Interesting: I am interested in the comments picked... - PMRGCAuk

PMRGCAuk

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Interesting

Gillymar profile image
8 Replies

I am interested in the comments picked up this morning. Some weeks ago I developed pain in my left shoulder. Osteopathetic treatment helped a bit. Then the femur pinning op took over my attention. Now the leg is still painful and aches (but I am trying to move round more for that ) and the dreaded Big D is on the way out and I realise that I have intense pain in BOTH shoulders ! It could be use of the Zimmer and pressure on that with both arms but dressing is hard and when I read today's posts I wonder if I have PMR as well. That is all I need of course!

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Gillymar profile image
Gillymar
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8 Replies
PMRpro profile image
PMRproAmbassador

Hmmm - mind you, using your arms as much as you are at present is going to be painful. Anything else?

piglette profile image
piglette

Do you feel very fatigued? Have you got any bilateral hip/thigh pain? Are you losing weight?

Gillymar profile image
Gillymar in reply to piglette

I could do with losing weight but have seen no signs of it yet. Thanks for your input.

PMRpro profile image
PMRproAmbassador in reply to piglette

I'm sceptical about the weight loss bit - I gained weight with untreated PMR! Then when I went on pred the weight redistributed itself to the usual pred places but I didn't gain any more...

piglette profile image
piglette in reply to PMRpro

Weight loss is supposed to be a symptom of undiagnosed PMR. I lost quite a lot of weight mainly because I felt so dreadful!

Suzanne457 profile image
Suzanne457 in reply to piglette

Hi Piglette.... I too had a lot of unexplained weight loss with my undiagnoised PMR. I still have a loss of appetite and loose weight easily if am not careful. My Rheumatologist thought my appetite would return eventually when I dropped the dosage of Pred down ( I am at 4 mg now) I did have an adrenal insufficiency episode about a year ago. I lost a lot of weight then and my appetite as well. I have not been the same since. When I was put on a higher dose of Pred after PMR diagnosis, I was ravenous and did get the chubby cheeks though ! Either way, PMR is still very much a part of my life , unfortunately. Thank you all for such good info and for the good "companionship" that you provide on this Forum.

Suzanne

piglette profile image
piglette in reply to Suzanne457

Hi Suzanne, when I started on pred I could eat a horse or two even! Over Christmas I lost 5kg for no known reason. My rheumie just wrote it down and shrugged her shoulders. I was weighed on the same hospital scales and I don't think I had gold bars in my pockets the first time!

PMRpro profile image
PMRproAmbassador in reply to piglette

Yes, I know - I was just saying "I wish..."

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