Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for May 2018

Can you highlight your hair if diagnosed with aih/pbc overlap?

I am wanting to have my hair highlighted for my forthcoming holiday. I take budesonide 6mg and 50mg as a and 1000ml urso a day. Is it safe?

I am wanting to have my hair highlighted for my forthcoming holiday. I take bud...

Briggo

•6 years ago

12 Replies

Feeling low

I'm trying very hard to keep up beat.but have overwhelming lows. I don't sleep in the day but I have to sit and rest after doing the smallest of jobs around...

I'm trying very hard to keep up beat.but have overwhelming lows. I don't sleep i...

246810

•6 years ago

11 Replies

Pbc post transplant

Hi, this is my first post, I had a transplant for PBC in 2010. Things went reasonably well. Almost 8 years later I have been diagnosed with recurrent PBC. It...

Hi, this is my first post, I had a transplant for PBC in 2010. Things went reaso...

Dotyy

•6 years ago

23 Replies

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How do I change my heading

I want to change my heading - prednisone doesn't get enough answers

Mulvaney

•6 years ago

3 Replies

Motions

Does anyone have clay coloured motions as does not seem right to me.

hotdog

•6 years ago

3 Replies

Awaiting Diagnosis

Hi, I am a newbie here. I am currently having numerous tests for autoimmune disease. My consultant wrote to me saying possible connective tissue disease...

Hi, I am a newbie here. I am currently having numerous tests for autoimmune dise...

Tallulah73

•6 years ago

5 Replies

Ultrasound and Fibroscan results

Can anyone help explain what the following means please: Ultrasound - liver parenchyma is finely heterogenous throughout (is that good or bad?) Fibroscan - LSM...

Can anyone help explain what the following means please: Ultrasound - liver pare...

AdeleMalcolm

•6 years ago

3 Replies

Young PBC New Diagnosis

Hi everyone, So I recently have been diagnosed with PBC, but I am only 19 years old. I don't really know much about PBC so please let me know if you have any...

Hi everyone, So I recently have been diagnosed with PBC, but I am only 19 years ...

selinihun

•6 years ago

32 Replies

Fasting and PBC

Hi everyone, I’m new to this forum, and I love all the helpful information I read here. I wish you all well. I have a lot of questions, but I’ll start with...

Hi everyone, I’m new to this forum, and I love all the helpful information I rea...

ZEMR

•6 years ago

16 Replies

PBC Meeting - Chicago Area

To all PBCers in the Chicago land area!! Please sign up for our summer PBC Program: Saturday, June 23, 2018 10:30 AM – 1:00 PM Marriott Suites Downers Grove,...

To all PBCers in the Chicago land area!! Please sign up for our summer PBC Progr...

Lisa1150

•6 years ago

2 Replies

Blood donation

Hi everyone, am I right in thinking we are no longer able to donate blood? X

Gillian61

•6 years ago

3 Replies

Allergic

I have always beemn alergic to bites. Now though its more is that from the Auto Immune?

I have always beemn alergic to bites. Now though its more is that from the Auto ...

My-life

•6 years ago

13 Replies

Ibuprofen

Hi...I have PBC and take urso...but have just developed tendonitis in my ankle and my gp recommended ibuprofen but I’m sure I read that you shouldn’t take...

Hi...I have PBC and take urso...but have just developed tendonitis in my ankle a...

Jnuttall

•6 years ago

25 Replies

Nausea

Had pbc for a year now with normal labs since urso bit lately the nausea is getting so much worse and the itching is coming back..... does this happen even if...

Had pbc for a year now with normal labs since urso bit lately the nausea is gett...

Pamela4475

•6 years ago

15 Replies

Worried

About 2 weeks ago I felt so much better . Clear of any infections for about 8 weeks . So I spent 2 lovely days doing jobs in the garden. On the 2 day in the...

About 2 weeks ago I felt so much better . Clear of any infections for about 8 we...

246810

•6 years ago

5 Replies

New diagnosis; itching not improving

Hello, I started having severe nighttime itching in Oct 2016. Spent a year trying steroids, allergy meds and getting allergy tests which were negative. Liver...

Hello, I started having severe nighttime itching in Oct 2016. Spent a year tryin...

55mimi

•6 years ago

15 Replies

Pbc/Aih

Went to see my consultant and now need a bone test for a diagnosis. He said i may need to see another consultant if i have osteophrosis. I was really fed up as...

