NEW PBC App for Apple Users (iOS)

[PBCRobert]

will be available for free to members of the PBC Foundation from Mon 4th September.

It will include:

The new compendium: Living with PBC (incorporating the latest med info, self-management info, UK-relevant insurance, benefits and legal information.

Symptom tacker

Mood tracker

Liver Biochemistry tracker

Events diary

News

a section for your notes, reminders, medications alerts/reminders, Q's for clinicians, etc...

ALL FOR FREE.

To any member of the Foundation anywhere in the world.

(Who uses Apple!! The android version will be available mid-late September. Other language options will also be available soon.)

If you haven't already, this is the best reason yet to join the Foundation.

[Kate50]

Hi Robert , looking forward to the new app, just wondering how to get the app, will you be posting a link 👍🏻

[PBCRobert Partner in reply to Kate50]

The app and the link will be announced on our website on Monday.

It will be on iTunes, I believe (I'm not an Apple guy) but you can only find it through the specific link. You will need membership details to open up the app, same as the upcoming android version.

[Kate50 in reply to PBCRobert]

Hi Robert , I joined the pbc foundation about 15 years ago and I do receive the magazine through the post but I can never get on the members section on the website so is this a separate membership that I would have to sign up to ?

[PBCRobert Partner in reply to Kate50]

Have sent you a PM

[Kate50 in reply to PBCRobert]

Thanks got it 👍🏻

[gwillistexas]

Should be in the App Store. Right?

[gwillistexas]

PBC Living is available now

[EileenUSA in reply to gwillistexas]

Is "PBC Living" the same APP that Robert is referring to?

[gwillistexas in reply to EileenUSA]

Looks like it. Allows you to track how you feel, bilirubin, ALP, pruritus, etc. moods, how well you sleep.

[EileenUSA in reply to gwillistexas]

I guess I'm confused because Robert said it wouldn't be available until Sept 4.

[gwillistexas in reply to EileenUSA]

It's available for iPhone in App Store. Free app. Check it out

[gwillistexas in reply to EileenUSA]

Not sure I saw symptom tracker but I'm pleased with what I see

[gwillistexas in reply to EileenUSA]

Also, this app is by Intercept Pharmaceuticals, which is the lab who manufactures Oclavia.

[Wilmahair in reply to EileenUSA]

Just searched it in App store and not there. 😕

[PBCRobert Partner in reply to EileenUSA]

No.

[PBCRobert Partner in reply to gwillistexas]

That app was released by Intercept and (I believe) is USA only.

Our app is accessible through our website, not through the app store directly, and is available without charge to PBC patients anywhere in the world.

[gwillistexas]

It is by Intercept Pharmaceuticals

[Shulsey]

I've tried to join the foundation but for some reason I can't put all of the information required. I live in the States & it's as if there isn't a county that goes with my address. But, I would like to be able to receive the info that people receive when joining. Not sure if Im doing something wrong

[Jo_Br in reply to Shulsey]

I would be inclined to click the nearest for now. It can probably be added to the system as scrolling through I can see some US states and Australian states too. Although after saying this, I cannot see how to edit my details so if you want literature to be posted maybe not a great idea :/ PBCFoundation can you help?

[Shulsey in reply to Jo_Br]

I just want to join for the info to be sent to my home. Not posting it on a international site.

[Jo_Br in reply to Shulsey]

I may have confused you, I do this and its nearly 3 am here (itchfest time) I did mean maybe not a good idea to add just any random county/state if you wanted literature posted to you.

[Jo_Br in reply to Jo_Br]

I tagged PBC so you should get help maybe after the weekend.

[Shulsey in reply to Jo_Br]

Oh my, bless your heart hun 😉. I always seem to forget most of us on this site are at opposite ends of the world. It's almost 9:00 pm here. Anyway, Im known for easily getting confused🙄😆

[Jo_Br in reply to Shulsey]

Its a symptom of PBC (shh don't tell anybody I have been this way for years)

[Shulsey in reply to Jo_Br]

Must be our hair color😂😂😂

[Jo_Br in reply to Shulsey]

Teehee xx

[gwillistexas in reply to Shulsey]

😀

[PBCRobert Partner in reply to Jo_Br]

Jo, you have my number. I'm not the tech guy but give me a call through the week and we'll try to sort it.

[PBCRobert Partner in reply to Shulsey]

contact [e-mail]

He will be able to help. You may just need to send info by email and he can fill it in. Either way, we can sort this easily.

[Shulsey in reply to PBCRobert]

Thank you so much Robert🙂

[PBCRobert Partner in reply to Shulsey]

Have we managed to fix this, yet?

If not, please feel free to PM me and I'll do what I can to help...

[Shulsey in reply to PBCRobert]

I have yet to email Alan, I've been super busy. I'll try to get to it this evening, then get back to you. Thanks so much for checking🙂

[Jo_Br]

Android and waiting patiently!!

[teddybear7]

Not everyone has an iPhone. Us android users are always left behind.

[Kate50 in reply to teddybear7]

The post does say it will be available for android later on in September 😃

[gwillistexas in reply to Kate50]

It looks like a good app. I will download today. There were no reviews as yet, because of it being new app.

[teddybear7 in reply to Kate50]

Yes I had blinker on lol 😀 x

[PBCRobert Partner in reply to teddybear7]

Don't even start... I'm a blackberry user!!!!! lol...

More seriously, teddybear, we are working on android and will get that out asap: I've been told mid sept.

[teddybear7 in reply to PBCRobert]

Thank you x

[Pamela4475]

I can't wait

[Goldsworthyhelen]

What password and user name do you use for app

Tried what thought was mine no good

[PBCRobert Partner in reply to Goldsworthyhelen]

I have sent you a PM.