So, after being diagnosed PBC/AIH overlap syndrome, my GI put me on prednisone (10mg long term) along with the Urso and Atarax. My last blood tests on Monday showed my levels elevated but still dropping. My bilirubin is at 6.9 now.
Saw my PC this morning and asked him if he could see my liver biopsy. He said it does confirm the PBC "moderate activity consistent with PBC." & that is said "chronic hepatitis " but nothing about AIH. My GI had said it was very early but that the AIH was very aggressive. She did not give me a stage when I asked, she said "this is not something you have had for years, the MRCP shows your liver is functioning fine". She said she thought this was brought out by the pregnancy hormones and then more so by the hormone shift after birth.
She called the pathologist who read my biopsy asking him to double check his findings for AIH as she was positive I had both so maybe that is why it is not indicated on the biopsy.
So I ask my PC isn't AIH worse than PBC, like it is tut one most likely to take me out? He said that he could not answer that. He said PBC is a serious diagnosis and that it is very rare so it is usually treated by a specialist not a general GI so he was wondering why I have not been referred on.
Anyway, the moderate activity has me shook. See my uncle also has AIH and when he got lymphoma they thought it could be related to the AIH meds prednisone and Imuran.
I am just.. sad? maybe frustrated? I don't know, it seems like those are conflicting reports from the same biopsy. "Moderate activity" seems further along than my GI indicated initially?
Any thoughts on this? I don't know. I'm just having a rough week so maybe I'm taking it wrong or harder than necessary.