Over the last few months I have been working on a book that puts together, for people with PMR and GCA, what I have learned over the years working with the people involved with PMRGCAuk, and the expert clinicians who are treating patients and researching the causes and courses of these illnesses. It is now almost at the point of publication. The title is 'Polymyalgia Rheumatica and Giant Cell Arteritis: a survival guide'. There are chapters that describe PMR and GCA, what is known about what they are, what the causes are, diagnosis and treatment; on living with PMR and GCA; the road to recovery, and what support is available; and how PMR and GCA are currently being researched, and prospects for future research, as well as the campaign to raise awareness to prevent sight loss.
The proceeds for the publication will go to PMRGCAuk. The book is around 40,000 words long, which we think will come out at about 150 pages in the printed format. We need to do a bit of market research to find out how many copies of this book it would be a good idea to print, and how many people might be more interested in downloading it, say from Amazon, as an e-book.
We have put a poll up and it would be really helpful if you could respond to it please and help us with this vital information. Please check the answers on the poll that you agree with. healthunlocked.com/pmrgcauk...
Kate and Sophy, PMRGCAuk