Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,315 members • 38,052 posts

All posts for March 2017

Bristol Road Show?

Anyone here planning on going to the Bristol Road Show on March 7th besides me? I'd love to meet you. Jan

Anyone here planning on going to the Bristol Road Show on March 7th besides me? ...

Janll

•7 years ago

9 Replies

~PMR & trialing low dose Nalterxone - a therapeutic intervention for improved disease management~

Have been wanting to make some comments on the above trial I entered into briefly then stopped some weeks ago. Please note the following is a mere snippet...

Have been wanting to make some comments on the above trial I entered into briefl...

Megams

•7 years ago

14 Replies

Thinning hair hack

For those of you who have experienced thinning hair from steroids or PMR (Not sure which one caused thinning for me) my hairdresser turned me on to this...

For those of you who have experienced thinning hair from steroids or PMR (Not s...

Marie1479

•7 years ago

11 Replies

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Smiling again!

In December 2016 I could not turn over in bed, climb stairs or get into my car. Every movement was painful and I thought I was going to be in a wheelchair. I...

In December 2016 I could not turn over in bed, climb stairs or get into my car. ...

Zebedee44

•7 years ago

20 Replies

Reducing below 10mg - should I be optimistic or play safe?

Hi All, This is my first post but I have been reading all the useful information and experiences found on this site since I was diagnosed with PMR in...

Hi All, This is my first post but I have been reading all the useful informati...

Hidden

•7 years ago

22 Replies

Tai Chi

Hello all, thought I would write a bit of an update following the helpful responses I got to my previous post asking about the value of Tai Chi. I did go...

Hello all, thought I would write a bit of an update following the helpful respon...

Patience_1

•7 years ago

22 Replies

Azothioprine

Hello. I have had PMR for over 3 yrs now have on 2 occasions got down to 3 mgms prednisilone,but have then been in so much difficulty walking have had to...

Hello. I have had PMR for over 3 yrs now have on 2 occasions got down to 3 mgms ...

moskin

•7 years ago

13 Replies

Enough to make your hair curl!

i have been on pred (for PMR) for just over a year (down to 7mg). About 4 or 5 weeks ago I noticed my usually straight hair was developing a 'wave'. It is now...

i have been on pred (for PMR) for just over a year (down to 7mg). About 4 or 5 w...

spiritofhilary

•7 years ago

40 Replies

Still no definate answers!!!

Hi all, After reading some amazing info on here, l feel it's the only place I get answers. I was diagnosed late October last year. I had been suffering with a...

Hi all, After reading some amazing info on here, l feel it's the only place I ge...

Janieb293

•7 years ago

11 Replies

Waves of Nausea

Hi All A quick question, I have been on this journey for 21 month now. (PMR/GCA) ~ have not felt myself at anytime since I have been ill or/and on preds. Does...

Hi All A quick question, I have been on this journey for 21 month now. (PMR/GCA)...

lesley2015

•7 years ago

12 Replies

Prednisolone 1mg

I cannot take any meds to protect my stomach from the preds so I have enteric coated preds and have yoghurt before taking them. I have been getting shoulder...

I cannot take any meds to protect my stomach from the preds so I have enteric co...

Gran6

•7 years ago

8 Replies

Methotrexate- your experience

Hi! So I've been placed on methotrexate in an attempt to reduce my "stuck at" prednisone (20mg) level. The new rheumy is a bit puzzled because some of my...

Hi! So I've been placed on methotrexate in an attempt to reduce my "stuck at" pr...

klairv0yant

•7 years ago

29 Replies

GCA blues

Hello all! I am fairly new here, though I have been an avid reader since I was diagnosed with GCA in mid-November 2016. Started on 40mg pred, now down to 10...

Hello all! I am fairly new here, though I have been an avid reader since I was ...

LizzieGuinn

•7 years ago

12 Replies

Informal support group, Norwich

Next meeting March 13th, Monday, 10.30. Notcutts, Daniels Road, Norwich, NR4 6QP. We are a small friendly group who have meeting over the past year. Everybody...

Next meeting March 13th, Monday, 10.30. Notcutts, Daniels Road, Norwich, NR4 6QP...

Hidden

•7 years ago

6 Replies

First week in

Hi everyone I have now been on meds for a week. My mobility has improved immensely. I still have some shoulder stiffness, so was wondering if prednisolone dose...

Hi everyone I have now been on meds for a week. My mobility has improved immense...

JulieR2

•7 years ago

20 Replies

AA yet again

7.30 am. Waiting for hospital to ring saying there is a bed for me today. Did the same yesterday but no bed available then. This is tedious and all because I...

