Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,496 members • 38,468 posts

All posts for November 2015

Minor issue?

I have never had any trouble with my hands or feet with PMR, but today, I have noticed that my right index finger is swollen and a little bit tender. My little...

I have never had any trouble with my hands or feet with PMR, but today, I have n...

suzy1959

•9 years ago

3 Replies

reducing steroids

As if reducing steroids is not enough to contend with my GP decided after a recent blood test to put me on statins Avorstatin think thats right also my blood...

As if reducing steroids is not enough to contend with my GP decided after a rece...

kingharold11

•9 years ago

9 Replies

A couple of GCA Niggles

I haven't said much on here but do try to keep up to date with other posts. By way of background, I was diagnosed with GCA in early April 2015 and because I...

I haven't said much on here but do try to keep up to date with other posts. By w...

allykat

•9 years ago

2 Replies

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Generic Prednisolone

In the year that I have been on Pred, I have been coming off it the Doctors way and started yo yoing, then I started the slow method from this site, and had...

In the year that I have been on Pred, I have been coming off it the Doctors way ...

PMRandRA

•9 years ago

5 Replies

Stress and PMR

Here is some proof, as if I needed it, that stress is a major contributor to PMR. Last night the tv show I like to watch at 11 pm was not on so I thought I'd...

Here is some proof, as if I needed it, that stress is a major contributor to PMR...

HeronNS

•9 years ago

5 Replies

GP visit

Have just seen my GP about pains in knee and legs, withdrawing off pred currently on 1.75 mg GP asked if I was single and said If I got out more and socialised...

Have just seen my GP about pains in knee and legs, withdrawing off pred currentl...

geater16393

•9 years ago

17 Replies

Rheumy appointment

Hi, Got to see rheumy this evening, he said i dont have PMR and he would not have prescribed steroids for me. He also said i have no inflammatory condiiton and...

Hi, Got to see rheumy this evening, he said i dont have PMR and he would not hav...

yorkshiregirl44

•9 years ago

19 Replies

Pred reduction

Hi all from a wet and windy Iriah afternoon......a duvet day I think. Anyway reduced from 5 pred to 4 last week and was great for about 5 days but past couple...

Hi all from a wet and windy Iriah afternoon......a duvet day I think. Anyway red...

bumpermac

•9 years ago

4 Replies

GCA /0pred

Looking for advice from a fellow GCA suffer who has made it to 0 pred. It's nearly 6weeks since I got to 0 . When my GCA headache came on it was recognised in...

Looking for advice from a fellow GCA suffer who has made it to 0 pred. It's near...

olive2709

•9 years ago

5 Replies

Hastings Meet-up

A new support group is meeting today at Hastings, Sussex. If you live anywhere nearby and are able to join us you are very welcome. All the details for the...

A new support group is meeting today at Hastings, Sussex. If you live anywhere n...

pennyw

Administrator•9 years ago

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Leg pain

I have PMR and am down to 8 mg prednisolone from 15 over 10 months. The last three reductions I have managed using the dead slow method. My initial problem...

I have PMR and am down to 8 mg prednisolone from 15 over 10 months. The last thr...

MaryWR

•9 years ago

8 Replies

Low level light therapy - report from a guinea pig

I have now had two low level light therapy treatments. The first one was just over twenty minutes with LED light applied to my lower spine. I felt pretty...

I have now had two low level light therapy treatments. The first one was just o...

HeronNS

•9 years ago

2 Replies

Feedback on my CT Scan Today & Diagnosis (Advice Please)

Hello everyone, well the good news is that the consultant at the Acute Emergency unit told me that nothing significant showed up on my scan (phew). Since...

Hello everyone, well the good news is that the consultant at the Acute Emergency...

PMRMiltonkeynes

•9 years ago

4 Replies

Seeing consultant this afternoon for CT scan results

If it is PMR what questions should I be asking please? Seeing the consultant at 2pm and my GP at 4.10pm. Thank you all :)

If it is PMR what questions should I be asking please? Seeing the consultant at...

PMRMiltonkeynes

•9 years ago

11 Replies

~Sleep Apnoea diagnosis & PMR~

Am aware that prior to heart surgery 20 or so years ago (maternal genetic defect) that I may have experienced a form of sleep apnoea a few times as would awake...

Am aware that prior to heart surgery 20 or so years ago (maternal genetic defect...

Megams

•9 years ago

9 Replies

cold feeling in pelvic area

On 15mg and go to see GP next week to review. Diagnosed PMR 4 weeks ago. I have had a cold/slightly burning feeling in my pelvic area for the past week.The...

On 15mg and go to see GP next week to review. Diagnosed PMR 4 weeks ago. I have...

cassie1208

•9 years ago

10 Replies

Barium meal results

Hi I'm very anxious about barium meal results. Has anyone had similar results? Apparently my stomach doesn't look normal! There are lots of gaps where the...

