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PBC Foundation

9,391 members • 8,002 posts

All posts for September 2017

Bear facts EASL guidelines

Just received my latest copy and there is a very helpful article on questions to ask your doctor link as...

Just received my latest copy and there is a very helpful article on questions t...

Biddyb

•7 years ago

8 Replies

Ocaliva and side effects

Hi all, URSO isn't working for me as it should. I was diagnosed 2 years ago and my Alk phos results was over 1000. They are now at 299 but still not reducing...

Hi all, URSO isn't working for me as it should. I was diagnosed 2 years ago and...

Fifibee11

•7 years ago

27 Replies

L-Tryptophan

Hi all, I was wondering if anyone had current research information if taking L-Tryptophan is troublesome to your liver. I know it was taken off the market for...

Hi all, I was wondering if anyone had current research information if taking L-T...

Q8Cooper

•7 years ago

3 Replies

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Liver biopsy

Hi . I was diagnosed with pbc just over 3 years ago. I see my consultant once a year, but have my bloods checked Every 6 months. The last few blood tests...

Hi . I was diagnosed with pbc just over 3 years ago. I see my consultant once a...

Carolebroadbent

•7 years ago

11 Replies

Stress, Trauma and PBC

Did any of you go through years of stress because of a traumatic event,etc? I am wondering if there is a correlation between Pbc and trauma.

Did any of you go through years of stress because of a traumatic event,etc? I a...

Ellewoods33

•7 years ago

60 Replies

Cbd oil?

Hi. I have heard today that cbd oil (canabis oil) might be good for pbc. Apparently you can buy it in health food stores. Does anyone know anything about this...

Hi. I have heard today that cbd oil (canabis oil) might be good for pbc. Apparen...

SharonM69

•7 years ago

25 Replies

Urso side effects

Do side effects like cramps, nausea, diarrhea and lightheaded Ness go away with time? Just dx'd and started on Urso

Do side effects like cramps, nausea, diarrhea and lightheaded Ness go away with ...

Birdsong33

•7 years ago

27 Replies

D-dimer

I'm wondering if anyone else has an elevated d-dimer? Mine is over 2500 now, cardiac tests and ultrasound are all negative. My Gastro Dr is stumped and has...

I'm wondering if anyone else has an elevated d-dimer? Mine is over 2500 now, ca...

Jaksgirl

•7 years ago

26 Replies

PBC App Now Available!!

https://www.pbcfoundation.org.uk/existing-members/ Go to the link above and follow the guide. Remeber: 1) It is only Apple iOS so far 2) You MUST be a...

https://www.pbcfoundation.org.uk/existing-members/ Go to the link above and fol...

PBCRobert

Partner•7 years ago

14 Replies

Feeling sick

I am suffering with some disease. Some times i feel so sick and i will fell down instantly. I vl be unconscious

I am suffering with some disease. Some times i feel so sick and i will fell down...

Raj-kum

•7 years ago

1 Reply

Unsure why this happens

Hello I am new to this side of things and do not know if this is right site even. Please can anyone help? Not been to GP yet but does this happen to anyone...

Hello I am new to this side of things and do not know if this is right site even...

completely-zero654

•7 years ago

5 Replies

Newly Diagnosed with PBC

I was diagnosed just 2 months ago with PBC and the news terrified me as I had never heard of this disease before. As my mother is in the final stage of...

I was diagnosed just 2 months ago with PBC and the news terrified me as I had ne...

GhostHunter

•7 years ago

7 Replies

fibro v pbc

hi all i have had pbc 8 yrs urso 1000mgfor last 3 was diagnosed fibro 2 yr back how am isupposed to know whats what in term of sympton last liver con was very...

hi all i have had pbc 8 yrs urso 1000mgfor last 3 was diagnosed fibro 2 yr back ...

Hidden

•7 years ago

15 Replies

Lab results

My latest labs are : IgG= 671, ALT= 79, AST= 71, M2=69. 9 and Alkaline phosphate is 138. I often have a positive ANA but was normal this time. Liver enzymes...

My latest labs are : IgG= 671, ALT= 79, AST= 71, M2=69. 9 and Alkaline phosph...

Krichards1971

•7 years ago

5 Replies

Husband has pbc.....bilirubin rise

Hello, I'm the wife madly in love and bone shaking fear filled of a husband(68yr) with pbc, totally shocked with the diagnosis 4yrs ago, cirrhosis at that...

Hello, I'm the wife madly in love and bone shaking fear filled of a husband(68yr...

