Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for March 2017

Phoenixv

Does anyone suffer constipation I have been giving my husband lactulose for days he is still feeling uncomfortable sorry not a good subject not sure what else...

Does anyone suffer constipation I have been giving my husband lactulose for days...

Phoenixv

•7 years ago

7 Replies

Now I have PBC.

Two days ago diagnosed with PBC. A little worried about how this will impact on my daily life?

Two days ago diagnosed with PBC. A little worried about how this will impact on ...

Carmelite66

•7 years ago

10 Replies

Just diagnosed

Hi this is my first post......my GP diagnosed me before Christmas with BBC and I now have my first hospital appointment to meet the specialist can anyone...

Hi this is my first post......my GP diagnosed me before Christmas with BBC and I...

RoxyP

•7 years ago

4 Replies

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Globulin levels?

Hi fellow PBC,ers! I was diagnosed with PBC in September of 2016 and since then have been going through additional tests to try to figure out some symptoms...

Hi fellow PBC,ers! I was diagnosed with PBC in September of 2016 and since then ...

Gjt777

•7 years ago

8 Replies

PBC/AIH

Does any body work 2 jobs and find it hard. I have 2 jobs and struggling to cope but to givd up would be hard financially. Is their zny advice please x

Does any body work 2 jobs and find it hard. I have 2 jobs and struggling to cope...

janine541

•7 years ago

4 Replies

esa

l won my case at the tribural in febuary but still not heard when lm getting paid they said its with the desition makers how much l get can any body tell me...

l won my case at the tribural in febuary but still not heard when lm getting pai...

crystal2334

•7 years ago

3 Replies

Should I be worried

Been back the dr Been on Urso for 3 month Alp gone back up by 50 to 634 Bilirubin is 20 Alt is 161 Should I be worried ?

Been back the dr Been on Urso for 3 month Alp gone back up by 50 to 634 Bilirub...

Melwoods

•7 years ago

7 Replies

Multivitamins boots 20 soluble tablets

I just wondered if anyone else is taking these. Would this effect me in any way. Please could anyone help me.

I just wondered if anyone else is taking these. Would this effect me in any way....

Chocolate11

•7 years ago

8 Replies

Feeling bit less tired and fresh

While doing some research on how to get rid of tiredness, I came across a post on liver foundation that somesaid said lemon juice with its rind in hot water in...

While doing some research on how to get rid of tiredness, I came across a post o...

Mg40

•7 years ago

8 Replies

Happy St Patrick's Day

All the best to all my followers and everyone else that has contacted me. 🍀🍀🍀🍀🍀 Have a great day 😊

All the best to all my followers and everyone else that has contacted me. 🍀🍀🍀...

Hidden

•7 years ago

6 Replies

Obeticholic acid

https://globenewswire.com/news-release/2017/03/02/929951/0/en/NICE-Recommends-Ocaliva-obeticholic-acid-for-the-Treatment-of-Patients-with-Primary-Biliary-Cholan

https://globenewswire.com/news-release/2017/03/02/929951/0/en/NICE-Recommends-Oc...

AliPhillips

•7 years ago

11 Replies

Finally! Some good news.

Hello PBC family, I was diagnosed with PBC last year in Oct. Like many of us, I was scared and stressed out with the news of my new chronic disease. To make...

Hello PBC family, I was diagnosed with PBC last year in Oct. Like many of us, I...

Ktltel

•7 years ago

25 Replies

Unable to take Urso for PBC

I am newly diagnosed with PBC and was given Urso. Urso made me very sick so I am now scared as to what is going to happen to me. Has anyone here not been able...

I am newly diagnosed with PBC and was given Urso. Urso made me very sick so I am...

Wocket

•7 years ago

22 Replies

Outcome of my appointments.

Hi everyone just to let you know that my annual appointment I had some good news that in the three months trial period of being on ursofalk capsule 250 grams...

Hi everyone just to let you know that my annual appointment I had some good news...

Chocolate11

•7 years ago

13 Replies

AMA positive turned now into negative....

Hi again. I just did again the blood test for AMA at a different laboratory and now is negative....I was just given the accept to my GP for biopsy.. Of course...

Hi again. I just did again the blood test for AMA at a different laboratory and ...

spy0n

•7 years ago

5 Replies

Webinairs

Has anyone an easy explanation of how to use the webinairs. I have missed the first three but hope to catch up on the PBC Foundation's website. I have...

Has anyone an easy explanation of how to use the webinairs. I have missed the ...

butterflyEi

•7 years ago

2 Replies

Elevated LIver Function Tests

After 5 years of elevated LFT's , 2 liver biopsies , HIDA scans , MRI's , ERCPS with schpincterotomy ,gallbladder removal .no doctor could confirm PBC .. Today...

