Obeticholic approved in England, Wales and ... - PBC Foundation

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Obeticholic approved in England, Wales and Northern Ireland

PBCRobert profile image
PBCRobertPartner
17 Replies

pbcfoundation.org.uk/news/l...

Above is the link to the brief article on the Foundation's site. Great news for many people who have PBC and are either intolerant or insuffitiently responsive to Ursodeoxycholic acid.

Patient access gradually increasing throughout Europe. We anticipate Scotland next.

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PBCRobert
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17 Replies
Oidra profile image
Oidra

Excellent news.

Becca75 profile image
Becca75

it says 'page not found'

Betonarme profile image
Betonarme in reply to Becca75

alternatively:

ir.interceptpharma.com/rele...

PBCRobert profile image
PBCRobertPartner in reply to Becca75

I copied the link incorrectly. It now works. Thanks for pointing that out.

Becca75 profile image
Becca75

great thanks :) excited to read the article :)

rosie456 profile image
rosie456

Fantastic news! Im from Northern Ireland, females and only in my thirties so this is very reassuring to hear :)

exy21 profile image
exy21

Since I'm the "can't tolerate group" it would be nice if Scotland was also included.

PBCRobert profile image
PBCRobertPartner in reply to exy21

The company applied in Scotland later but we are currently going through the process. We shall keep you posted.

Melwoods profile image
Melwoods

Can It stop the horrid itching and having cold sweats and the feeling that your skin is burning and sore ?

in reply to Melwoods

Hi Melwoods,

I'm in Australia and 'Obeticholic acid' has not been approved here yet, so I can't personally say one way or the other that it improves the 'itch' of PBC - but, I have read one of it's side affects can be increased itching.

I belong to a couple of the Facebook PBC support groups and have read posts from different people who are having positive experiences with the new drug, but then there are others who have had increased itching - if you are not responding sufficiently enough to Urso, the Obeticholic acid would be worth trying.

Di

PBCRobert profile image
PBCRobertPartner in reply to Melwoods

It is for slowing down progression and not for itch.

First medication to use for itch is cholestyramine.

Melwoods profile image
Melwoods in reply to PBCRobert

Thanks Robert

I have tried that and naltrexone and rifampin

No luck so i have been referred to Birmingham

Brilliant news for those who will benefit from it.

swinstan profile image
swinstan

Anyone know how it compares with urso? Wondering whether it might be better in controlling symptoms even if they both reduce the biological markers.

bullett profile image
bullett

Does anyone know if Obeticholic acid (OCA) is available now?

PBCRobert profile image
PBCRobertPartner in reply to bullett

Hi, bullett.

Yes, it is available in many places. I don't know where you are.

bullett profile image
bullett

I am in Kent UK PBCRobert

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