Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for March 2017

GCA meds

After being what I thought fit and healthy nurse/Cancer centre manager at 54, I nosedived into GCA 3 days ago. Apart from cancer 12yrs ago and a three weekly...

After being what I thought fit and healthy nurse/Cancer centre manager at 54, I ...

SnazzyD

•7 years ago

18 Replies

Ristorante 35mg.

I saw a new rheumatologist today who seemed to be very clued up on PMR, told me the person who knew my body best was me! He did tell me I needed to take...

I saw a new rheumatologist today who seemed to be very clued up on PMR, told me ...

Jeanjean16

•7 years ago

8 Replies

Sunburn type rash on neck

I have been on steroids since Oct 2015 and am now on 3 mg. I have had no major problems . Yesterday I did low impact aerobics which involves moving raising...

I have been on steroids since Oct 2015 and am now on 3 mg. I have had no major p...

MayH

•7 years ago

6 Replies

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Beginners Help!

I was diagnosed with GCA last December after a shaker start I am now on steriods and on reducing dose. But on getting down to 15mg I feel awful! Who do I go...

I was diagnosed with GCA last December after a shaker start I am now on steriods...

Hw123

•7 years ago

2 Replies

Interesting

I am interested in the comments picked up this morning. Some weeks ago I developed pain in my left shoulder. Osteopathetic treatment helped a bit. Then the...

I am interested in the comments picked up this morning. Some weeks ago I develop...

Gillymar

•7 years ago

8 Replies

One arm and shoulder very painful, but not on the other side.

I ve found in the past few weeks, one arm and shoulder painful (the right one), but the other side is almost good. Has anyone else experienced this, just...

I ve found in the past few weeks, one arm and shoulder painful (the right one), ...

Reethebeat

•7 years ago

25 Replies

Do you know how to tell?

I never realized at first that I could not handle back rubs etc. hot tub jets hurt..... I did not know it was a part of this illness. So, the other day I was...

I never realized at first that I could not handle back rubs etc. hot tub jets h...

Hidden

•7 years ago

27 Replies

Struggling with tapering

I was diagnosed with PMR and GCA in July 2015 and started on 40mg of Prednisolone. Following the tapering programme given to me by my Rheumatologist, by...

I was diagnosed with PMR and GCA in July 2015 and started on 40mg of Prednisolon...

LizMitchell

•7 years ago

25 Replies

Dexa scan and AA

Hi I've been on AA since Jan2015 - in that time noone has mentioned Dexa scan. Should I ask for one and what would it tell me?

Hi I've been on AA since Jan2015 - in that time noone has mentioned Dexa scan. S...

1602

•7 years ago

5 Replies

Thumb pain

Does anyone else suffer with pain at the base of the thumb? I have been getting this for the last few weeks, it's painful trying to grip anything with my left...

Does anyone else suffer with pain at the base of the thumb? I have been getting ...

Marcy47

•7 years ago

12 Replies

Calcium Supplements.

Hi - does anyone take calcium supplements? Does the weepy-ness get better as one tapers down?

Hi - does anyone take calcium supplements? Does the weepy-ness get better as on...

Slosh

•7 years ago

36 Replies

Grapefruit juice?

Reading back through Kate Gilbert's excellent book, I find a mention of grapruit juice and whether there is an interaction with prednisolone. I have only...

Reading back through Kate Gilbert's excellent book, I find a mention of grapruit...

Zebedee44

•7 years ago

12 Replies

Well I woke up this morning 🎹 - GCA Blues continued...

To recap on the story so far - diagnosed with GCA in November 2016 and started on 40mg prednisolone. I've tapered without too much of a problem according to...

To recap on the story so far - diagnosed with GCA in November 2016 and started o...

LizzieGuinn

•7 years ago

3 Replies

Researching the side effects of Corticosteroids

I have to write a paper for Biochem, I am curious about the biochemical mechanisms of action with the use of corticosteroids. I have been asked to take them...

I have to write a paper for Biochem, I am curious about the biochemical mechanis...

HerbalHawkers

•7 years ago

3 Replies

Difference between fibro and polymalgia?

Was down to 6mg and now gone up to 14mg pred after trying 10mg which never touched the hip pain. Having a Dexa scan on Tuesday as suggested by this post....

Was down to 6mg and now gone up to 14mg pred after trying 10mg which never touch...

Stroppymoo

•7 years ago

8 Replies

Reducing steroids

Could any one help me please, I am reducing steroids on the 1st of March dropped by half mg to 4mg, have been fine until the 15 day when all my arms, bottom,...

Could any one help me please, I am reducing steroids on the 1st of March dropped...

valrene

•7 years ago

33 Replies

Help

I'm new here and need some information. The pain around my left shoulder and neck ,best described as being in a vice like grip, is not getting any better. I...

