First, I want to apologize for this being so long. I am new to the site. I am 52 and live in Denver, CO. For the last 8 weeks, I have been having dizzy spells. 2 weeks ago, on Thursday January 26th I blacked out and fell. Which caused me to have pain on my right side. I went to my Doctors for a chest x-ray on Friday January 27th. I explained him why I was there and he sent me to the ER. They did a chest x-ray which was negative, they also did a Head CT which was also negative, they were getting ready to send me home and the Dr come in and explained that my liver levels were extremely high and they needed to admit me due to the medication they needed to give me methylprednisolone it had to be administered through a IV. I was getting 1000 mg of every 6 hours. On Saturday the 28th they tested me for PSC and explained if I did have this I would have to go on the liver transplant list. To say me and my husband were a little scared is an understatement. Thank God those tests also come back negative. They continued testing and figured out that I have AHI and PBC along with migraines which is what caused me to black out and fall. They gave me my last 1000 dose on Sunday night the 28th. I woke up on Monday morning the 29th in pain. I asked for pain pills and to see my doctor. I couldn't sit, stand, lay or breath. She was afraid I had a blood clot even though they had been given me shots of heparin. One more test a Chest CT. Good news bad news. No blood glut but I did have 3 fractured ribs. Still a mystery why they didn't show up on my chest x-ray. The high level of steroids was masking my rib pain. So much of my PBC makes since, I have had a crazy itch for the last couple of years usually on the bottom of my feet and the palms of my hands even the inside of my mouth and ears. They day I fell I was out having lunch with my niece, she told my sister my skin looked yellow. I'm always fatigue. My eyes are always dry. I had a cornea transplant 4 years ago. 8 months ago, my eyes were so dry a rubbed it so hard I tore out a stitch. I have been trying to get the inflammation down so that I can have another transplant. it's like my body has been falling apart. You will never know how happy I am to find this group.
These are the test that I had
Jan 26th - Alkaline Phosphatase 2,111, ALT-SGPT 84, Bilirubin, Total 6.6, Bilirubin Direct 5.4, AST-SGOT 200 (hepatic function panel)
Jan 27th - Bilirubin Total 5.4, Alkaline Phosphatase 1,728, ALT-SGPT 76, AST-SGOT 166 (Comprehensive Metabolic Panel)
Jan 28th - Alkaline Phosphatase 1,811, ALT-SGPT 85, Bilirubin, Total 5.5, Bilirubin Direct 4.8, AST-SGOT 148(hepatic function panel)
Jan 29th - Bilirubin Total 4.7, Alkaline Phosphatase 1,573, ALT-SGPT 152, AST-SGOT 310 (Comprehensive Metabolic Panel)
There were a lot of other test but they had to do with my brain and migraines. Still getting use to all the medical terms so I might have missed a test. I can always look for test result if it will help.
I am taking Ursodiol 500 mg twice a day and 60 mg of Prednisone. I see a liver doctor on Feb 27th.