmer8625

•7 years ago

4 Replies

Any perls of wisdom on blood circulation.

I have v poor circulation. Ware thick bed socks even in Sumer, extra blankets over my legs. 😱

I have v poor circulation. Ware thick bed socks even in Sumer, extra blankets ov...

Rocketronzy

•7 years ago

9 Replies

Blood tests

I have had GCA for a year now and have been having monthly blood tests, am now on 13mg of Prednisolone and reducing by 1mg a month with no problems at......

I have had GCA for a year now and have been having monthly blood tests, am now o...

Sho-Sho

•7 years ago

6 Replies

To PMRPro or anyone knows my crazy history feel free to pop in

we all know I move back to the north east to go to a real pro rheumatologist. He proceeded to reduce me so quickly I had a third relapse at 12mg. It made me...

we all know I move back to the north east to go to a real pro rheumatologist. H...

Nap1

•7 years ago

14 Replies

Weird flare

I have had PMR for a few years now and have slowly worked down to 2mg a day of predisolone while feeling well. Last Friday l twisted my ankle and yesterday...

I have had PMR for a few years now and have slowly worked down to 2mg a day of p...

Hidden

•7 years ago

2 Replies

Newly diagnosed

Diagnosed this week and given 15mg pred , started today so don't really know what to expect , so any hints will be much appreciated x

Diagnosed this week and given 15mg pred , started today so don't really know wha...

Rosbud

•7 years ago

50 Replies

What a Surprise - a PMR Diagnosis

For Lent this year I gave up sugar and dairy, adding to the meat and poultry from which I abstained 40 years ago. My weight declined significantly (23 pounds...

For Lent this year I gave up sugar and dairy, adding to the meat and poultry fro...

PeaceableDragon

•7 years ago

12 Replies

Dots of Blood

Can this "bleeding" be symptom of Prednisone withdrawal? GCA flair? I have been on this forum before. And thank you for all your help. I'm at the 5 year mark....

Can this "bleeding" be symptom of Prednisone withdrawal? GCA flair? I have been ...

Asbeck

•7 years ago

3 Replies

Another Corker

Hi markbenjamin57 Great piece if work in the summer news letter. Love how your mind works and translates your thoughts into a fun read.

Hi markbenjamin57 Great piece if work in the summer news letter. Love how your...

Estellemac

•7 years ago

2 Replies

MICROVASCULAR DYSFUNCTION & 'DEPRESSION' RESEARCH

Hello Everyone ! Interesting listening to an Australian Radio National 'Health Matters' programme discussing how: 'Microvascular dysfunction is caused by...

Hello Everyone ! Interesting listening to an Australian Radio National 'Health M...

Rimmy

•7 years ago

2 Replies

One to go!

I am sharing this for all those who are following in the same path and to give hope that, there is light at the end of the tunnel. Yesterday, I moved onto 1mg...

I am sharing this for all those who are following in the same path and to give ...

DevonMichael

•7 years ago

10 Replies

Oh dear, again 🙁

Hi all, had a good week on 15mg, age lines going from face so had a nice free facelift. Cut down to 14.5mg today and mild GCA but going to see if any better...

Hi all, had a good week on 15mg, age lines going from face so had a nice free fa...

Margaret1951

•7 years ago

39 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for August 2017

Joining the club that nobody wants to join

Finding out my pain are in muscles not joints??

AA and jaw pain

Swollen abdomen and fluid build up

Prednisone and sleep

Sciatica

Posting

Is this recovery?

How to Turn Into a Dragon

Balance problems

Update

Ibandronic Acid

Actemra enroute soonish?

Eyes again!!!

My GCA journey

Blood Test, Prediabetes and CRP at 52!!

PMR and Sport

Pre holiday post

Took steroids, no improvement, so told no PMR

Any perls of wisdom on blood circulation.

Blood tests

To PMRPro or anyone knows my crazy history feel free to pop in

Weird flare

Newly diagnosed

What a Surprise - a PMR Diagnosis

Dots of Blood

Another Corker

MICROVASCULAR DYSFUNCTION & 'DEPRESSION' RESEARCH

One to go!

Oh dear, again 🙁

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