Me too with shoulder pain!!

Am currently going through diagnosis process. Gastro and GP suspect PBC/AIH due to repeated blood/LFTs. I am still waiting for biopsy (estimated end of Sept). For the last five weeks I have had pain in my upper left arm. Oddly, not really sure where the pain is - I can move my arm but lifting it out and up simultaneously is really painful. I haven't been taking anything for the pain but will probably book in and see my GP if things aren't better in a week.

Thanks for sharing your experiences. I find all the posts quite reassuring at this difficult time.

8 Replies

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  • Hi JaneAnderson1966

    Welcome to the group, you will find lots of help especially at this early stage when knowledge on everything is a bit sketchy.

    One of my big mistakes has been to assume everything that is wrong is PBC related, twice now I have found this not to be the case.

    I think it is very wise of you to book in to see the GP everything takes so long here in the UK. There is not much to be taken with PBC without medical advice, paracetamol is the only recommended pain killer however a little warm treatment may help to ease this pain a little. Do you have a wheat bag or hot water bottle? Use of this type of external treatment can be soothing.

    Let us know how you get on,

    best wishes

  • Hi

    Thanks for your reply. I will make an appointment ASAP but in the meantime will try some of your heat methods and buy in some paracetamol. I don't know about how you felt in the early days of diagnosis but I am finding that I am more aware of really minor niggles in my body (tiny twinges etc.) and constantly worrying that this is the start of deteriorating health due to PBC.

    Thanks for your advice and I hope you are keeping well.

  • Hi again. I know at the early stage everything is dire but the best thing I read when diagnosed in 2006 is that you are more likely to die with PBC than because of it. Robert from the PBC Foundation has also at some time mentioned a person over 100 who had PBC. Stress however is an enemy to us so do lots of things to help relax and content. Hope the GP appointment is quick.

  • Thanks for your support; it's really appreciated. Not sure how to reduce stress as I am a secondary school teacher and just started back at work this week!! Hope you are keeping well and will remember what you say about dying with it rather than from it.

  • Hi. Don't know if u have heard of FELDENKRAIS .. it is marvelous and extraordinary. MOSHE FELDENKRAIS created it many years ago. It is a wonderful and integrative approach to understand the body and how movement happens and how we get injury. I particularly found it was and is a lifesaver .. I began when I had shoulder injury. Spectacular. ..

  • Thanks for this - will research this further.

    Kind regards

  • Hi Jane. Feldenkrais integrates into every area of life. With the right instructor and doing the one on one .. it is fabulous. Have been doing it and recommending for years. Keep posted.

  • I've been having exactly the same pain. It's not the shoulder joint, and it came out of the blue. It's sore, but movement doesn't seem to affect it

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