Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2015

PMR & Fatigue

Hi all, I've had PMR since last December and been on Pred for about 5 or 6 months now. Started off on 15mg and have been on 9mg for past 8/9 weeks. I still...

Hi all, I've had PMR since last December and been on Pred for about 5 or 6 month...

David_H

•9 years ago

43 Replies

PMR?

chockybuttons Hi, I was diagnosed with GCA in January this year, I am currently on 10mg daily. About 3 years ago I was experiencing very bad cramp pains in my...

chockybuttons Hi, I was diagnosed with GCA in January this year, I am currently ...

chockybuttons

•9 years ago

9 Replies

forgotten preds.

Well I took 20mg last night instead of 30 and I am still alive, ha ha. I have taken so long to get down to 30mg I didn't want to take more than I had to. I...

Well I took 20mg last night instead of 30 and I am still alive, ha ha. I have ...

Lilymaerose

•9 years ago

2 Replies

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Forgot to take preds

just realised at 10.20 pm I didn't take my steroids which I normally take 8 am, not been feeling good all day and have got headache and eye pain with a...

just realised at 10.20 pm I didn't take my steroids which I normally take 8 am, ...

Lilymaerose

•9 years ago

6 Replies

Shopping day

Spent s great day in Chester with daughter who has RA and grandchildren . Had to plan well daughter drove just over 1 hour,used park and ride went for coffee...

Spent s great day in Chester with daughter who has RA and grandchildren . Had to...

olive2709

•9 years ago

2 Replies

Cannot focus

He starts projects but never finishes any one else doing this?

Skrtjg

•9 years ago

5 Replies

1.43 L cortisol level found 3pm

Hi Everyone, I hope all are somewhat well and surviving these "rare" inflammations. Have been working on civil rights issues, trying to arrange hip replacement...

Hi Everyone, I hope all are somewhat well and surviving these "rare" inflammatio...

Whittlesey

•9 years ago

8 Replies

Sleeping

Hi I have just been diagnosed with per and currently on 15 prednisolone , has anyone else had problems with sleeping too much ie; I am not hearing alarm on...

Hi I have just been diagnosed with per and currently on 15 prednisolone , has an...

Sandra1959

•9 years ago

18 Replies

PMR & GCA Remission?

Can I ask if anyone has heard of PMR & GCA going away on it's own without treatment? If not, how long could you be in remission for?

Can I ask if anyone has heard of PMR & GCA going away on it's own without treat...

Theresah

•9 years ago

18 Replies

Reducing and pain

I am down to 4.5 pred I have GCA and Polymyalgia. My rheumy has been having me reduce by half every three weeks. I now get quite bad pain in shoulders hips...

I am down to 4.5 pred I have GCA and Polymyalgia. My rheumy has been having me r...

Freeman12

•9 years ago

10 Replies

Alendronic acid, again

I started taking AA two weeks ago after my dexa scan showed I had osteopenia. It coincided with me reducing predisolone from 15 to 13. I haven't had a problem...

I started taking AA two weeks ago after my dexa scan showed I had osteopenia. It...

DDKRM

•9 years ago

16 Replies

Alendronic Acid

Thank you all for your responses. It seems as with most medications that it affects different people in different ways. I am going to do more research , I wait...

Thank you all for your responses. It seems as with most medications that it affe...

DeliaGray

•9 years ago

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PMR,Prednisolone and Foot Surgery

Hi all Was diagnosed with PMR in January. Had been having a lot of lower back pain off and on for ages but as I used to do a lot of fitness classes just put...

Hi all Was diagnosed with PMR in January. Had been having a lot of lower back p...

dockyardgill

•9 years ago

6 Replies

DVD/ information for families on PMR

I recall reading that there is a DVD available for the families of those of us living with PMR . I have a vague recollection it may have been available on the...

I recall reading that there is a DVD available for the families of those of us ...

magmapearl3

•9 years ago

5 Replies

Preds and Alcohol?

I'm sure this has probably been talked of before on here... but rather than troll through many posts and being a newbie to PMR and steroids, I am a social...

I'm sure this has probably been talked of before on here... but rather than trol...

Hidden

•9 years ago

7 Replies

Manuka Honey Cream

Having been on steroids now for 3 years for PMR I have recently started having trouble on my arms with bits of skin just peeling back leaving them open - as...

Having been on steroids now for 3 years for PMR I have recently started having ...

dodo1

•9 years ago

9 Replies

Alendronic Acid

Here I am again. I hate taking the above drug. I would be interested to hear other people's side effects. I take one pill weekly, and am continually changing...

