Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,479 members • 38,443 posts

All posts for March 2017

Pain in shoulder blades

This is my first post. Was diagnosed with PMR in January 2016 and prescribed 40 mg of Prednisolene. Reduced to 2 mg by January 2017, Although I have no...

This is my first post. Was diagnosed with PMR in January 2016 and prescribed 4...

make-over

•7 years ago

10 Replies

What is my next move?

Would appreciate some advice on my next move. I started on prednisolone at 20mg in June last year and have been tapering very carefully down to my current 5mg...

Would appreciate some advice on my next move. I started on prednisolone at 20mg...

Brixhamhampster

•7 years ago

9 Replies

The Autoimmune Solution by Amy Myers, M.D.

Has anyone tried following the Meyer's approach in dealing with PMR? If so, did you try it before going on prednisone or while on prednisone. Did it work or...

Has anyone tried following the Meyer's approach in dealing with PMR? If so, did ...

Breaker

•7 years ago

35 Replies

Want to take advantage of all our features? Just log in!

sciatica

Hi Has anyone got any ideas how to cope with severe nerve pain from sciatica? Thanks Helen

Hi Has anyone got any ideas how to cope with severe nerve pain from sciatica? Th...

heli13

•7 years ago

12 Replies

Disappointed or not?

I have been given my test results regarding whether I have PMR or not and, apart from my vitamin D being minutely lower than it should be, all of my symptoms...

I have been given my test results regarding whether I have PMR or not and, apart...

jeanhaynes1966

•7 years ago

78 Replies

I am supporting my wife in the long PMRGCA journey

I am here to support my wife in the long journey she has been on since being diagnosed with GCA in March 2010. Yes her condition has changed our lives...

I am here to support my wife in the long journey she has been on since being dia...

Richard_yeayea

•7 years ago

6 Replies

Advice re supplements - feel like I am rattling!

Hi All. Please could someone kindly give me advice about supplements. I seem to have ended up taking a lot because every time I have read about something...

Hi All. Please could someone kindly give me advice about supplements. I seem t...

SusyTe

•7 years ago

19 Replies

Request for information please!

Hi everyone. I have just joined this supportive group. ☺. I'm 54 and have a diagnosis of Systemic Sclerosis (scleroderma) and also ulcerative colitis. All part...

Hi everyone. I have just joined this supportive group. ☺. I'm 54 and have a diag...

JenniferClaireA

•7 years ago

2 Replies

ALENDRONIC ACID

just been put on 70mg of ALENDRONIC ACID any information would be welcome

BRANTwood1949

•7 years ago

30 Replies

Tapering after 5 weeks on 20mg

Hi - would love input. My Rheumatologist has decided that I should decrease my Pred by 2.5mg per week until I reach 10mg. (So from 20 to 10 in four weeks) and...

Hi - would love input. My Rheumatologist has decided that I should decrease my P...

Slosh

•7 years ago

56 Replies

Desktop CRP

Did anyone listen to radio 4's Inside Health last night. It mentioned a "Desktop" CRP device that GPs can use to get a quick (2 min) CRP from a pricked...

Did anyone listen to radio 4's Inside Health last night. It mentioned a "Deskto...

podo

•7 years ago

3 Replies

GCA and miserable day.

Daughter drove me to Southend from Lewes, a two hour journey, to have a PET scan as I am now under Prof Das Gupta. Was feeling really ill as I had to reduce...

Daughter drove me to Southend from Lewes, a two hour journey, to have a PET scan...

christine2715

•7 years ago

22 Replies

pain at night

I last few weeks I have been waking up about 3am in a lot of pain I'm that sore can't lay .I have this before can't lay to long in the morning but woke up...

I last few weeks I have been waking up about 3am in a lot of pain I'm that sore ...

Mistyscot

•7 years ago

1 Reply

Please explain pred?

I have PMR - an auto immune inflammatory arthritis disease? It causes pain in the large muscles (inflammation)? No cure, no known cause? The steroids reduce...

I have PMR - an auto immune inflammatory arthritis disease? It causes pain in th...

Peggles

•7 years ago

20 Replies

Side effects of lazy adrenal glands

Hi everybody I am tapering from 7mg to 6mg with DSNS method. I also take 10mg Leflunomide and my last BT last month have improved, ESR 24 and CRP 0.5mg. I...

Hi everybody I am tapering from 7mg to 6mg with DSNS method. I also take 10mg Le...

Orchid47

•7 years ago

7 Replies

Heartbeat

Hi have been diagnosed with Pmr 3 months ago and this forum is brilliant so helpful My big problem is when I give into the dreaded tiredness and settle down...

Hi have been diagnosed with Pmr 3 months ago and this forum is brilliant so he...

Lynnray

•7 years ago

8 Replies

Informal support group Norwich

10 of us met up at Notcutts yesterday. Next meeting June 5th, 10.30am Notcutts.

