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PBC Foundation

9,391 members • 8,002 posts

All posts for March 2017

Tiredness

I'm curious to know how others experience the tiredness from PBC. Does it feel like a physical exhaustion like aching muscles or just a need to sleep? Or is...

I'm curious to know how others experience the tiredness from PBC. Does it feel l...

swinstan

•7 years ago

23 Replies

Sweating

For the last month I have been sweating badly in the morning and feel cold clammy and getting worse to the point my underarm in clothes is soaking wet I'm...

For the last month I have been sweating badly in the morning and feel cold clamm...

Melwoods

•7 years ago

14 Replies

ICP and PBC

I have had PBC diagnosed for 3 years now and am on urso. I have been pregnant twice in the last few years and both times got ICP - diagnosed easily the first...

I have had PBC diagnosed for 3 years now and am on urso. I have been pregnant ...

rubyrose15415

•7 years ago

13 Replies

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General health outlook

Hello, I have recently been diagnosed with PBC, which was quite a shock. I'd never heard of the condition and it's taken a while to get my head around it, but...

Hello, I have recently been diagnosed with PBC, which was quite a shock. I'd nev...

happy-days71

•7 years ago

6 Replies

Allergy to PBC medication?

I wonder if there is anyone who is allergic to Adursal (PBC medication)? I have an awfaul swelling of the eyelids and jaws - could it be due to the medication...

I wonder if there is anyone who is allergic to Adursal (PBC medication)? I have ...

saarima

•7 years ago

3 Replies

My wife

Hello, I have just got back from Hospital, my wife (42) has just been told she has pcb - she went in as she was jaundice, she has very high bilirubin levels at...

Hello, I have just got back from Hospital, my wife (42) has just been told she h...

Mark01823

•7 years ago

23 Replies

Fibroscan

I been diagnosed pbc science 2013 so far I'm doing good. All my labs are normal but 3 days ago my liver specialist told me to do fibroscan So I'm doing...

I been diagnosed pbc science 2013 so far I'm doing good. All my labs are normal ...

Sachin1234

•7 years ago

11 Replies

Pbc

Been told I have pbc positive blood tests had a scan and it showed a bright liver and kidney scarring. Does this mean I have pbc

Been told I have pbc positive blood tests had a scan and it showed a bright live...

Deaks

•7 years ago

3 Replies

IgM levels please anyone?

Hi all I very much subscribe to the belief that our blood results don't matter as much as how we're feeling, but I'm curious about something... Most of my...

Hi all I very much subscribe to the belief that our blood results don't matter a...

Skypony

•7 years ago

9 Replies

PBC

Just has been diagnosed with PBC from ultrasound scan but my liver function test is normal, however I have pain under the right side of my ribs when I stand...

Just has been diagnosed with PBC from ultrasound scan but my liver function test...

UliaTov

•7 years ago

11 Replies

PBC Itch and menopause...feeling nuts!

3 months or so I have been going through hot flashes, night sweats, low mood., and to top it all off 2 weeks ago the itch of PBC has been bothering me. I am...

3 months or so I have been going through hot flashes, night sweats, low mood., a...

krazy-girl

•7 years ago

6 Replies

FIBROSCAN in NY area?

Someone mentioned a Fibroscan but I can only find one in NYC. I would like to find a facility that offers it in NY state. Any ideas? szukidavis@aol.com.

Someone mentioned a Fibroscan but I can only find one in NYC. I would like to f...

NYArtist

•7 years ago

4 Replies

Pain/discomfort after eating.

Does anyone else suffer with pain after eating which on some occasions I can only describe as 'gallbladder- gallstone' type pain (really painful) for around...

Does anyone else suffer with pain after eating which on some occasions I can on...

lizagood1

•7 years ago

12 Replies

Taking part in the NHS march

Good morning all. You might have missed it on the news particularly if you watch BBC, but yesterday there was an enormous march of over 250 000 people from...

Good morning all. You might have missed it on the news particularly if you watch...

Gioielli

•7 years ago

1 Reply

What are all the different types of Urso?

After reading through some of the posts, I've seen where some people take a certain form of urso and others take a different type. How many types of Urso are...

After reading through some of the posts, I've seen where some people take a cert...

andrea83

•7 years ago

10 Replies

1/2 day

This last week I've noticed a sudden change ... it used to be the 5 full time days was a lot and yes I was tired all the time... now I seem to be tired of...