Hi I'm very anxious about barium meal results. Has anyone had similar results? A...

heli13

•9 years ago

4 Replies

getting down steroids

I am slowly getting down the steroids for the second time I might add, I am down to 6mg. trouble is over the 5 years and two sessions of PMR and steroids my...

I am slowly getting down the steroids for the second time I might add, I am down...

kingharold11

•9 years ago

4 Replies

CT Scan Tomorrow

12 days ago I got sent by my GP straight to the Acute Emergency unit at my local hospital after I had suggested (after being ill for 7 months) that I may have...

12 days ago I got sent by my GP straight to the Acute Emergency unit at my local...

PMRMiltonkeynes

•9 years ago

9 Replies

The 10/9mg barrier!

I seem to be having more problems at the 10/9mg mark than I had on the larger doses of pred when I was first diagnosed last December. I tapered down from 30mg...

I seem to be having more problems at the 10/9mg mark than I had on the larger do...

Charlie1boy

•9 years ago

7 Replies

Any problems with Flu Vac?

I thought I was doing really well, stable on 9mg, finally got my boot off after the partial tear to my achilles tendon and getting a bit more mobile again,...

I thought I was doing really well, stable on 9mg, finally got my boot off aft...

sealine30

•9 years ago

14 Replies

Zoledronic infusion

Has anyone had a one-off Zoledronic infusion to help with bone density! If so, what were the side-effects?

Has anyone had a one-off Zoledronic infusion to help with bone density! If so, w...

Rachael17

•9 years ago

15 Replies

Reversing osteoporosis - progress

Some of the reading I am doing indicates that some of the same things that cause osteoporosis can also cause inflammation, which in turn increases bone loss....

Some of the reading I am doing indicates that some of the same things that cause...

HeronNS

•9 years ago

9 Replies

PMR awareness

There are "awareness" days for virtually everything. How about a PMR Awareness Day? How many of us had ever heard of this ailment before we were diagnosed...

There are "awareness" days for virtually everything. How about a PMR Awareness ...

HeronNS

•9 years ago

25 Replies

Blood tests not pointing to any condition

Hi, Iv just recieved my latest blood results which were ANA C3 and C4 and ANCA, they all came back negative and within range. I also got telephone cann from...

Hi, Iv just recieved my latest blood results which were ANA C3 and C4 and ANCA, ...

yorkshiregirl44

•9 years ago

3 Replies

Nerve conduction test

My rheumy had me go for a nerve conduction test because I was telling him I had what felt like "vibrations" in my hands when at rest. Results were that I have...

My rheumy had me go for a nerve conduction test because I was telling him I had ...

Reneej

•9 years ago

4 Replies

Good visit to rheumatologist

Hi just thought I'd share. . Diagnosed 5 weeks ago and put on 20mg which was amazingly good overnight pains dissappeared.. got quickly down to 15 then 12.5 and...

Hi just thought I'd share. . Diagnosed 5 weeks ago and put on 20mg which was ama...

Adnamaxx

•9 years ago

8 Replies

Vitamin D confusion

Hi all At a recent appointment with the practice nurse for a blood test, I asked if she could find the result of my Vitamin d level in my records. She could...

Hi all At a recent appointment with the practice nurse for a blood test, I asked...

linda49

•9 years ago

17 Replies

Dexa scan refusal

Hi, just joined this very informative site, what a godsend! I was diagnosed in July 2015, 15mg pred was like heaven after sudden, disconcerting onset of PMR -...

Hi, just joined this very informative site, what a godsend! I was diagnosed in J...

Slowdown

•9 years ago

41 Replies

Temporal Artery Biopsy

Hi, Following my first Rheumatologist appointment yesterday, i am being sent for a temporal artery biopsy on Monday. I forgot to ask some practical questions...

Hi, Following my first Rheumatologist appointment yesterday, i am being sent for...

Hidden

•9 years ago

12 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2015

Minor issue?

reducing steroids

A couple of GCA Niggles

Generic Prednisolone

Stress and PMR

GP visit

Rheumy appointment

Pred reduction

GCA /0pred

Hastings Meet-up

Leg pain

Low level light therapy - report from a guinea pig

Feedback on my CT Scan Today & Diagnosis (Advice Please)

Seeing consultant this afternoon for CT scan results

~Sleep Apnoea diagnosis & PMR~

cold feeling in pelvic area

Barium meal results

getting down steroids

CT Scan Tomorrow

The 10/9mg barrier!

Any problems with Flu Vac?

Zoledronic infusion

Reversing osteoporosis - progress

PMR awareness

Blood tests not pointing to any condition

Nerve conduction test

Good visit to rheumatologist

Vitamin D confusion

Dexa scan refusal

Temporal Artery Biopsy

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