I recall reading that there is a DVD available for the families of those of us living with PMR . I have a vague recollection it may have been available on the PMR forum of the Patient .co. uk site but I can't find it. I'm not a member of that particular forum but thought I'd read on here that was where it was available so I had a look . Does anyone know if it's still available and where I can find it please? Or if it's useful and worth buying? I would like my family to have more of an insight into PMR without me having to go through it with them on an ongoing basis as there's always something new to experience on this journey and I don't want to turn into a PMR bore ! If I was able to say a general " It's just the PMR " from time to time, when necessary, in the knowledge that they have some sort of understanding it would be a huge bonus. I'm going very well really and managing to taper down the Prednisone dose gradually with only the odd minor flare up. I live alone and not close to family geographically so when I do have to drive to visit my children or attend birthdays etc I have to ensure I can plan well in advance and sometimes I know I would be better not attending at all on occasions to manage the fatigue as I also work full time. I feel very embarrassed about having to decline invitations and worry about sounding like a hypochondriac to my family so I thought a DVD might help. Or maybe I'm just over thinking all this and my anxiety levels are all out of kilter due to the PMR /Prednisone !
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