Hello to all,
I am new here but have been reading posts for the last two weeks. Diagnosed with PMR beginning of February with text book blood levels. Lots of hip and thigh pain. Did well with starting dose of 30 and took several day for total relief. Didn't realize till recently how meticulous I would have to be about logging all of this. Asked for a referral to a Rheum Dr but my GP thought he could handle it. I was told that once I did well for a week to go down by 5's to start. Once at 15 I slowed to one a week. I got as low as 12 1/2 but then my Mom was diagnosed with cancer and died within 10 weeks. I was pain free at that but after her death started getting stiff shoulders which I put off to anxiety and ignored. Went up one more pred Friday but left work early to put hot pack on arm pain. Then the next evening I ended up in the E R with a headache. Scared that I might have GCA and didn't want to self medicate the headache. I am now on a 5 day pred pack that started with 60 mgs at the hospital and goes down 10 a day. Do I stop at 20? 10 will most certainly be too low? My sed rate was ok by the way. Is this a flare? Was this creeping up on me and I didn't even realize it? Also during a flare is one more likely to hurt other muscles as now I think I've done something to my back. Thank you for all your help. This disease is quite baffling. I do have some books on way which also will help, I hope.