I have not been diagnosed (I did overhear the doc mention PMR while looking at the computer screen and looked it up).
I started getting extremely sore around the neck, shoulders and jaw about a week after starting on heart medication a couple of months ago. One of my practice docs tried to assure me that the symptoms where absolutely un-connected. She was very patronising and made me feel so stupid, I forgot to ask for my prescription for heart tabs!!! I just wanted to get out of there.
Hmmm! All parts of my body are definitely connected and serviced by the same bloodflow, just saying.
Anyway, the muscle pain goes right down the inside of my arms (as if I'd been throwing darts or similar) and down my back to about waist level, comes around my ribs and hits my thighs - although leg pain not so acute. I also have had some pain in my lower abdomen which affects my bladder and have had the odd little mishap.
The pain is much worse in the evening with me and during the night.
I wake up so often I wondered if I have slept at all!
I have to 'carry' my breasts when I get up after lying down as the shift in gravity seems to particularly affect me. It often feels as if the skin is trying to pull free from my breast bone. Ouch!
After a few minutes upright I feel 90% better. Physically. Although I do feel very tired and have overslept several times lately. At the same time, I don't appear to have lost any strength - I can still lift my 2 year old grandson with no problem!
I really don't want to take Steroids as the side effects appear to be more problematic that the illness!
Firstly, do you think I definitely have PMR? Or is it just some kind of neurosis - a figment of my imagination?
And secondly, does anyone know of any proven alternative treatments?