Here I am again. I hate taking the above drug. I would be interested to hear ot...

DeliaGray

•9 years ago

56 Replies

Eye Tests

Hi there I was diagnosed with GCA in March this year, I know GCA can affect the eyes, luckly I have not been affected in this way but does anyone know if I...

Hi there I was diagnosed with GCA in March this year, I know GCA can affect the ...

notnice

•9 years ago

14 Replies

Alendronic acid

Sorry I have just seen what predictive text has changed Alendronic Acid to in my previous title!

Sorry I have just seen what predictive text has changed Alendronic Acid to in my...

margiebell4

•9 years ago

5 Replies

Ale demonic acid

I had a DEXA scan last week and was told by the lady who did the scan that my bone density was normal but because I am taking prednisolone (I have been on it...

I had a DEXA scan last week and was told by the lady who did the scan that my bo...

margiebell4

•9 years ago

38 Replies

leg pain

hi I am confused i was diagnosed in early March with PMR given 20mg pf pred and it worked like a miracle pill in 6 hrs.(now on 10mgs) My symptoms where...

hi I am confused i was diagnosed in early March with PMR given 20mg pf pred and ...

Kay60

•9 years ago

14 Replies

Whoops, took extra pred by mistake!

Hi, can anyone advise? I take 9mg pred daily in morning and last night by accident, I took another dose instead of another tablet I take in the evening! D'oh....

Hi, can anyone advise? I take 9mg pred daily in morning and last night by accide...

chockybuttons

•9 years ago

12 Replies

shoulder and upper arm soreness

Has anyone tried a muscle rub gel. that seems to help with sore stiff shoulders and muscle pain.

Has anyone tried a muscle rub gel. that seems to help with sore stiff shoulders ...

43086

•9 years ago

16 Replies

What next?/ shingles

I have felt strange the last few days and thought it was the lowering of the prednisone. Last night the pain , in unusual areas became intense and I thought...

I have felt strange the last few days and thought it was the lowering of the pre...

30048

•9 years ago

11 Replies

Long term steroids

Hi all I'd be grateful for any thoughts on my situation. After seeing the same rheumy for 8 years, and feeling she was sympathetic to my VERY slow Pred...

Hi all I'd be grateful for any thoughts on my situation. After seeing the same r...

mk14

•9 years ago

10 Replies

Support group cornwall

Hello all, I understand from PMR/GCA forum on patient website that you're looking for fellow sufferers in Cornwall to start up a support group, count me in!...

Hello all, I understand from PMR/GCA forum on patient website that you're lookin...

tina-shelley

•9 years ago

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Suggestions please

I was on 7mg of Prednisolone for many months and doing quite well. Then following the stress of months of Restless Leg Syndrome and sleep deprivation I...

I was on 7mg of Prednisolone for many months and doing quite well. Then followin...

Soon70

•9 years ago

8 Replies

Continuing jaw claudication

I was diagnosed with GCA 8 weeks ago and am responding well to treatment. All symptoms disappeared within hours of taking medication. My symptoms started with...

I was diagnosed with GCA 8 weeks ago and am responding well to treatment. All s...

allykat

•9 years ago

7 Replies

Risk of Aortic Aneurism

My father died when an undiagnosed aortic aneurism ruptured about a year after he was diagnosed with PMR and started on prednisolone. Now my sister, who...

My father died when an undiagnosed aortic aneurism ruptured about a year after h...

Annodomini

•9 years ago

7 Replies

PMR GCA and Sarcoidosis

I had an acute episode of Sarcoidosis in the 1980s and diagnosed with PMR about 12 months ago with GCA following in January this year. Does anyone no of a link...

I had an acute episode of Sarcoidosis in the 1980s and diagnosed with PMR about ...

BillP101

•9 years ago

4 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2015

PMR & Fatigue

PMR?

forgotten preds.

Forgot to take preds

Shopping day

Cannot focus

1.43 L cortisol level found 3pm

Sleeping

PMR & GCA Remission?

Reducing and pain

Alendronic acid, again

Alendronic Acid

PMR,Prednisolone and Foot Surgery

DVD/ information for families on PMR

Preds and Alcohol?

Manuka Honey Cream

Alendronic Acid

Eye Tests

Alendronic acid

Ale demonic acid

leg pain

Whoops, took extra pred by mistake!

shoulder and upper arm soreness

What next?/ shingles

Long term steroids

Support group cornwall

Suggestions please

Continuing jaw claudication

Risk of Aortic Aneurism

PMR GCA and Sarcoidosis

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