Went to see my consultant and now need a bone test for a diagnosis. He said i ma...

janine541

•6 years ago

14 Replies

Repeat LFT after 6 weeks of waiting

Hello everyone I’m back! I had my repeat LFT last tuesday. 6 weeks ago LFT came back with ALT slightly elevated 62 need to wait for 6 weeks to repeat...

Hello everyone I’m back! I had my repeat LFT last tuesday. 6 weeks ago LFT came ...

Mariandy

•6 years ago

3 Replies

Hair Loss

Hello Was wondering if anyone else has experienced hair loss, I was diagnosed with PBC last August and AIH in October, also have osteopenia. I lost over a...

Hello Was wondering if anyone else has experienced hair loss, I was diagnosed w...

LucyH16

•6 years ago

13 Replies

Link to LIVErNORTH video best video I’ve seen to explain pbc

https://youtu.be/UO83trYU_3k

Aussielouise

•6 years ago

3 Replies

Insomnia after fatigue

I have been fighting some insomnia at night recently. I will be so tired and ready for bed but once in bed I will either fall asleep and wake up wide awake a...

I have been fighting some insomnia at night recently. I will be so tired and rea...

Mellynelise17

•6 years ago

18 Replies

Pbc/Aih

Well i see my consultant on thursday. So carnt wait. Tryed some vitamins including vitamin d. I have had nothing but pain in my feet and legs and have no...

Well i see my consultant on thursday. So carnt wait. Tryed some vitamins includi...

janine541

•6 years ago

12 Replies

Need more advice

So I've posted before I've been told that I have a fatty liver but nothing has ever been done. Now I have high copper and high ceruloplasmin and I just talked...

So I've posted before I've been told that I have a fatty liver but nothing has ...

Hidden

•6 years ago

6 Replies

Stages of PBC-Prognosis-Next Steps?

My wife has had Fibromyalgia, Sjogren's and Reynauds for about 12 years. Apparently she contracted these autoimmune conditions after undergoing routine...

My wife has had Fibromyalgia, Sjogren's and Reynauds for about 12 years. Appar...

Hidden

•6 years ago

21 Replies

Xanthelasma and PBC

Anyone else have Xanthelasma around their eyes? I had noticed these develop last summer out of nowhere (pre diagnosis) and my cholesterol levels are perfect....

Anyone else have Xanthelasma around their eyes? I had noticed these develop last...

Mellynelise17

•6 years ago

8 Replies

Nutrition and PBC

Hello, I am a 38 year old Mother of one from Ontario, Canada. I am currently under investigation for PBC and was recently in the ER with sever back and abdo...

Hello, I am a 38 year old Mother of one from Ontario, Canada. I am currently und...

Mellynelise17

•6 years ago

6 Replies

Itch Relief

I just discovered this site today. I have PBC. I have many of the symptoms listed by others including itchy ears which I had no idea were part of the...

I just discovered this site today. I have PBC. I have many of the symptoms lis...

Mulvaney

•6 years ago

15 Replies

Questions for consultant

Hi everyone. I finally have a consultant appointment at Pinderfields and wondered what questions to ask seeing as it's almost 2 years since I have seen anyone...

Hi everyone. I finally have a consultant appointment at Pinderfields and wondere...

Alley27

•6 years ago

4 Replies

Difficulty swallowing tablets

I’m finding it really hard to keep down the urso tablets. I take them with lots of water but they seem to be getting stuck and once the plastic coating is...

I’m finding it really hard to keep down the urso tablets. I take them with lots ...

Elaineqs

•6 years ago

28 Replies

Question

Has any one experienced a lot of infections in the early stages of pbc Chest , urine , tummy , thank you for reading

Has any one experienced a lot of infections in the early stages of pbc Chest , u...

246810

•6 years ago

12 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for May 2018

Can you highlight your hair if diagnosed with aih/pbc overlap?

Feeling low

Pbc post transplant

How do I change my heading

Motions

Awaiting Diagnosis

Ultrasound and Fibroscan results

Young PBC New Diagnosis

Fasting and PBC

PBC Meeting - Chicago Area

Blood donation

Allergic

Ibuprofen

Nausea

Worried

New diagnosis; itching not improving

Pbc/Aih

Repeat LFT after 6 weeks of waiting

Hair Loss

Link to LIVErNORTH video best video I’ve seen to explain pbc

Insomnia after fatigue

Pbc/Aih

Need more advice

Stages of PBC-Prognosis-Next Steps?

Xanthelasma and PBC

Nutrition and PBC

Itch Relief

Questions for consultant

Difficulty swallowing tablets

Question

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