I've discovered I had PBC in March of 2015. I was fine until October of that year when I was celebrating my moms birthday at a port by the ocean and I passed out in front of my family. I don't know the reason for me passing out, Dr. said it was probably the heat that got to me but ever since then I get anxiety and panic attacks all the time. I'm afraid of passing out and I get anxiety whenever I go somewhere. Also, I go to the bathroom alot I don't know if it's the medication (Urso) cleaning me out but I get anxious about going somewhere because of needing to use the bathroom. Now my dr. Says I have high blood pressure and high cholesterol probably because my liver can't filter out properly and the medication for blood pressure didn't work for me, it caused more harm than good. If I get some type of pain in my body or don't feel good I sart going into panic mode thinking "now what's wrong with me"? I've tried essential oils, yoga, and breathing tips but still get anxious. Does anyone have any tips on what to do when you get panic attacks or anxiety? Sorry for the long post, just needed to vent😞.
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dolphinlover2020
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Your Dr should try you on some type of anxiety medication. I know, I know, more meds sounds awful. But the stress & anxiety is doing you more harm for the PBC then anything. I take Buspirone twice daily, it has helped tons. Then the bathroom issue, I had this problem as well, was diagnosed with ulcerative colitis (UC). Plus I seemed to have created a ulcer on top of everything else due to the worry worry worry. God has a plan for all of us, so why must we worry, right? Give it to Him & he will carry you through😇. Instead of the worry so much it harms you, try reading a bit of scripture or just a little prayer. I promise, he'll hear you. I hope this helps some. We have to be strong through this fight & always know you're not alone!
Stay strong, it's a must & we haven't any other choice❣️
Thank you for your reply. I'm so glad we have this website to talk to others who are going through the same thing. Thank you for your recommendations and advice. I have a coworker who is kind of going through the same thing but not with PBC and she also recommended prayer and the scriptures. I will keep praying and read the scriptures as a way to overcome my worries, thanks.
Stress and worrying too much can give you anxiety. Try to think positive in every negative thing you been going through right now... eat lots of vegetables and avoid caffeine and alcohol if you can..
Thanks for the advice I just changed my diet and added lots more veggies and fruit. I will try to think positive and hopefully get a hold of my anxiety.
Good..there are some stuff we can't change in our life even if we want.. all we can to do is realized and move forward..
When I first heard that I have pbc I felt like I was falling from 100 stories building like I don't have hope to leave ..for three months I went nuts did stupid stuff realizing I'm gona die soon.lol. Now, this my 4th year running 👍🏼
Sudden change of diet can cause bathroom issues. The thing is moderation in everything. How much fruit and veg are you eating? I have gone too far in the past and eaten way too much fibre and had the same problem as you. When we are anxious about our health i can be easy to go the ther way in an effort to make ourselver better.
Im sorry you are getting panic attacks. I know what that is like also. I did learn to control them after a while. I had a good friend who understood and helped me through them.
Fainting, although unpleasant is very common. It has many causes, anxiety being one of them. When i was first diagnosed with pbc i felt faint every time i thought about it. Education was the key to that. I learned more about pbc from the PBC Foundation. And coming here for advice and reassurance from people who also have it.
I do hope you feel better soon. My heart goes out to you.
I have found listening to positive clips from You Tube on my mobile has helped me. I like the voice of Jason Stephenson who has many positive guided talks. I often fall asleep whilst listening and wake more positive and refreshed.
When you have a panic attack try to go somewhere quiet, breathe and tell yourself you are alright. Every morning when I am cleaning my teeth roughly two minutes I stand on one leg for balance exercise and strengthening of the ankles (if I do start to go over I have the sink to grab on to) and when I check the mirror I tell myself I am okay. It was a little trick taught to me many years ago by a therapist and for me it works.
Wow...so much great advice from everyone, thank you!!! I'm really glad I found this website. Without it I think I would go insane. I'm glad to hear from people who are going through or have been through what I've been going through. I feel more positive now that I can overcome my fears and anxiety using the advice you guys have given me. Thanks 🙏
Even before my diagnosis, I found when I had times of great stress a few visits with a counselor helped me work through my anxiety. It may not be for you, but if you haven't already tried it, you might give it a try.
We all feel for you. Try and cut out gluten. I had the loose stools so bad a few years ago but it is much better after I watch my diet and gluten is like poison for me. All the best
Rockie. I am going to ask a strange weird question. Has anybody on this Site ever considered trying to use Cannibas Oil for BPC and all the other related deceases to it? I have a friend, still very young in her thirties with kidney, liver and breast cancer, The Oncologist was telling her he was so sorry but it is just a matter of time. She started taking high doses of cannibas oil, and the cancer counts are much lower, her tumours shrank and she is full of energy and the liver pain is less, so also the bile. She started to itch and after using Cannabas she no longer itches, and has a purpose in life once again and is looking radiant and full of energy. The Oncologist cannot believe the improvement. So I was wondering if it might not help with our itching, bile ducts getting inflammed.Please if anyone has information about this. I know there is a lot of very clever friends on here
I think it's normal to experience periods of anxiety when we are "adjusting" to diagnosis of a lifelong disease. Something we can't control and for which there are a lot of uncertainties.. I have found some counseling to be very helpful as I sort through all of it. Might be worth a try for you.
this group offers such fantastic peer support- so you're not alone in this. I know for me I had to learn to "make peace" with my diagnosis-- oh I still have my days but I am learning what "self care" things I can do to minimize the worries and to stay in the present as much as possible. Take care.
Thanks, someone else told me to also try counseling, seems like something I should try to help me overcome my anxiety, alot of it does have to do with me fearing the worst and thinking this disease will soon take over me. I will try what I can to make peace with this and continue living my life with my family.🙏
Glad you are open to it. (Counseling) I see you are in USA. You can find a therapist near you that works with people who have chronic illness. This web site lets you review providers and filter them by location, special interests, gender etc. therapists.psychologytoday....
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New here! Question about Diagnosis 
High liver enzymes not AMA test yet but shouldn't my labs get worse not better 
Brand vs generic & R-alpha lipoid acid
Confusion , is it PBC or not?