I'm new here and need some information. The pain around my left shoulder and nec...

GranniC1948

•7 years ago

9 Replies

When do you start to taper down?

Hi all, I had another CRP count and the number went down from 32.9 to 19.6 within 8 days with 60 mg Prednison. My question is: When does your rheumy let you...

Hi all, I had another CRP count and the number went down from 32.9 to 19.6 withi...

Akino

•7 years ago

4 Replies

Raised CRP

After reducing sucessfully for at least 6 months. I have been steady on 6mg. Had a lot of health issues since November which although very varied did not...

After reducing sucessfully for at least 6 months. I have been steady on 6mg. H...

sealine30

•7 years ago

4 Replies

Fosamax vs Boniva

Looking for advice.!!

Bonnig

•7 years ago

27 Replies

SUSPECTED GCA ANY ADVISE PLEASE

Hi, I'm new here and was wondering if any one could advise me as my Dr thinks i have GCA 3 weeks ago i suddenly had a head ache behind right ear, very...

Hi, I'm new here and was wondering if any one could advise me as my Dr thinks i ...

TARAVDM

•7 years ago

26 Replies

GCA after PMR

I've been meaning to ask this question for a while- when PMR burns itself out/ goes into remission, are we still at the same level of risk of developing GCA?

I've been meaning to ask this question for a while- when PMR burns itself out/ g...

margiebell4

•7 years ago

3 Replies

Dry eyes? Eye bags recommendation...

Some one on the lupus forum has written this today: https://healthunlocked.com/lupusuk/posts/135148250/eye-bag-treatment-for-dry-eyes "I know a couple of you...

Some one on the lupus forum has written this today: https://healthunlocked.com/l...

PMRpro

Ambassador•7 years ago

14 Replies

GCA: pain

Has anyone else experienced pain on the opposite side of the head to the initial pain? A few months ago I was happily on 4mg but when I attempted to reduce...

Has anyone else experienced pain on the opposite side of the head to the initia...

PenelopeVita-Finzi

•7 years ago

11 Replies

Any advise?

Since leaving hospital for previously mentioned insertion of rod in right femur I have been unable to move out of my room due to the pain and also a nasty...

Since leaving hospital for previously mentioned insertion of rod in right femur ...

Gillymar

•7 years ago

6 Replies

Rheumatologist appt

Been to the consultant Thursday and I will be reducing my preds by 2mg a month for the next five months so by August I should be down to 10mg he said slowly...

Been to the consultant Thursday and I will be reducing my preds by 2mg a month f...

Gran6

•7 years ago

6 Replies

First Time to Post ....I am new to The Forum !

I am "officially" diagnosed with PMR now for 5 years. Looking back on my life , I am almost positive that I have had PMR and low Adrenals for many years....

I am "officially" diagnosed with PMR now for 5 years. Looking back on my life ...

Suzanne457

•7 years ago

32 Replies

The Lighter Side of PMR - some Alternative Experiences on the Journey? ;-)

Greetings All Well, there’s no question that PMR changes our lives. And, the powerful drugs that treat it can also affect our Mood and Behaviour in strange,...

Greetings All Well, there’s no question that PMR changes our lives. And, the p...

markbenjamin57

•7 years ago

59 Replies

Physiology of GCA and PMR

I am curious about how this all happens e.g. why do the giant cells gather in only some arteries, how come when they worry about the giant cells interrupting...

I am curious about how this all happens e.g. why do the giant cells gather in on...

granny-b

•7 years ago

6 Replies

Dead Slow agreed with GP

I am pleased to say my doctor has agreed I can do Dead Slow Taper despite him finding it hard to prescribe. I had an appt this evening but had emailed him the...

I am pleased to say my doctor has agreed I can do Dead Slow Taper despite him fi...

IdasMum

•7 years ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2017

GCA meds

Ristorante 35mg.

Sunburn type rash on neck

Beginners Help!

Interesting

One arm and shoulder very painful, but not on the other side.

Do you know how to tell?

Struggling with tapering

Dexa scan and AA

Thumb pain

Calcium Supplements.

Grapefruit juice?

Well I woke up this morning 🎹 - GCA Blues continued...

Researching the side effects of Corticosteroids

Difference between fibro and polymalgia?

Reducing steroids

Help

When do you start to taper down?

Raised CRP

Fosamax vs Boniva

SUSPECTED GCA ANY ADVISE PLEASE

GCA after PMR

Dry eyes? Eye bags recommendation...

GCA: pain

Any advise?

Rheumatologist appt

First Time to Post ....I am new to The Forum !

The Lighter Side of PMR - some Alternative Experiences on the Journey? ;-)

Physiology of GCA and PMR

Dead Slow agreed with GP

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