This last week I've noticed a sudden change ... it used to be the 5 full time da...

Becca75

•7 years ago

9 Replies

Bloodshot painful eyes

Hi, my name is Daisy. I was diagnosed in early December 2016, elevated liver enzymes tests were showing for over one year. I already had the itch itch for...

Hi, my name is Daisy. I was diagnosed in early December 2016, elevated liver enz...

dlahullier0305

•7 years ago

9 Replies

Obeticholic approved in England, Wales and Northern Ireland

www.pbcfoundation.org.uk/news/latest-news/obeticholic-acid-approved-by-nice-for-the-treatment-of-patients-with-pbc Above is the link to the brief article on...

www.pbcfoundation.org.uk/news/latest-news/obeticholic-acid-approved-by-nice-for-...

PBCRobert

Partner•7 years ago

17 Replies

Holiday vaccinations

Hi all I am travelling to Bali next month and need holiday Vaccinations for Hep a and b diphtheria typhoid and cholera are these all safe for me to have with...

Hi all I am travelling to Bali next month and need holiday Vaccinations for Hep...

Char_char1980

•7 years ago

2 Replies

Just diagnosed (caught literally RIGHT when disease started)/ possibly linked to acetaminophen?

Hi everyone! My name is Andrea and I am 33 yrs old, living in California. I was just diagnosed yesterday but I would like to share my story and gain some...

Hi everyone! My name is Andrea and I am 33 yrs old, living in California. I w...

andrea83

•7 years ago

19 Replies

Abnormal LFT (potential PBC) and prepping body for IVF

Hi, I've not been diagnosed with PBC yet but both GP and specialist say the signs are pointing that way and monitoring monthly blood tests. We've been trying...

Hi, I've not been diagnosed with PBC yet but both GP and specialist say the sign...

mrsreddave

•7 years ago

5 Replies

Just discovered AMA positive

Hello everyone. My name is Bogdan, I am from Romania, I am 34 years old and I have 2 little children. I just discovered this AMA which unfortunately is...

Hello everyone. My name is Bogdan, I am from Romania, I am 34 years old and I ha...

spy0n

•7 years ago

13 Replies

Holiday insurance

Just spent the afternoon trying to get insurance for a week in Spain. May I recommend World Travel, have covered me for PBC ( and they gave it its new name )...

Just spent the afternoon trying to get insurance for a week in Spain. May I reco...

AmandaSlater

•7 years ago

2 Replies

Feeling a little frustrated

Hi everyone. Was diagnosed with PBC just over a year ago after blood tests and biopsy. On Urso and my blood tests have stabilised. Have had episodes of liver...

Hi everyone. Was diagnosed with PBC just over a year ago after blood tests and b...

Caroline-12

•7 years ago

11 Replies

Use

Unable to send reply

Mary48

•7 years ago

Be the first to reply

Very Frustrated

This afternoon I went to my PCP. Just to "see" if I have something else besides PBC itch. She said no bug bites and was probably the liver disease itch. I...

This afternoon I went to my PCP. Just to "see" if I have something else besides ...

krazy-girl

•7 years ago

11 Replies

Pbc/Aih

Please can any one advise wether they have a pain in their foot. Only one. I know it sounds daft but it aches constantly and have had xrays in the past. It...

Please can any one advise wether they have a pain in their foot. Only one. I kno...

janine541

•7 years ago

11 Replies

Antibiotics ?

Can I ?

Mrsfancypants

•7 years ago

2 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2017

Tiredness

Sweating

ICP and PBC

General health outlook

Allergy to PBC medication?

My wife

Fibroscan

Pbc

IgM levels please anyone?

PBC

PBC Itch and menopause...feeling nuts!

FIBROSCAN in NY area?

Pain/discomfort after eating.

Taking part in the NHS march

What are all the different types of Urso?

1/2 day

Bloodshot painful eyes

Obeticholic approved in England, Wales and Northern Ireland

Holiday vaccinations

Just diagnosed (caught literally RIGHT when disease started)/ possibly linked to acetaminophen?

Abnormal LFT (potential PBC) and prepping body for IVF

Just discovered AMA positive

Holiday insurance

Feeling a little frustrated

Use

Very Frustrated

Pbc/Aih

Antibiotics ?

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