New drug octavia

[debs1004]

Hi has anyone on here with pbc started this new drug?

[Ktltel]

Debs1004,

I know there are several on here that are on Ocaliva. Are you in the U.K.? I'm in the U.S. I myself am not on the new drug but didn't want you to become discouraged that no one has posted yet. They will. Here in the states everyone in the UK is 6 hours ahead of me. If I post to late I usually have to wait til the next day to see responses.👍

Are you starting Ocaliva soon or have you already?

Stella ❤

[gwillistexas]

Hello. Yes, I have been on Oclavia little over a month. No problems so far.

[Prettyeyes79]

I’m taking ocaliva for about almost two months. I live in the states, I’m haven’t got black work done yet to see if it help me or not.

I will let you know when I see my dr. Soon

[gwillistexas in reply to Prettyeyes79]

Hope all goes well with you. I’ve had one lab & will have monthly for few months. Ocalvia brought my ALP down 61 points in one month.

[Prettyeyes79]

I mean bloodwork done yet not black work oops

[mamma261]

I have been taking ocaliva for almost a year, started with 5 mg now taking 10 mg tablet , I also take Ursodiol 1200 mg a day

[Wingepr]

I've been on it a month today. I see my doctor on Wednesday to have blood tests done to see how its going.

[gwillistexas in reply to Wingepr]

Let us know

[Wingepr in reply to gwillistexas]

did blood work yesterday!

[Lucky4]

I just started it two weeks ago (Canada). Due to GI side effects that were intolerable I had to decrease from 5 mg in the morning to 5 mg every second day and also start taking Zantac. I also get fatigue from it though I hear that over time this generally decreases. I've taken Urso for years and had no problems with it at all. I'll be getting labs done in about a month. The Oclavia was added as though I'd been responding well to Urso, my labs started getting worse over the past few years.

[wilkat]

Been taking Ocaliva 5mg for 10 months and Ursodiol 900mg,no problem. I am from USA

[gwillistexas in reply to wilkat]

Well, I’ve been spelling it wrong, lol!

[Karaliz]

I have been on OCA for 4 years ( ongoing trial here in Aus) & never had any issues. I stopped responding to Urso after 7 years & have cirrhosis .

Cheers

Karaliz

[gwillistexas in reply to Karaliz]

That’s encouraging. Thank you🌸

[debs1004 in reply to Karaliz]

hi I too have cirrhosis I am on day 5 the itching is intense getting worse