Difficulty swallowing tablets: I’m finding it... - PBC Foundation

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Difficulty swallowing tablets

Elaineqs profile image
28 Replies

I’m finding it really hard to keep down the urso tablets. I take them with lots of water but they seem to be getting stuck and once the plastic coating is dissolved, the powder is coming back up and out of my mouth. Anyone have any suggestions to stop this?

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Elaineqs profile image
Elaineqs
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28 Replies
Alley27 profile image
Alley27

Hi Elaineqs...the urso tablets stick with me as well I just eat a banana or a piece of bread or rich tea biscuit afterwards with a large glug of water to rinse it down. It usually helps. But yes I agree they could be made smaller. I am not sure but I think I read somewhere that you can get urso in liquid form..I will research this for myself as well...

Elaineqs profile image
Elaineqs in reply to Alley27

Thanks, it really is a pain. My kids think it is hilarious when I breathe put white smoke though

in reply to Elaineqs

dragons

Alley27 profile image
Alley27 in reply to Alley27

Hi I went to see consultant on 17th and besides a very thorough appointment he gave me ursofalk liquid suspension. I have been taking it for a week now and it's really not too bad tastes lemony but has bitter after taste which settled down if you have a sip of milk or something to nibble on , apples work well. X

Alley27 profile image
Alley27

I just found this it may be a solution but we need to look a bit further. I know I am going to ask for this on 17th when I get to see consultant.

Ursofalk 250mg/5ml Suspension - Summary of Product Characteristics ...

medicines.org.uk/emc/produc...

5ml (= 1 cup) of Ursofalk Suspension contains 250mg of ursodeoxycholic acid (UDCA) as the active ingredient. The suspension also contains ..... Code: A05AA02 and A05B. UDCA is a bile acid which effects a reduction in cholesterol in biliary fluid primarily by dispersing the cholesterol and forming a liquid-crystal phase.

Elaineqs profile image
Elaineqs in reply to Alley27

I’m going to ask my doctor at my next appointment for this. Sounds like it’s my best option. Oh the joys of this. It just keeps on giving.

ninjagirlwebb profile image
ninjagirlwebb

They are also available in capsules.

Elaineqs profile image
Elaineqs in reply to ninjagirlwebb

Thanks girls. I really appreciate you getting back to me as I’m only new to all this. I’ve tried taking them at the one time, but it’s worse then so I’m back to taking them at different times. I

FranSP profile image
FranSP in reply to ninjagirlwebb

I too have some difficulty with swallowing tablets. Thanks to your post, I asked my liver MD to prescribe my URSO in capsule form. She wasn’t aware of that option. She indeed was able to get them for me.

Thanks again Ninjagirl

ninjagirlwebb profile image
ninjagirlwebb in reply to FranSP

Happy you were able to resolve the issue.

Ballymahon2 profile image
Ballymahon2

I take the capsules and have no problem i find capsules easy to swallow

Elaineqs profile image
Elaineqs in reply to Ballymahon2

Thanks Ballymahon,

I believe you might be in my neck of the woods in Ireland.

One of the conditions I have associated with pbc is sicca/ Sjögren’s syndrome is affecting my saliva production and I have chronic dry mouth and constant sinus infections, resulting in lots of mucus, so the tablets are getting stuck. Sorry for the gory details.

I have taken Allie27’s suggestions on eating something after and that seems to work thankfully.

Hope you are doing well. What hospital are you attending treatment?

Ballymahon2 profile image
Ballymahon2 in reply to Elaineqs

I sent you a private message

i thought i was the only one with this its awful mine does same but also comes down my nose it burns like mad wen this happens it reminds me of people snorting crack cocaine lol (obv only seen on tv) i don t know what the answer is but its only now and then i was thinking u get a cheap batch coating thinner but they do make u heave u can get in liquid form but not sure gps would agree to amount they would have to give cost wise if u solve the prob or any one else please post good luck

Elaineqs profile image
Elaineqs in reply to

I don’t know but I feel better knowing I’m not alone in this battle. It’s good to share our problems, and the suggestions have been great. I hope you are feeling well and not too sick with this

Elaineqs profile image
Elaineqs in reply to Elaineqs

I love your crack cocaine quote. It made me laugh out load. I see you have a twisted sense of humour when it comes to the downsides of this disease just like me😂😂

in reply to Elaineqs

i have to otherwise i will go crazy lol hope u ok as well

SuziS profile image
SuziS

I have the liquid form of it

Elaineqs profile image
Elaineqs in reply to SuziS

Is the liquid easy to take or is there a funny taste to it? I have a terrible gag reflex to some tastes🤮😂

Elaineqs profile image
Elaineqs in reply to SuziS

Is the liquid easy to take or is there a funny taste to it? I have a terrible gag reflex to some tastes🤮😂

Debbiem40 profile image
Debbiem40

This happens to me!!! I hate taking the tablets, I take them all together last thing at night and very often gag and bring up my fourth one!!!

Elaineqs profile image
Elaineqs in reply to Debbiem40

God Debbie that sound gross and I totally get you, as I only have three to take and now have to take them separately to keep them down. Taking food after them to push them down is working. You should try it. Let’s battle on and hope things don’t get much worse😉

shebalion profile image
shebalion

I have this problem ocassionally. I try to make sure they are lengthways going down rather than sideways, not sure if method in the madness but appears to work generally...

Elaineqs profile image
Elaineqs in reply to shebalion

Yeah, I’ve had a few change direction on the way down. Very painful 😝. I believe you are from Ireland. I’m just outside of Dublin. What part of Australia are you in? How long have you been there?

shebalion profile image
shebalion in reply to Elaineqs

Hi Elaineqs, yes I am Irish, I'm from Waterford, but prior to moving to OZ 7 yrs ago I lived in Kildare. I'm in South Australia.....we moved when there was an exodus in 2011, love it here, still love Ireland and miss family but love our lives here, no regrets thankfully...

SuziS profile image
SuziS

Ladies just have something strong tasting to immediately swallow.... and hold ur breath while swallowing as this defo helps. It’s not bad so I think you’ll be ok.

Elaineqs profile image
Elaineqs

Sounds delightful 🤪🤪

58goose profile image
58goose

I always take my tablets (2x500mg) with my main meal at night so the food helps to push them down!

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