I have PMR and am down to 8 mg prednisolone from 15 over 10 months. The last three reductions I have managed using the dead slow method.
My initial problem was 90% in my arms and shoulders and now I have nothing there except an occasional gentle reminder. My problem now is my legs - I did raise this on the forum a while ago but it is getting worse. After being on my feet for a while I get tingling in the front of my thighs which progresses through cold and numbness to a burning pain. It will go off if I rest a while but I'm beginning to sometimes get it when I'm at rest. This is limiting my exercise and depressing me no end. I don't think it feels like claudication and my calves are fine.
When I spoke to my GP and rheumatologist the response was - well I don't know what that is. My osteo thinks it's nerve pressure I was already 2stone over my ideal weight and now have put on another half stone so I'm wondering if this could be causing it.
Has anyone else experienced this? Is it PMR or prednisolone? Any views or advice would be so welcome.
I read the posts every day over my morning cuppa - it's a lifesavers. Thank you everyone.