Has this ever happened to anyone: I’m going... - PBC Foundation

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Has this ever happened to anyone

Arlie profile image
11 Replies

I’m going to my liver specialist tomorrow . First time in many years i’m somewhat concerned, my bili is up to 2.2 , Albumin low , potassium was low but got that back in range , ammonia slightly elevated but slowly coming down, a few more levels are not in range , but I feel ok

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Arlie profile image
Arlie
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11 Replies
4pjx__ profile image
4pjx__

When I started Urso about a year ago my billirubin went down and then up and then down again....still not in normal range. So that can fluctuate and I think it could be your body getting used to the new medication. Also my ammonia was a little high now, last check, it's normal. My GI always checks for it my hep never does unless you are having issues. So, there's that. I just think they can go up or down for whatever reason...could be diet, stress or almost anything else. Just gon on believing you'll be okay.

Pam

Arlie profile image
Arlie in reply to4pjx__

Thanks so much , but i’ve been on urso since I found out I have PBC in 1990

Michiganpbc profile image
Michiganpbc in reply toArlie

Curious if you have progreesed at all in all those years or got diagnosed with other diseases particularly autoimmune?

Arlie profile image
Arlie in reply toMichiganpbc

Hi , i’m holding my own with the PBC , right now having some blood changes, i was diagnosed with Scleroderma and I have Psoriasis

Michiganpbc profile image
Michiganpbc in reply toArlie

Did those 2 diagnosis come after the PBC diagnosis?

Arlie profile image
Arlie in reply toMichiganpbc

Scleroderma about less than a year Psoriasis quite a few years

Michiganpbc profile image
Michiganpbc in reply toArlie

Thanks i have lots of symptoms of lupus but because the lupus markers in a blood test are negative he wont diagnose me with it, i will get a second opinion later as i have a high ana titer and every symptom of lupus on the lupus symptoms list....

Arlie profile image
Arlie in reply toMichiganpbc

Mich , symptoms of lupus are deceiving, my sister and sisterinlaw have lupus , the ana and ama can fluctuate with pbc therefore you cant be positive of blood tests

Michiganpbc profile image
Michiganpbc in reply toArlie

That’s why I want the second opinion , from what I read on lupus u can b blood test negatively on lupus markers and still have the disease that they use symptoms more now with positive high ANA and I have every symptom listed except lupus blood test ....

Arlie profile image
Arlie in reply toMichiganpbc

Exactly

VeeWat profile image
VeeWat in reply toArlie

Can the ama go from positive to negative?

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