After 5 years of elevated LFT's , 2 liver biopsies , HIDA scans , MRI's , ERCPS ...

NycGirl

•7 years ago

3 Replies

Positive AMA and ANA

Hi all, I was wondering if there is any information regarding the PBC prognosis of having a positive ANA as well as AMA. So far I have only been diagnosed...

Hi all, I was wondering if there is any information regarding the PBC prognosis...

youaremysunshine

•7 years ago

5 Replies

Does anyone get a tingling sensation in the feet

Does anyone think this is related to pbc the last couple days I have I had that feeling in one of my feet .

Does anyone think this is related to pbc the last couple days I have I had that ...

Chocolate11

•7 years ago

6 Replies

Questions for liver doctors

.... please read and complete if u have not already doneso guys n gals 😊 thanks x BLTCarolBLTCarol British Liver Trust a day ago 4 Replies A University...

.... please read and complete if u have not already doneso guys n gals 😊 thanks...

AliPhillips

•7 years ago

3 Replies

Still getting depression

Although I only have very slight symptoms and get on with life best I can I still get into a very dark depression every so often. I think it's the not...

Although I only have very slight symptoms and get on with life best I can I stil...

Hidden

•7 years ago

20 Replies

Tests are better, but, not quite

After taking Urso for 3.5 months, my GGT level dropped from 130 to a normal level of 43. However, Alkaline Phos remained high, though not as high as before I...

After taking Urso for 3.5 months, my GGT level dropped from 130 to a normal leve...

iagra

•7 years ago

4 Replies

PBC and Platelets

Can anyone explain if there is a connection between PBC and a low platelet count of 75?

Can anyone explain if there is a connection between PBC and a low platelet count...

Optiplex990

•7 years ago

5 Replies

PBC

Hi I was diagnosed just over 2 yrs ago with PBC, I've had regular checks with my consultant, I saw him today and was told my blood levels are fine but my scan...

Hi I was diagnosed just over 2 yrs ago with PBC, I've had regular checks with my...

Margaret59

•7 years ago

7 Replies

Questron question, if I may?

Hi everyone, I was diagnosed with PBC 3 years ago and started on Urso. Only have a partial response to that but it's better than nothing and I'm hopeful for...

Hi everyone, I was diagnosed with PBC 3 years ago and started on Urso. Only have...

Godfrey1

•7 years ago

6 Replies

Drainage.

Hi everyone, just thought I'd share my experience. I went in to St James on Thursday for my third Nasal Biliary Drainage, had general anaesthetic so knew...

Hi everyone, just thought I'd share my experience. I went in to St James on Thur...

Bookworm7

•7 years ago

11 Replies

Feeling terrible when I wake with stage 4

I wondered if anyone feels terrible when they wake up. Its had to explain what the feeling is like, a bit sick, legs and arms trembling inside, aching, not...

I wondered if anyone feels terrible when they wake up. Its had to explain what t...

Oscardog

•7 years ago

6 Replies

PBC infertility and risks to baby

Hi I've been referred to the infertility clinic due to probable PCOS. Dies anyone have any advice about pregnancy and PBC. I have only just been diagnosed...

Hi I've been referred to the infertility clinic due to probable PCOS. Dies anyon...

Jhenderson

•7 years ago

3 Replies

Living with PBC and triple heart bypass

Hi I am 58 yr old male I had triple heart bypass 21st OCT 2015 then 4 weeks ago I was diagnosed with BPC my liver Specilist has put me on Ursofalk500 twice a...

Hi I am 58 yr old male I had triple heart bypass 21st OCT 2015 then 4 weeks ago ...

Cartrader

•7 years ago

5 Replies

Pbc and familys

Hello my dad was diagnosed with pbc although its past the stage of help and my aunt also has pbc research has shown it can run in family's my gp is going to...

Hello my dad was diagnosed with pbc although its past the stage of help and my a...

moiraanne

•7 years ago

6 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for March 2017

Phoenixv

Now I have PBC.

Just diagnosed

Globulin levels?

PBC/AIH

esa

Should I be worried

Multivitamins boots 20 soluble tablets

Feeling bit less tired and fresh

Happy St Patrick's Day

Obeticholic acid

Finally! Some good news.

Unable to take Urso for PBC

Outcome of my appointments.

AMA positive turned now into negative....

Webinairs

Elevated LIver Function Tests

Positive AMA and ANA

Does anyone get a tingling sensation in the feet

Questions for liver doctors

Still getting depression

Tests are better, but, not quite

PBC and Platelets

PBC

Questron question, if I may?

Drainage.

Feeling terrible when I wake with stage 4

PBC infertility and risks to baby

Living with PBC and triple heart bypass

Pbc and familys

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