PBC & Lyme : I was bitten by a tick earlier... - PBC Foundation

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PBC & Lyme

DCMurphy profile image
10 Replies

I was bitten by a tick earlier this week and my doctor hasn't prescribed an antibiotic to try to proactively fight off an infection. I was wondering if anyone else has dealt with a tick bite and/or Lyme and how they were treated.

Thanks for any information you can provide.

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DCMurphy
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10 Replies
Sachin1234 profile image
Sachin1234

I was also bitten by a tick couple months ago. I did not have any symptoms so she didn't prescribe any medicine as well.. she told me to keep the tick frozen for a month which I brought with me in case I get flu like symptoms, fever , chill like that

DCMurphy profile image
DCMurphy in reply toSachin1234

Thanks. With it being flu season now and with so many symptoms similar to my PBC issues, I am worried I won't know the difference. I have two friends who were diagnosed late with 2nd & 3rd stage Chronic Lyme. My doctors are divided on taking medicine and I do not want to add this on top of PBC. So Conflicted!

Sachin1234 profile image
Sachin1234 in reply toDCMurphy

I think you can do Lyme test after couple weeks..

butterflyEi profile image
butterflyEi

Hi DCMurphy

The following link is published by the NHS but I thought it quite a well written article that may provide you with some information.

beta.nhs.uk/conditions/lyme...

best wishes

DCMurphy profile image
DCMurphy in reply tobutterflyEi

Thanks. In all the literature they say rash or flu-like symptoms are common, but not always present. It's the fear that I could be infected & not know until it's too late that is causing me to have anxiety. I have been given the antibiotic to combat infection, but it causes gut issues....

butterflyEi profile image
butterflyEi

Hi again DCMurphy

I know that anxiety does not help us and I am not a great believer in taking antibiotics unless truly necessary however if you do decide to take the antibiotic I wonder if taking natural probiotics such as active yoghurt, kefir and sauerkraut which may help to keep your gut flora in tact may be efficacious. It seems you have a conundrum perhaps a further word with your doctor and perhaps a further blood test which I know are not definitive but may be a process of elimination for you. Your Mayo Clinic has quite a good web site have you looked at their site for information? For reassurance however the best person to help you is your doctor who will know you best.

best wishes

DCMurphy profile image
DCMurphy in reply tobutterflyEi

Yes, thanks, I was told to go heavy with probiotics in order to counteract the loss of healthy gut bacteria. My worry is that Lyme tests are often false negatives this early & it's only when a person has their second or third outbreak & the spirochete are out of control that a confirmed dx is made. I don't want to be there before I take action. :(

Sachin1234 profile image
Sachin1234 in reply toDCMurphy

Do the Lyme test ?

kehello profile image
kehello

re PBC - or anything for that matter - and Lyme Disease - - - - wow - - - - you didn't say if you actually were dx'd with Lyme Disease - don't know, but wouldn't that be through blood test? And wouldn't that have to be awful soon you should go to be tested? Shouldn't he/she test you first for Lyme - - - - and then - - - - give you the antibiotic? Never did any research on any of this and would be scared to death. I was latched on to by a tick in my early childhood - doctors actually came to the house (I'm 73 now) back then - one came and took a tweezers and pulled him/her out of my leg - had come from a stray dog I brought home. Hurt like the Devil, but Lyme Disease was NEVER mentioned way, way back then. Maybe it wasn't around. I understand if you get it, your entire body is affected and many times for years. Do be careful - don't wait! Kathleen in Ohio, 73 - PBC Stage 1 in 2001; stage 1 in 2011 - lots of autoimmune stuff going on just like all of us!

DCMurphy profile image
DCMurphy

Thanks. I don't think Lyme was discovered until the last couple of decades & even then very rare. It is at nearly epidemic levels in the rural area that I live and I have a close friend and a family member with chronic debilitating symptoms. To that I say, No Thanks, my PBC & other autoimmune issues are plenty! :-/

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