Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,403 members • 8,050 posts

All posts for February 2018

Night sweats

Hello, I’m now 66, so well through the menopause but still experience incessant night sweats and spend the night throwing my duvet off, then getting chilled...

Hello, I’m now 66, so well through the menopause but still experience incessant...

Wingding

•6 years ago

20 Replies

Grannacat-pbc-ursodoil-liver disease

I was diagnosed with PBC in 2015. I am taking 2 Ursodiol 250 mg twice each day. I was diagnosed by liver biopsy. I see a gastroenterologist once a year and...

I was diagnosed with PBC in 2015. I am taking 2 Ursodiol 250 mg twice each day....

Grannacat

•6 years ago

26 Replies

Biopsy results

I just seen my biopsy from Mayo Clinic. It is 10 months old. It says that two of eight portal tracts show loss of bile ducts and four portal tracts have...

I just seen my biopsy from Mayo Clinic. It is 10 months old. It says that two o...

Hidden

•6 years ago

10 Replies

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Biopsy results

Finally got to see hep dr for liver biopsy results , it confirmed pbc but also found autoimmune hepatitis and signs of fibrosis. Dr has upped urso to correct...

Finally got to see hep dr for liver biopsy results , it confirmed pbc but also f...

Louisethew

•6 years ago

11 Replies

GGT AND ALK PHOS INCREASING

I had an ablation in mid January and was then put on a beta blocker plus flecanide and zarelto. My LFT's 10 days later had gone up. For the past 10 years my...

I had an ablation in mid January and was then put on a beta blocker plus flecani...

Gwelos

•6 years ago

5 Replies

Liver biospy

Had a guided liver biopsy at Scripps Memorial La Jolla 2/7/18. Absolutely 0 pain, during or after.

Had a guided liver biopsy at Scripps Memorial La Jolla 2/7/18. Absolutely 0 pain...

Baja123

•6 years ago

1 Reply

Lost last post! Help wanted over grade 1 ascites please 1 v

I have been told I have ascites.. not much fluid but still very worried..I have had cirrhosis for three years and had a bleed..varises have been banded and...

I have been told I have ascites.. not much fluid but still very worried..I have ...

bobbycat

•6 years ago

5 Replies

Recently diagnosed with PBC and AHI

First, I want to apologize for this being so long. I am new to the site. I am 52 and live in Denver, CO. For the last 8 weeks, I have been having dizzy spells....

First, I want to apologize for this being so long. I am new to the site. I am 52...

Bobsitz

•6 years ago

68 Replies

Elevated Enzymes

If our enzymes and bilirubin are in range can we still have itching. I have prickly skin but nothing like what my liver family is describing. I get itchy...

If our enzymes and bilirubin are in range can we still have itching. I have pri...

Hidden

•6 years ago

12 Replies

Itching driving me crazy

Hi I'm new here so not sure how this works 🤔I have been diagnosed with Pbc right after my pregnancy ( Baby now 9 moths) The itching is driving me crazy.. Is...

Hi I'm new here so not sure how this works 🤔I have been diagnosed with Pbc righ...

Elani1

•6 years ago

31 Replies

PBC/AIH overlap : Prednisolone

Hi, been a member for a while but have never posted. I was diagnosed with PBC in June 2015, was found through raised LFTs after a routine blood test....

Hi, been a member for a while but have never posted. I was diagnosed with PBC in...

SandraS

•6 years ago

27 Replies

Scared

I’ve been diagnosed with AIM and PBC for about 2 years now and it’s stage 3 systematic and now it’s relapsed after about a year of no yellow eyes or itchiness...

I’ve been diagnosed with AIM and PBC for about 2 years now and it’s stage 3 syst...

Sarita75

•6 years ago

13 Replies

Delayed dx of pbc

Around 2000 i flund out i had guerd , hiatus hernia, and acid reflux. I started getting tired way back then. Do you all think i had pbc even then? Always sick...

Around 2000 i flund out i had guerd , hiatus hernia, and acid reflux. I started ...

KevinHall10_

•6 years ago

16 Replies

Endoscopy/H-pylori

Hi everyone, So I had an endoscopy done 2 weeks ago and was told I have no varicies but have H-Pylori in my stomach :( They gave me 2 antibiotics along with...

Hi everyone, So I had an endoscopy done 2 weeks ago and was told I have no varic...

donna01

•6 years ago

17 Replies

Can we blame this on PBC too?!!

