I was diagnosed with PMR in June 2014. I know, from visiting this forum, that I have been luckier than most in as much as I don't seem to have had as much pain as many of you.
I was down to 6mg in May and finding pain and tiredness difficult to cope with. I was thinking of asking to up the dose when, Hallelujah, I woke up and felt so much better. It really was such an obvious improvement overnight it felt like a miracle!
I reduced to 5mg on the slow reduction programme and have been on 5mg since the second of August.
I am still far from pain free but most of the pain is in my right leg and right arm, not bilateral, which has always been the case. Tiredness usually overcomes me mid afternoon and I have organised my life, being retired, to take it easy in the afternoons. Days out need to be rationed and I have an easy day afterwards. So all in all I manage the problem well, I think.
We are going to New Zealand next month for just over four months. I spoke to my GP about this, he is far better than my rheumy!, and he suggested reducing slowly to 4 mg if all well when we get there. I am wondering whether I should stay on 5mg until,we return as life is going to be a bit busier whilst we are there.
Your thoughts would be appreciated.