Biopsy results

I just seen my biopsy from Mayo Clinic. It is 10 months old.

It says that two of eight portal tracts show loss of bile ducts and four portal tracts have injured bile ducts.

I’m really confused. Does anyone know what this means?

[Ktltel]

That doesn't sound good Jenny. I'd talk with your Mayo doctor Monday. Your labs have been so good though. I don't get it. This disease is so confusing. It is a true emotional rollercoaster ride. 😔

Stella ❤

[Hidden in reply to Ktltel]

Did you have a biopsy

[Ktltel in reply to Hidden]

Yes I did have a biopsy. Over a year ago. But a Fibroscan is better to have. I believe it's more definitive. My biopsy showed mild fatty liver.

I'm having one in April if I can lose some weight. You have to be under a certain BMI.

I've been gaining weight. 😔

Stella ❤

[Hidden in reply to Ktltel]

Do you know what the BMI is? I really believe that I need to just give up and stop trying. I am to giving and care to much. Seriously the hell with everything.

I should of forbid my children to socialize with my shit talking sisters. They talk crap about each other. I moved to Ca to get away from them but had to send to of my children for visits with their mistakes that I made.

I don’t know. I’m not afraid of dying. I don’t know how I survived this long with the trash talkers that I couldn’t get rid of. I am very mad at myself. It’s my fault for caring. Then had to move back to Florida. Right where the crap is. Thank god we moved to central Florida. Hours away from them. But it was to late. The damage was done.

[Hidden in reply to Hidden]

Actually change this to crap talking family. They talk crap about everyone behind their backs. You can choose your friends but you can’t choose your family.

[Ktltel]

Hi Jenny,

I just got home. I'm so sorry. It seems when it rains, it pours. Don't try to go back and fix anything, don't go back in your memory either. Just deal with "now." It's enough to handle.... the now.

Don't give up either. That's not who you are ❤. I'm not saying we all don't feel like that sometimes, it happens. But, then we collect ourselves the best we can and move forward. If there is anything I've learned on this forum it's that this disease can be managed in all stages. Then... maybe, hopefully, it's transplant time. But you are not there. Not at all. Think of our dear Shannon. I know you do. No doubt she's waiting, probably not feeling good either. I know she has a family. All of us have life and family, ups and downs, good things and bad things going on around us... or to us, and all the while, at the same time being sick. It sure doesn't make it easier in any way.

All you can do is the best you can. That's it. Keep taking care of yourself, your family. Once in a while you may have to put Jenny first. Take care of "you." Otherwise the rest won't look to good. You know what I mean? We can't control others, but we can control our response to them. Try to look beyond all the negative stuff right now and focus on you. I know things will balance out. They will.

Private message me if you want.

Stella ❤

[Cyndylouwho]

My heart goes out to you. You have a lot to deal with health wise without the family drama. Don’t give up! Channel your frustration into fighting this disease. As ktltel said put yourself first. Right now it is all about you.

[Ottley3]

Hi Jenny - just checking in to see how you are doing. REgarding your biopsy, did you ask your doctor for a translation. My biopsy confirmed Stage 1 PBC and no overlap but the language in the report referred in a scary way to duct rupture and so forth. Keep us posted and stay strong!

[Hidden in reply to Ottley3]

I was staged last year. I am very sure that it’s safe to say that you don’t have the BS in your life that I have in mine. Are you having any Symptoms yet? I’m pretty sure that I’m starting to get the bitchy pbc itch that so many have. I have an apt with my Dr in April. I may just hold off and ask him them. That is of course if I’m not tossed into a hungry alligator pit first.

[Ottley3 in reply to Hidden]

Sometimes i am tired (aren’t we all?) and i definitely have waves of extreme itchiness. Otherwise i’m feeling good although worrying all the time. Hang in there!