Debomo

•7 years ago

9 Replies

10 Weeks post Transplant

Hi all, an update as promised and oh what a rollercoaster its been. Firstly, roughly day 20 after feeling absolutely fine I got a phone call from my...

Hi all, an update as promised and oh what a rollercoaster its been. Firstly, ro...

Bookworm7

•7 years ago

18 Replies

Pain

"One more time to the emergency room, in the long run over on the morphine! that doesn't help either! It is a strong inflammation of the tendons, according to...

"One more time to the emergency room, in the long run over on the morphine! that...

marianne349

•7 years ago

2 Replies

PBC Living App

Well, I'm not sure I'm going to like this app I downloaded. In charting my bilirubin, it wouldn't let me put .20. It just takes the 2. So I very well may get...

Well, I'm not sure I'm going to like this app I downloaded. In charting my bilir...

gwillistexas

•7 years ago

3 Replies

URSO intake Time table

This disease is really surprising, yesterday I was doing great and I had my Urso 2,5 hrs later than I used to and went to bed. At 4:00 am woke up with sickness...

This disease is really surprising, yesterday I was doing great and I had my Urso...

ritarobainapbc

•7 years ago

7 Replies

Me too with shoulder pain!!

Am currently going through diagnosis process. Gastro and GP suspect PBC/AIH due to repeated blood/LFTs. I am still waiting for biopsy (estimated end of...

Am currently going through diagnosis process. Gastro and GP suspect PBC/AIH due...

JaneAnderson1966

•7 years ago

14 Replies

Brain Fog

Good morning everyone! I hope all of you are doing good. I had my liver scan this past week but have not received the results yet. I feel pretty good so far....

Good morning everyone! I hope all of you are doing good. I had my liver scan th...

Krichards1971

•7 years ago

11 Replies

PBC LIVING APP

Hey guys, I just got this on my iPhone. Awesome👍😎

gwillistexas

•7 years ago

4 Replies

Short Lived responder to Urso

I fell I have not been here for ages. I was away on my hols for a fortnight, Granny care has been pretty full on since. My last visit to Addenbrookes confirmed...

I fell I have not been here for ages. I was away on my hols for a fortnight, Gra...

Jo_Br

•7 years ago

8 Replies

Elevated Bilirubin

Did any of you have elevate bilirubin upon diagnosis? If so, do you know the level? What stage were you at diagnosis? I'm just curious about other people's...

Did any of you have elevate bilirubin upon diagnosis? If so, do you know the le...

IAmTheGlue

•7 years ago

12 Replies

Pbc/Aih

Been to see my consultant and we wants to put me on steriods. Before i have to have a fibro scan and bone test. Any body had this

Been to see my consultant and we wants to put me on steriods. Before i have to h...

janine541

•7 years ago

13 Replies

NEW PBC App for Apple Users (iOS)

will be available for free to members of the PBC Foundation from Mon 4th September. It will include: The new compendium: Living with PBC (incorporating the...

will be available for free to members of the PBC Foundation from Mon 4th Septemb...

PBCRobert

Partner•7 years ago

42 Replies

Paracetamol

Can I use paracetamol or diclofinac by Pbc ?I have a terible shoulder pain ,can not move my arm !! Marianne

Can I use paracetamol or diclofinac by Pbc ?I have a terible shoulder pain ,can ...

marianne349

•7 years ago

8 Replies

Global dietary guidelines should be reconsidered in light of these findings!

I've put the last sentence in the Conclusion of a Large study to the Header of this post: Associations of fats and carbohydrate intake with cardiovascular...

I've put the last sentence in the Conclusion of a Large study to the Header of t...

Betonarme

•7 years ago

Be the first to reply

No preservatives added makeup

So what type of personal care products are available. I hate not to have some basic makeup. Foundation, lip color, blush. But don't want to add any burden to...

So what type of personal care products are available. I hate not to have some ba...

Nanajo1962

•7 years ago

14 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for September 2017

Bear facts EASL guidelines

Ocaliva and side effects

L-Tryptophan

Liver biopsy

Stress, Trauma and PBC

Cbd oil?

Urso side effects

D-dimer

PBC App Now Available!!

Feeling sick

Unsure why this happens

Newly Diagnosed with PBC

fibro v pbc

Lab results

Husband has pbc.....bilirubin rise

10 Weeks post Transplant

Pain

PBC Living App

URSO intake Time table

Me too with shoulder pain!!

Brain Fog

PBC LIVING APP

Short Lived responder to Urso

Elevated Bilirubin

Pbc/Aih

NEW PBC App for Apple Users (iOS)

Paracetamol

Global dietary guidelines should be reconsidered in light of these findings!

No preservatives added makeup

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