Hi, just joined this very informative site, what a godsend!
I was diagnosed in July 2015, 15mg pred was like heaven after sudden, disconcerting onset of PMR - all my fatigue and aches and pains vanished. I've gradually reduced and am now on 8mg which I'll give a week to settle in although I now don't feel so very euphoric!
After reading lots of posts on this site I've decided to ditch the Alendronic Acid, it makes me feel sick and generally horrible: I was never advised to have a Dexa scan on diagnosis and on phoning GP today was told the NHS 'did not offer' this in my area unless/until I fall over and break something.... ?? GP recommended Risendronate as a substitute for AA so off I go to research this. Also refused Vit.D blood test on NHS, so I will pay for this privately although it is the same bit of blood that is being tested for inflammation markers!. I just want to investigate all possibilities and be pro-active.
Thank you to all who post here with their stories/hints and tips/personal experiences and advice - mostly it's a very comforting thought that this unseen community knows EXACTLY what it's like to deal with this unnerving condition - wishing everyone well, with some laughs along the way.