Just wondering if I’m alone in this experience: expressway driving and HUGE 18 wheelers causing terror. Prior to PBC, I made the 23 hour drive solo with no...

Just wondering if I’m alone in this experience: expressway driving and HUGE 18 w...

ILik3Pizza

•6 years ago

11 Replies

Lichen planus

Hi I have pbc shrogens disease osteoporosis and arthritis now been diagnosed with lichen planus yet another autoimmune disease my body is full of spots and...

Hi I have pbc shrogens disease osteoporosis and arthritis now been diagnosed w...

sophie666

•6 years ago

7 Replies

Eye swelling

Both eyes swollen on the upper lids. Docs are all certain it is the PBC. Also incredibly short of breath mostly at night. Right eye swelling goes clear back...

Both eyes swollen on the upper lids. Docs are all certain it is the PBC. Also in...

PollyO

•6 years ago

11 Replies

9 years since they first found the M2 antibodies, 16 years since my alk phos started being elevated. My story.

I see so many questions on here about labs and what do they mean. I remember being so afraid when they first started looking at PBC in me. It all started...

I see so many questions on here about labs and what do they mean. I remember be...

Cooper6

•6 years ago

11 Replies

Re:ALF

I might mention that fibroscan is discussed, ALP & direct bilirubin being the main labs they watch in PBC. The lady dr is also very good.

I might mention that fibroscan is discussed, ALP & direct bilirubin being the ma...

gwillistexas

•6 years ago

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Am Liver Foundations Expert Discussion

G’morning. A lady PBCer on the ALF fb group, shared a very interesting round table discussion on you tube last night. It is long but worth your time. Google...

G’morning. A lady PBCer on the ALF fb group, shared a very interesting round tab...

gwillistexas

•6 years ago

16 Replies

HELP AND ADVICE NEEDED PLEASE

I was treated with antibiotics for a uti in November and had normal lfts. 4 days later I went to the hospital with fever arthritis and ruq pain and elevated...

I was treated with antibiotics for a uti in November and had normal lfts. 4 day...

Aprilbalech

•6 years ago

8 Replies

Exhausted And wish I had answers.... I'm new to all of this and would love to hear other similar stories or any advice would be great...

Hi I'm new to all this and this is the first time I've posted anything. Im 50 years old and for the last year and a half I've had tests after tests. They...

Hi I'm new to all this and this is the first time I've posted anything. Im 50 y...

Teri1755

•6 years ago

22 Replies

Slightly enlarged spleen and small ascites found on ultrasound. Is this normal for early stage cirrhosis?

Any advise useful, bitnworried about it. Thank you H

bobbycat

•6 years ago

16 Replies

Travel inoculations

I have just tried to book my hepatitis vaccination as I am going to Cuba in April. Apparently there are no stocks left of this at my doctors or in most places...

I have just tried to book my hepatitis vaccination as I am going to Cuba in Apri...

AmandaSlater

•6 years ago

3 Replies

Ultrasound coming up

Hello everyone, hoping you are doing well. I just began posting here. It was a bit ago. I have been having some elevated liver enzymes and not feeling so good....

Hello everyone, hoping you are doing well. I just began posting here. It was a b...

Tuffymason

•6 years ago

2 Replies

Atrovastine

Hello, all those who have experience with atrovastine because of high cholesterol, can this together with Ursofalk and what does it do for the liver?

Hello, all those who have experience with atrovastine because of high cholestero...

marianne349

•6 years ago

3 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for February 2018

Night sweats

Grannacat-pbc-ursodoil-liver disease

Biopsy results

Biopsy results

GGT AND ALK PHOS INCREASING

Liver biospy

Lost last post! Help wanted over grade 1 ascites please 1 v

Recently diagnosed with PBC and AHI

Elevated Enzymes

Itching driving me crazy

PBC/AIH overlap : Prednisolone

Scared

Delayed dx of pbc

Endoscopy/H-pylori

Can we blame this on PBC too?!!

Lichen planus

Eye swelling

9 years since they first found the M2 antibodies, 16 years since my alk phos started being elevated. My story.

Re:ALF

Am Liver Foundations Expert Discussion

HELP AND ADVICE NEEDED PLEASE

Exhausted And wish I had answers.... I'm new to all of this and would love to hear other similar stories or any advice would be great...

Slightly enlarged spleen and small ascites found on ultrasound. Is this normal for early stage cirrhosis?

Travel inoculations

Ultrasound coming up

Atrovastine

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