Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for October 2017

Recent PBC Diagnosis - Male

Hi All! Recently diagnosed and from my research of PBC, I am apparently the rarest of the rare- a male diagnosed with PBC and AMA-negative. I am headed to Mayo...

Hi All! Recently diagnosed and from my research of PBC, I am apparently the rare...

windfire777

•7 years ago

12 Replies

Eyes

Well I suppose your supposed to post for help. Can getting the last few days off your chest count as help when you just need to talk to someone else? I've had...

Well I suppose your supposed to post for help. Can getting the last few days off...

teddybear7

•7 years ago

25 Replies

Selenium methionine capsules smell like vitamin b complex .is that normal?

Hi . I bought pure encapsulations selenmethionin tablets . They smell veey strongly. Like a vitamin b tablet smell . I ask because my stool has turned yellow...

Hi . I bought pure encapsulations selenmethionin tablets . They smell veey stro...

poppppy

•7 years ago

10 Replies

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IM BACK AFTER ALMOST A YEAR---Still no answer

AROUND this time last year i was put in the hospital with elevated AST, ALT and Phos and ANA positive.. along with super bad pains and nausea. 3 different...

AROUND this time last year i was put in the hospital with elevated AST, ALT and ...

breeski

•7 years ago

8 Replies

The Right Doctor

Hello, I am seeing a gastroenterologist for my PBC and I do not think they are very experienced with PBC. I was wondering is there a different kind of...

Hello, I am seeing a gastroenterologist for my PBC and I do not think they are ...

mamma261

•7 years ago

11 Replies

Transplant Hepatologist vs. Gastroenterologist

Have recently had my health records transferred to a Transplant Hepatologist group in Tampa as my current GI did not feel the need to try to determine what...

Have recently had my health records transferred to a Transplant Hepatologist gro...

GhostHunter

•7 years ago

2 Replies

Doctor

Hello, All I have been for a doctor at the clinic! Luckily, I'm good at the Ursofalk, so the values have fallen well. I've reported that my fatigue persists...

Hello, All I have been for a doctor at the clinic! Luckily, I'm good at the Urso...

marianne349

•7 years ago

2 Replies

New to PBC

New to PBC sleepy AL the time am 66 years old lost 14 pounds which is good for me would like to get the magazine for more information

New to PBC sleepy AL the time am 66 years old lost 14 pounds which is good for...

wandasimmons350

•7 years ago

1 Reply

New drug octavia

Hi has anyone on here with pbc started this new drug?

debs1004

•7 years ago

15 Replies

Please can anyone explain what the the numbers mean....

Hello I was diagnosed in March after my Dr noticed anomoli in routine blood test. He compared result with another test over 5 years ago and that was same...

Hello I was diagnosed in March after my Dr noticed anomoli in routine blood te...

TOMOLLIE

•7 years ago

6 Replies

Modafinil for fatigue

Hi I've just been reading about a drug called modafinil which I looked up after reading a post on a FB site for people with PBC. This person stated she had...

Hi I've just been reading about a drug called modafinil which I looked up after ...

Heleno

•7 years ago

2 Replies

Arthritis

I have arthritis, hasn’t had much pain with it til recently. Last 2 months. What does anyone take for the pain ? Thanks

I have arthritis, hasn’t had much pain with it til recently. Last 2 months. Wh...

Ohio82

•7 years ago

4 Replies

New Normal...Suggestions Please

Trying to cope with the fact that this is my new normal. Several questions.. does anyone else get a rash with the itching? And I so exhausted and drained of...

Trying to cope with the fact that this is my new normal. Several questions.. do...

lorilee58

•7 years ago

12 Replies

Applying for PIP

Hi there Just wondering if any of you here have applied for PIP recently due to the effects of your PBC? I applied mid August by ringing for a claim form and...

Hi there Just wondering if any of you here have applied for PIP recently due to...

onlyme

•7 years ago

16 Replies

Newly Diagnosed

Hi, I was diagnosed with pbc on Monday and have been started on Ursodeoxycholic acid 1250mg a day,feel a bit scared.

Hi, I was diagnosed with pbc on Monday and have been started on Ursodeoxycholic ...

ETW1

•7 years ago

35 Replies

Primary bilary cirrhosis

Can i get some information on this please

Ballymahon2

•7 years ago

6 Replies

What PBC does to your brain (corrected due to the effects of what PBC does to my brain.....)

....and here is the correct link to the article: " Primary Biliary Cholangitis Alters Functional Connections of the Brain’s Deep Gray Matter "...

....and here is the correct link to the article: " Primary Biliary Cholangitis ...

channelview

•7 years ago

19 Replies

Pbc

I was told by my doctor i have pbc i have been sent for fibroscan I have no symptoms but i am worried

I was told by my doctor i have pbc i have been sent for fibroscan I have no sym...

