Got to see rheumy this evening, he said i dont have PMR and he would not have prescribed steroids for me. He also said i have no inflammatory condiiton and put my symptoms down to chronic fatigue syndrome and wide spread pain condition.
I asked about my raised esr and he was not concerned saying that many people as they get older have a raised esr with no underlying condition.
Not having PMR is good news but living with these symptoms is not.
He is going to leave the my file open for twelve months and within that time when i have swelling of joints or a flare of symptoms he is going to arrange for me to have an untrasound scan of them.
My daughter thinks we should ask for a referral to chapel allerton, i am unsure as i dont think at the moment i can face another appointment and maybe i should just accept the CFS diagnosis which is not new yet some of my symptoms and raised esr are new.