7.30 am. Waiting for hospital to ring saying there is a bed for me today. Did th...

Gillymar

•7 years ago

6 Replies

What foods, if any, disagree with Pred?

I'm wondering if there are any foods that disagree or conflict with Prednisolone? Anyone have any experience they would like to share? I'm trying to discover...

I'm wondering if there are any foods that disagree or conflict with Prednisolone...

Janll

•7 years ago

21 Replies

pmr without steroids(so far)

Hi, thought I would put in my twopennyworth; I have pmr,I'm 99% sure as I have all the syptoms and the raised inflammatory levels.At a guess I've had it for...

Hi, thought I would put in my twopennyworth; I have pmr,I'm 99% sure as I have a...

olde

•7 years ago

45 Replies

osteoporosis

Can somebody please tell me what dose of pred is considered to be low enough not to cause osteoporosis I have been on 5mg for the last 6 months tried to reduce...

Can somebody please tell me what dose of pred is considered to be low enough not...

kingharold11

•7 years ago

25 Replies

Autoimmune disorders may raise risk of dementia

I have just read a very short article in The Daily Telegraph written by Sarah Knapton the science editor, it has been taken from the Journal of Epidemiology...

I have just read a very short article in The Daily Telegraph written by Sarah Kn...

Judyliz

•7 years ago

9 Replies

Trying to understand PMR/GCA

Newbie! Found this site yesterday and I,m so glad for the support that I didn't know was there. Although diagnosed 2 years ago with PMR and GCA I find I know...

Newbie! Found this site yesterday and I,m so glad for the support that I didn't ...

1602

•7 years ago

5 Replies

Dexa scan

Good morning all. Advice please. I am due to have a dexa scan at the end of March. I took AA for a couple of months but have stopped after reading adverse...

Good morning all. Advice please. I am due to have a dexa scan at the end of Marc...

Chrissy1953

•7 years ago

47 Replies

Sight loss. GCA/ TIA ?

Hi everyone. It's been a while since i posted about myself, so quick update. 63yrs old, PMR diagnosed over three years ago and taking 20mg pred. ( but i know i...

Hi everyone. It's been a while since i posted about myself, so quick update. 63y...

annie_marie

•7 years ago

11 Replies

Rare Disease day 28 February : awareness

Sharing this from a Facebook posting it is activity that is seeking to raise awareness of vasculitis with a short video clip...

Sharing this from a Facebook posting it is activity that is seeking to raise awa...

DevonMichael

•7 years ago

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AA still causing problems

I have just returned from the fracture clinic where it was confirmed that I have a "bisphonate related (Alendronic acid) fracture "in my right femur. I had the...

I have just returned from the fracture clinic where it was confirmed that I have...

Gillymar

•7 years ago

5 Replies

GCA and teeth

Hello everybody Having already written recently regarding the glaucoma problem, I now find yet another. My gums have always been a problem and I have spent...

Hello everybody Having already written recently regarding the glaucoma problem, ...

Cobnut

•7 years ago

7 Replies

Bad day

I am in such a mess this morning. Could hardly use my hands and such awful pain in my shoulders upper arms lower back and hips. Feet and toes were painful...

I am in such a mess this morning. Could hardly use my hands and such awful pain ...

polymy

•7 years ago

37 Replies

Bisphosphonate research

Just heard on BBC news that new research justifies some scepticism on the efficacy of bisphosphonates in combating bone decay. Also casts some doubt on the...

Just heard on BBC news that new research justifies some scepticism on the effic...

maria40

•7 years ago

20 Replies

re groin and hip pain

well went to physiotherapist today, she did a lengthy assessment, and has decided all muscles are seized up very tight, in particular, glutal, and hip flexor...

well went to physiotherapist today, she did a lengthy assessment, and has decide...

arvine

•7 years ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2017

Bristol Road Show?

~PMR & trialing low dose Nalterxone - a therapeutic intervention for improved disease management~

Thinning hair hack

Smiling again!

Reducing below 10mg - should I be optimistic or play safe?

Tai Chi

Azothioprine

Enough to make your hair curl!

Still no definate answers!!!

Waves of Nausea

Prednisolone 1mg

Methotrexate- your experience

GCA blues

Informal support group, Norwich

First week in

AA yet again

What foods, if any, disagree with Pred?

pmr without steroids(so far)

osteoporosis

Autoimmune disorders may raise risk of dementia

Trying to understand PMR/GCA

Dexa scan

Sight loss. GCA/ TIA ?

Rare Disease day 28 February : awareness

AA still causing problems

GCA and teeth

Bad day

Bisphosphonate research

re groin and hip pain

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