10 of us met up at Notcutts yesterday. Next meeting June 5th, 10.30am Notcutts. ...

Hidden

•7 years ago

3 Replies

Should I increase Pred?

May 2016 I was diagnosed with PMR/GCA, started on 60 MG prednisone. Got down to 30mg and developed a flare , I guess, pain in arms and hip and head pains. RA...

May 2016 I was diagnosed with PMR/GCA, started on 60 MG prednisone. Got down to ...

Mgeorge

•7 years ago

22 Replies

Update referral to Sarah Mackie

Hi I have already posted this (drr) but it hasn't appeared. Probably ended up on someone's iPad as answer to their request for recipe for chicken soup! Well I...

Hi I have already posted this (drr) but it hasn't appeared. Probably ended up o...

Marlenec

•7 years ago

10 Replies

Osier get-together

We are meeting iat the Osier Cafe, in the Museum of East Anglian Life, Stowmarket, on Thuesday at 10.30. Join us for a tea or coffee and a natter.

We are meeting iat the Osier Cafe, in the Museum of East Anglian Life, Stowmarke...

Vanner460

•7 years ago

1 Reply

Pred, MTX, and reducing

I started prednisone (again) @ 15mg. and also MTX. After 1 month on pred I'm supposed to reduce to 10mg. Is that too big a jump to taper, or is it different...

I started prednisone (again) @ 15mg. and also MTX. After 1 month on pred I'm sup...

tiasbear

•7 years ago

17 Replies

Different CRP readings

Different CRP readings. One CRP reading was called cardiac and it was 9.35 high other CRP reading was called quant which was 9.8. Both of these do not look...

Different CRP readings. One CRP reading was called cardiac and it was 9.35 high ...

Nap1

•7 years ago

19 Replies

Continuing problems

I've posted on this forum a few times before. I was diagnosed August 2016 and started on 20mg Pred. The doc was unsure of diagnosis so requested I reduce v...

I've posted on this forum a few times before. I was diagnosed August 2016 and st...

Carrot1

•7 years ago

21 Replies

Reducing Pred Advice please

I was diagnosed with PMR in October 2015 and was given 15mg Pred. I have now tapered down to 4mg with GP's advice ( I have been on 4mg for 3 weeks). I still...

I was diagnosed with PMR in October 2015 and was given 15mg Pred. I have now ta...

cassie1208

•7 years ago

31 Replies

Not enough spoons today!

Those of you familiar with the twelve spoons theory will understand, the reference being to the Http/:butyoudontlooksick.com. Today I don't think I started...

Those of you familiar with the twelve spoons theory will understand, the referen...

Zebedee44

•7 years ago

19 Replies

Diagnosed with PMR Jan 2017

Hi Everyone, I'm new to this fourum and hoping to find more out on this awful disease as I'm really struggling to come to terms with it having always been...

Hi Everyone, I'm new to this fourum and hoping to find more out on this awful di...

bigg8

•7 years ago

26 Replies

Fed up

A week after my op for rod in femur caused by tsking AA years ago. Still in pain when walking. Same op last May 2016 proved completely pain free. Who do I...

A week after my op for rod in femur caused by tsking AA years ago. Still in pain...

Gillymar

•7 years ago

9 Replies

in a tizz!

Woe is me... I was so looking forward to meeting up with a group in Norwich today. Ill whole night, and internal problem today, prevent meeting up. Very...

Woe is me... I was so looking forward to meeting up with a group in Norwich toda...

karools16

•7 years ago

5 Replies

Adrenals

Does anyone know if age is implicated in restarting the Adrenal function - or whether it is influenced by the Thyroid gland too? Any answers would be much...

Does anyone know if age is implicated in restarting the Adrenal function - or wh...

mega

•7 years ago

17 Replies

Zero prednisone

I have been on 0 mg pred for 1 week now. And I am feeling good. No pain, and only Occassionally a slight stiffness when I stand and for the first couple of...

I have been on 0 mg pred for 1 week now. And I am feeling good. No pain, and on...

Meg1711b

•7 years ago

26 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2017

Pain in shoulder blades

What is my next move?

The Autoimmune Solution by Amy Myers, M.D.

sciatica

Disappointed or not?

I am supporting my wife in the long PMRGCA journey

Advice re supplements - feel like I am rattling!

Request for information please!

ALENDRONIC ACID

Tapering after 5 weeks on 20mg

Desktop CRP

GCA and miserable day.

pain at night

Please explain pred?

Side effects of lazy adrenal glands

Heartbeat

Informal support group Norwich

Should I increase Pred?

Update referral to Sarah Mackie

Osier get-together

Pred, MTX, and reducing

Different CRP readings

Continuing problems

Reducing Pred Advice please

Not enough spoons today!

Diagnosed with PMR Jan 2017

Fed up

in a tizz!

Adrenals

Zero prednisone

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive