I was originally diagnosed with PMR last June and after an initial dose of 15 mg of Pred which only had an improvement of 70%, my dose was upped to 30 mg. All my pain went, also the stiffness and I felt relatively OK. Now I am down to 15 mg, tapering very, very slowly - still no pain or stiffness, for which I am so grateful, but the physical tiredness I am finding so very depressing. I feel that I should be able to do a little more than just dress, eat, do very basic things around the house without feeling exhausted. I also get very breathless. I already had a slight problem with breathing as I have scoliosis and my spine prevents my lungs expanding properly anyway, so I suppose that doesn't help. The last time I went to my doctor as I needed all my medication re-supplied, he asked me why had I gone to him, so I don't expect much help there! Are other people finding the same problems as me? Is this a stage we all have to go through? I would really appreciate your comments. Thank you all for being there for so many people - read this every day - don't know how we would all get on without it!
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