Hi everyone, my name is Jenny, I'm 42 and have PMR, arthritis, sciatica and bursitis. I was diagnosed with PMR about 6 weeks ago and my symptoms were severe, causing swelling to my hands, wrists feet and legs. I felt like I was literally turning to stone and the pain was a 10 on the scale and in most parts of my body. I could no longer climb the stairs, could barely sit on the loo, needed help with showering on a seat, as I could no longer bathe and every waking moment was excruciating even on zomorph, gabapentin and top ups of oramorph. I had and still have night and day sweats and would get the shakes where all my muscles went into spasm. My appetite had vanished. I have had to sleep upright on the reclining sofa for 3 months because I cannot get comfortable lay down. I was started on 40mg prednisalone which helped the stiffness and pain in my upper body no end. I am now on 20mg and have been for 2 weeks. I have been told to stay on this for another 2 weeks until I see the rheumatologist and then see about reducing further as I am getting some pain in my upper body and well as lower but the stiffness is a lot better and my inflammation is still present although much better than it was. I am now more flexible but my walking is not good and I need two crutches to walk a short distance. I haven't been out much in 3 months as I can't drive at the moment because of the pain and being on morphine. I do have wonderful supportive friends and family and a fantastic 16 year old son who has been my absolute rock. I have also got round to evaluating my life as I was always to busy with work as a support worker. I appreciate so many little things now. I do find I'm exhausted every day doing the slightest thing and I have the sweats and headaches a lot, however I'm just thankful that I don't have a terminal illness and there are still things to enjoy in life. I love nature, meditation, good company, interior design and gardens among lots of other things. I'm hoping one day to travel as I have never been abroad although it has always been my dream. I'm also a single mum of 3 older daughters as well as my son. (My partner of 17 years decided he didn't want to become a carer and left me about 7 weeks ago). Sorry I know I have rambled on a bit. 😀😀
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