Ballymahon2

•7 years ago

24 Replies

Struggling to believe PBC is real...

Is there anybody else here from Perth & Kinross area of Scotland? I'm really not coping very well.. Exhausted all the time, can't sleep though,, hot sweats,...

Is there anybody else here from Perth & Kinross area of Scotland? I'm really not...

lennie9215

•7 years ago

10 Replies

Red Eyes

I’ve noticed when I wake in the mornings, my eyes are red. They look like I’ve had no sleep, but it fades away once I get my day going. Anyone else notice...

I’ve noticed when I wake in the mornings, my eyes are red. They look like I’ve h...

gwillistexas

•7 years ago

13 Replies

Red Palms

What stage does red palms appear,mine seem to be showing signs of redness lately,I was diagnosed about two years ago at stage three,wondering if I have...

What stage does red palms appear,mine seem to be showing signs of redness lately...

Mozzamo

•7 years ago

7 Replies

What PBC does to your brain - new research

Hi I don't post very often, but do think everyone should read this. It should be particularly helpful to people whose lives are blighted by fatigue. We...

Hi I don't post very often, but do think everyone should read this. It should...

channelview

•7 years ago

11 Replies

PBC & Lyme

I was bitten by a tick earlier this week and my doctor hasn't prescribed an antibiotic to try to proactively fight off an infection. I was wondering if anyone...

I was bitten by a tick earlier this week and my doctor hasn't prescribed an anti...

DCMurphy

•7 years ago

10 Replies

PBC

I was diagnosed with pbc just over a year ago, after feeling awful for almost 2 years, it hit me like a ton a bricks as my mum died of it in 2001 only last...

I was diagnosed with pbc just over a year ago, after feeling awful for almost 2 ...

Cass1

•7 years ago

5 Replies

Hi advice please .I have yellow stool and unexplained bruising extreme fatigue etc .could I have pbc

Hi sorry to ask you all . And thank you in advance for your consideration and kindness. I have had mustard bright yellow stool since April. Sometimes it's...

Hi sorry to ask you all . And thank you in advance for your consideration and ki...

poppppy

•7 years ago

33 Replies

Has anyone here with liver PBC and additional liver diseases had a gastric bypass?

Hi all, I am looking for other people with PBC that have also had gastric bypass surgery. I am trying to find out what additional information we need to know....

Hi all, I am looking for other people with PBC that have also had gastric bypass...

Q8Cooper

•7 years ago

1 Reply

Pbc angle

I have join the pbc angle in Facebook but I haven't posted anything there..

Sachin1234

•7 years ago

8 Replies

Upper right quadrant pain..

That's my Charlie and Brodie. (Brothers, 7 yrs old) So my mammogram came back good, colonoscopy came back good, last labs were good Alk-phose 138, everything...

That's my Charlie and Brodie. (Brothers, 7 yrs old) So my mammogram came back g...

Ktltel

•7 years ago

33 Replies

Scan results

Got my fibro scan done yesterday. 7.9 were the results. I am relieved. My labs weren't ready so I will get them via mail soon. It appears the URSO is...

Got my fibro scan done yesterday. 7.9 were the results. I am relieved. My labs ...

Nanajo1962

•7 years ago

6 Replies

Pinching, burning feeling like a wasp sting

Jenny - absolutely yes - I get this all of the time in one of my upper legs - strange phenomenom - had a topical pain killer (not pill form, rub it on) from my...

Jenny - absolutely yes - I get this all of the time in one of my upper legs - st...

kehello

•7 years ago

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Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for October 2017

Recent PBC Diagnosis - Male

Eyes

Selenium methionine capsules smell like vitamin b complex .is that normal?

IM BACK AFTER ALMOST A YEAR---Still no answer

The Right Doctor

Transplant Hepatologist vs. Gastroenterologist

Doctor

New to PBC

New drug octavia

Please can anyone explain what the the numbers mean....

Modafinil for fatigue

Arthritis

New Normal...Suggestions Please

Applying for PIP

Newly Diagnosed

Primary bilary cirrhosis

What PBC does to your brain (corrected due to the effects of what PBC does to my brain.....)

Pbc

Struggling to believe PBC is real...

Red Eyes

Red Palms

What PBC does to your brain - new research

PBC & Lyme

PBC

Hi advice please .I have yellow stool and unexplained bruising extreme fatigue etc .could I have pbc

Has anyone here with liver PBC and additional liver diseases had a gastric bypass?

Pbc angle

Upper right quadrant pain..

Scan results

Pinching, burning feeling like a wasp sting

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