Hello all, wondering if anyone can advice me please? Diagnosed with GCA in 2013 managed to get off pred for about 3 weeks in 2015 but needed to go back on as visual disturbances and fresh diagnosis of PMR. Most of last year I was on 10mg of Pred and also this year, I managed to reduce to 9mg eventually but when I went to 8mg had visual disturbances back ...so after speaking on phone was told to go to 30mg for 2 weeks and then reduce by 5mg per week till next appointment in June. I am back to 15mg as my CRP and ESR have gone up since I started reducing again.
At my last appointment 2 months ago my Consultant mentioned putting me on Methotrexate which I really do not want to do ...are there any other meds used for GCA apart from that? anything less damaging to the liver and still be able to have the odd few drinks now and again?
I still would like a life outside GCA, the only problems I get are visual disturbances and I'm one of the lucky ones so far that has not had the headaches ...
Thank you in advance for reading my post